Hi Elvira,
Oh, I know how hard it is...I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better about everything. Check it out on my page -- and WELCOME!
LeslieAnn

Hi, Elvira. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Welcome.

Roger.

Hi Elvira, welcome to AlopeciaWorld...you are not alone!

Hi Elvira, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Hi elvira,

Yes Alopecia what a rollercoaster. I started to lose my hair over a year ago. I have been getting injections for about a year and had total regrowth of all my hair. But now I have about 3 quarter size bald spots on the underneath of my head and have one on top and thinnng else where on my body. I would love to chat with you I can email you my phone number or we can try to get togerther sometime. Please join the chicago group we try to offer support. I too had to wear a wig for a while but I would go with the vacuum wig I hear they are awesome and you can't even tell it's not yours I know the lady in our area that sell the wigs and can give your her number. If you ever need anything please let me know I know how alone you can feel sometimes. Jessica

Hey Elvira! (I love your name by the way!)
Yeah, I started losing my hair in June 2006 and it started growing back by October of the same year. It ALL grew back!!! Which was awesome! But then this past Christmas one of my presents was my hair starting to fall out again. So it wasn't the best Christmas I've had...

About 3/4 of it is back now though! Taking a bit longer than the first time it fell out. I still keep it shaved down though so I can wear my wig when I want to. My bald spots are in stupid places that I wouldn't be able to cover up too.

I went to a dermatologist the first time it fell out and tried the steriod drops. I used them for about a month then kinda gave up, started to not care about being bald! This time it fell out I got steriod cream and used it for a few weeks but it gave me 'pimple like' bumps all over my head and face so I stopped using it. I guess that the things that dermotologists can use depends on the person because I've heard that some things work for some people and not others. Weird!


xox.court

Hi Elvira,

Welcome to Alopecia World.

Know that you are not alone. You have just encountered the best place on Earth.

Jeff

Hey Elvia,

What I've seen of Vacuum wigs they are wonderful, everyone that I' ve talked to said it's changed their life. I have a few friends on my page that are wearing them and they love them. I've meet the women that sell them once and she is very helpful with the process, she also has Alopecia AU . Her web site is www.newlifehair.com and her number is 160-439-7083 she told me that with good upkeep and repairs they can last 3-5 years. and synthetics last 6 months to a year worn everyday. If you need someone to go with you to meet her I would love to meet you and support you in the process.

jessica

Hello my name is Lisa and like you I feel alone and angry sometimes. I got alopecia totalis 3 years ago and it has truly changed my life. I wont say that living with alopecia has been a truly bad experience but so good has also come out of it. I have now learned to appreciate life and love myself despite my flaws. Im still also hoping that God would restore my hair back to me one day. I havent told my boyfriend about it because im scared of his reaction. He is a great guy and we plan on getting married next year. What would you do?

Hey Elvira ,

I just found out that Bald Girls do lunch is coming to Chicago so you can find the link on the chicagoland group.

jessica

Hey,
My hair is human hair. I was lucky enough to find a place that sells human hair wigs here. I buy 2 at a time and then when one starts to lose its color or get tangled (usually after 6 months), I switch to the newer one while they re-dye it and get all of the knots out. So it usually lasts me for atleast a year, or thats what I've found so far because I have only been going to this place for 2 years. It was so hard for me to find the right one for me. I have had synthetic hair before too and been to many different places before I actually found on in my hometown. I see that you are in Chicago, but here is the website for the place I go in KY: http://www.hair-institute.com/. The website mainly looks like they do hair replacement and stuff- but this is where I get my wigs. Even though you probably won't want to travel all the way to kentucky, maybe you can contact them and ask them if there are any similar places near you? I hope I helped you!!!
good luck,
Whitney

hi elvira
no that's not a wig, it's my hair before i started losing it. i have to get a new pic up of myself with a wig. i don't have a vacuum wig but i am considering getting one...maybe in a few months. how long have you had it?