Debbie

Female

Jackson, nj

United States

Profile Information:

Relationship Status:
Married
About Me:
About 8 years ago I started to get some bald spots. Two years later I lost it all on my head. A year later I got pregnant with my daughter and my hair came back. I didn't need a wig for a few months. A month before I had her, it all fell out again. Six months later I got pregnant with my son and I lost everything. A few years later I got my eyelashes back, one full eyebrow, part of the other. A few months ago my hair on my head started to grow back. It's spotty, but what is there is a nice amount. If it was like this all over my head, I wouldn't need the wig anymore.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes

Comment Wall:

  • LeslieAnn Butler

    Hi Debbie,
    I have universalis, too. For about 20 years!
    How are you today? I just wanted to stop by and welcome you.
    LeslieAnn

    Sep 16, 2008

  • Linda

    Hi Debbie, Welcome to AlopeciaWorld!

    Sep 16, 2008

  • LeslieAnn Butler

    I don't let it stop me from doing the things I love. That's one reason I wrote the book, "If Your Hair Falls Out, Keep Dancing!" A lot of people, especially women, have a hard time getting their footing because alopecia can wipe out self esteem in one fell swoop. It may take a little time, but you can get back to feeling normal and doing the things you love. You might want to get a copy of the book -- you can order it by clicking the link on my page, or going to Amazon.com or the naaf.org marketplace! I'll be it will make you feel lots better...
    Hugs!

    Sep 16, 2008

  • LeslieAnn Butler

    To be specific about a couple of the things you asked, as far as swimming goes, there are options -- you can get a vacuum-based wig which will stay on in the water, you can get a swim wig from Amy Gibson (google her), you can wear a scarf or a hat and not put your head under! I love to do the sidestroke, breast stroke or tread water and I can do them without putting my head under the water. I wear a synthetic wig because then I don't have to worry about restyling it!

    Sep 16, 2008

  • LeslieAnn Butler

    Yes, you're right, the vacuum ones are hot. Did you check Amy Gibson's swim wig? It's made of cyberhair, which is supposed to be better than other synthetics because it doesn't frizz. I don't have one, but it sounds interesting.

    Sep 16, 2008

  • Cheryl, Co-founder

    Hi Debbie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

    Sep 16, 2008

  • Garden Girl

    Moorestown! Not far from you!

    Sep 30, 2008

  • Garden Girl

    Debbie,
    Hi Neighbor!!! I have never met anyone with A either. I have had AU since I was 15. I am now 49. It has certainly become easier in terms of emotional adustment though I really wish I had eyebrows and eyelashes for practical as well as cosmetic reasons.
    I am a psychologist and colege professor. I choose to wear hair at this moment although that is a decision that is evolving. When my kids were young, I was afraid other kids would make fun of them so I wore hair to protect them. Now that they are older, they support me in whatever decision I make. I am not so sure about my husband. He says he would support me but I sense it would take some adjusting on his part. That's ok, the adjustment, I just want to be sensitive to the timing of any transition I would make.
    I check my e-mail regularly psysuz@hotmail.com. Let's "talk."

    Oct 1, 2008

  • Esther

    hi debbie, i'm in clifton and i know what you're going through. It's tough but i know this is something i have no control over. i haven't fully accepted it yet, i struggle with this everything but i'm trying. the support from everyone here is great.

    Oct 15, 2008