Hi Monique! Connor was having steady regrowth but started to slowly lose starting in July- He still has about 50% left. We only do Moducare chewable -it is a plant supplement(no side effects) and sometimes the Phyto brand serum-also natural. He also has a bit of white in the balding areas-I am hoping some will regrow before more falls out-but really, who knows? So unpredictable this alopecia!

Hi Monique! Hayden is adorable! I wouldn't do a thing as far as treatments go. We tried a steroid cream on Ella's head when she was first diagnosed at 7 months and all it did was thin the skin on her scalp. I probably only used the cream for a week and decided that was enough, it wasn't worth it to me. There is no cure for alopecia, and until there is I feel there is no point subjecting a child to unnecessary treatments. Yeah, some kids have regrowth, but it can all fall out again too. I think that would be more devastating. As I mentioned in my bio, I truly feel how a parent reacts will determine how the child will come through all this. I have personally decided that there is nothing wrong with Ella, so what's there to treat. She is a very happy kindergartener and she knows she looks different, but she also knows that she's beautiful. She never covers her head up, because she has grown up knowing there is nothing to hide.
I'm not sure where you are located, but you may want to look into Children's Alopecia Project. They are a fantastic group focused just on kids with alopecia. They will be having their first conference this August in Philadelphia and we will definitely be attending. Ella really could care less about it, but I feel it's good for her to see other kids that look like her just to know that she's not the only one. Eventually, as she gets older, I'm sure she'll want support from kids her age. Ok, enough rambling, I hope this helps some. Good luck and I hope to meet some day.

Hi, it's nice to meet you and welcome to alpecia world. Ray's started when he was 3. I tried the creams and stuff, but for Ray nothing worked. I always tell Ray theres a reason for it and love he just the way he is. Since I've been on this side, it's helped Ray a whole lot. Im hoping to take him to the CAP meeting in Aug. So he can be around other kids with alpecia. Great to meet you and Hayden.