HI! WELL I HAVE TRIED ONE. I DID A STEROID CREAM ON HIS HEAD FOR ONE MONTH. HE STILL HAD A LITTLE BIT OF HAIR AT THAT TIME. BUT AFTER THE MONTH WAS OVER IT ALL FELL OUT. THATS THE ONLY THING I FELT COMFORTABLE DOING. WHEN I WENT BACK THEY WANTED TO START GIVING HIM SHOTS IN HIS HEAD..BUT I COULDNT DO THAT..MY MIND IS BLANK ABOUT WHAT TO ASK NOW..IM JUST SO EXCITED ABOUT TALKING TO OTHER PEOPLE HOW UNDERSTAND. I AM SURE I WILL HAVE LOTS I WANT TO KNOW ABOUT. HAVE YOU DID TREATMENT ON YOU DAUGHTER???

Hello Helens mom,
First of all your Helen is a beautiful lil girl, with a sweet smile.
My name is Maria and my daughter is Savanna and she to has AU, she lost all her hair and eyebrows/eyelashes when she was just 3yrs old too, It has been a long journey for us, sometimes stressful and others been great...I just would like to answers some questions you had by my own experience, at 3 or 4 yrs old it is hard to keep wigs on them they are not comfortable and the itch real bad. I know how hard it is to hear such comments from other people but it does happen. My self i just tell them what is wrong and she cant grow hair, It is nothing to be ashamed about she doesnt have any thing contagious, I think if you force wigs on them then they may start to feel that you are ashamed of them. The best thing i could tell you is to offer medical treatment or wigs and if she is willing then do it, If she isnt then she is happy with who she is right now and no need to change it, When she wants to start something then that is when you should try new stuff....This is the only advice i have for you, but you are her mother and i am sure you will make the best decision for her.

I would love to chat more and even exchange our own personal concerns, I hope I helped you somewhat.

hello helens mommy....your daughter is stunning. my son has aa he started with it when he was 3 too. hes now 9 and is still aa.but has alot of patches..xx hope to chat to you soonxxxxx marie

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

actually...we went to san diego childrens hospital. the only options i was given was to do the streroid cream (which i did) or startt him on shots. i was never aware of him not having to get shots in his head. thats the only place i thought they did it. so hearing you say that kind of shocks me. when i said i wasnt interested in that, they told me i didnt need to come back unless i changed my mind. when i took him he had about maybe 15-20% of his hair still. now i think maybe i should just go somewhere else? so did you do the rogaine first without shots, or is that something you do together? i have a daughter also, so the thing about his immune system being weaker alarms me. it seems like if someones kid is sick, at leats one of thm will get it, and both will be sick. i just get nervous on that part. thank you for sharing so much. it is appreciated!

i am so happy to be a part of this community that is in this site!! it makes me feel a sense of relief. just knowing that i can hear other peoples experiences makes such a difference. i am really eager to try something new. i mean, i dont know if i am doing the right thing by doing nothing, or if i should start looking into other options. i have had lupus for alot of years and i feel like i have been in the hospital my whole life. i just dont want it to be a part of haydens life. then again maybe i am doing some kind of disservice to him. his dad and i have alot to talk about. we do eant to try something. i just didnt know where to start. by coming here i am getting feedback that is so great and helpful. i took steroid for alot of years and had side affects that were more then i bargained for, i just dont want it to ever be the same with hayden. thank you...i appreciate our conversations between eachother!!

Thanks for the very positive and encouraging feedback. I'm so glad that you (and Helen!) are enjoying being an integral part of Alopecia World. ;-)

Hey Lynn.
We are actually in Louisiana, but only about 2.5 hours from Houston. It took me a while to get over Madison losing her hair. But I guess just seeing how much she had accepted it made me realize that her hair wan't what important. I still have days where i am a little down. I wonder what she would look like with her hair & eyebrows & lashes......She has been accepted in Locks of Love and we had to shave the few little hairs she did have in the back. And within a few days they grew back!!!! And more hairs are coming in!!! Not a lot, but it's something. I noticed the other day that her eyebrows are getting little hairs. They are white anymore, they have color...so I wonder if these will stay??? Your little Helen is adorable!!!
Sharon

thankyou so much for the compliment, i am an esthetician, its all about skincare, as you know alopecia comes with alot of skin conditions!!!!!!

Yep!! But we still have a few months left to wait. We are still waiting on the cap that they made from her head mold to come in. We have to make sure that it fits her head good. Then, if it does fit like it should, it will be about 4 months for the actual wig to come in. But they are sending her a synthetic wig to wear till she gets her vacuum wig. She is very excited!! She has a synthetic wig already that we bought a few years back, and she has probably worn it a handful of times out in public. But she likes to wear it at home. I think that when she sees how this wig won't itch or bother her like her other one did, she might wear it out to school. She is so used to not wearing anything, it might take a while to get used to wearing one.

please do..i am very interested..we are interested in following your suggestions so far. thank you.

Your daughter is a beautiful little girl. I see that you have talked with Monique. She is my cousin and Hayden is her son, as you know. I would do anything for the both of them. I am really interested in learning all I can about alopecia, as I am around Hayden, Hayley and Monique all the time. They mean the world to me..good luck with the treatments...and keep us filled in on what is going on...

Hi Helen.

Well, we talked to the research committee today. They registered Angel, Della's twin. They want us to participate. They are going to send us a package instead of us going out to the facilities. We are going to be traveling here a lot phoenix for Della to get treatment so I don't think that will be possible right now. The lady was so nice, and excited. I hope they can find out something. She also said they were writing a research paper about twins where only one is effected. I wonder what they will find out?

HAHA I'm Miranda. Della is my daughter with alopecia, Angel is her twin, and Aaliyah is my 8 month old.

Hi Helen's Mom!

I was just wondering if Helen has ever asked for hair? Leah doesn't really understand about the hair loss thing yet, but has asked for a haircut and some hair right here (top of head).

HI! I really wish the kids were closer,also. I don't know if the sterols make a difference, but this is the longest time for regrowth since he lost his hiar at 11 months. He started in January and is still "growing" strong-we just take it one day at a time

Thanks for the tips. I have actually bought her a wig, but she doesn't really like it. So, I guess I will just wait to see and keep it on hand for the day she wants HAIR. There is a picture on our site with her and wig.

Thanks again.

hi therem your daughter is soooooo gorgeous!!! hope you are all ok.xx

Hi,

I am stopping by to see how Helen's regrowth is going. Are you still using the Rogaine? I have just started Amber on rogaine as well wanted to get your advice as to how you found the product.

Thanks

Karen