Natalie

38, Female

Arlington, VA

United States

Profile Information:

Relationship Status:
Married
About Me:
Hi my name is Natalie! I am 31 years-old and work for a non-profit organization in downtown Washington, DC. My professional and personal goals in life are to make the world a better place for others!

I've had alopecia since I was 14; for the first five or six years I would only lose one or two small patches at a time and they would grow back themselves within a few months. As I got older, more hair started falling out. I have tried everything from monthly cortisone injections to oral steroids to steroid creams and ointments. I also received Reiki therapy for two years. Reiki is an ancient Asian form of healing that helps one to channel their own energy for the positive; it essentially aids one in healing themselves and growing. Although it didn't help my hair grow back, it certainly helped me deal with stress and brought me to the realization that I hold the key to success in my own life. Anyways, around Jan. 09, my hair began falling out to the point where I had an extremely difficult time hiding it anymore. After much thought, many tears, and years of varying treatments, I decided to shave it all off! It was amazingly liberating and has been the best thing that I have done so far in this crazy alopecia journey of mine. I feel like healthy, happy, lively ME again! I just got my second Freedom vacuum wig and am couldn't be happier! It is insanely comfortable and the hair is extremely high-quality. Additionally, I have lots of fun with my bald head and the many options I now have (bald head, wig, scarf, hat, bandana!)

My favorite things to do are: reading, canoeing, running, riding my bike, cooking, shopping, or camping. I have been running since high school, and it is has become my main source of "therapy." Running has always been the best way for me to find my inner strength and keep smiling. In a world where we often find ourselves not in control (such as having alopecia), running is something that I do have control over, and it makes me feel both physically and mentally strong. I have completed 6 half marathons and one full marathon and can't wait to begin training for another one!

And last, but not least, I have an amazing family who has been supportive from day one as well as a great group of friends. My husband is also amazingly supportive and is such a rock in my life. He never fails to make me laugh, and he always tells me how beautiful I am- with or without hair. This is a great website for support; I am so happy to have found it! Feel free to ask me any questions regarding alopecia or life in general :)
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • JeffreySF

    Hi Natalie,

    Welcome to Alopecia World.

    Jeffrey
  • Roger

    Welcome.

    Roger.
  • Jill

    Welcome and thanks for the friend request. I look forward to getting to know you. Feel free to ask me anything.
  • Jennifer Krahn

    Hey Natalie,
    Thanks for the post. I totally understand where you are at in terms of the ponytail, bobbypins and WIND ugghh! My hair can still be worn down, however, the number of strands that I find on my clothes is rather embarrasing. The lady I went to see at the wig shop was so helpful. I have been so scared that putting on a wig would be the most awful experience of my life. It really was not bad. I too have been debating the shave. We even bought the electric shaver. However, after yesterday at the hair shop, the lady, who has alopecia herself, thinks that I still have alot of hair and that I should hold off for awhile. It's the control thing that I wanted with the shave but she was saying that I could control the AA by buying a topper and using it to help hide the spots...so once again I'm in the holding pattern. The topper looked amazing! I'm in hats and scarves or a barrett to cover the major area of concern (quite large), so I don't know what to tell you in terms of the shave. I think you would look great without hair...you're gorgeous. I'm new to this AA thing and it is such a rollercoaster ride. Crazy. Hope you can choose what's best for you.
  • Catherine

    Hey thanks for the add! I'm 19 and have had alopecia since I was 12 or 13. My story sounds just the same as yours so far.. only a few patches that grow in themselves after a few months. I am hopeful that's what it will stay like but the more and more stories I read on here it doesn't look like that's going to happen! Good luck with your wig, I'm sure it will look and feel great!

    -Catherine
  • Roger

    Hi =)

    Yes, its a big rollercoaster ride =)

    Roger.
  • ErinMichele

    Hey Natalie, thanks for the add. So i wanted to know if you had shaved off your hair yet? I have thought about it but still dont have enough confidence to do it. I just ordered my first wig and its a 3/4 topper because i still have some hair. Let me know how you are doing. Erin
  • Jill

    I wear a custom made lace wig that I secure with tape. I'm comfortable doing all types of exercising in my wig. The only thing I can't do is go under water, but I hear you can do that with a vacuum wig. Although I've worn a wig for years and years I just joined this site about 3 months ago and I'm learning so much about wigs. I've been looking into the vacuum wigs too. I've heard a lot of good things about Freedom vacuum wigs. They can come in a longer length than the Peggy Knight ones. Look up Lee and Rose Marie on my friends list. Lee wears a freedom vacuum and has pics even of the inside on her page. Rose Marie is a consultant for Freedom in New Zealand and her daughter wears one too.
  • Camille Reinecker

    Hello, thanks for the add. This is the first time in almost 7 years that I have reached out to the alopecia community.
    Well, I wear a wig from HairArt. It is custom fit to my head and is attached by a type of tape. I can do basically everything in it. The company I bought it from says that you can swim in it and you can. But you have to be careful the tape will weaken in the water.
    Hope all is well and that you find a wig that fits your needs and allows you to feel at ease.

    -Camille
  • Lonnie

    Hey , thanks for the add!

    My 3 year old daughter has Alopecia , we found about a year ago ...i am excited to talk to you more ...and hear from your experiences because myself and my husband are 2 lost puppies... thanks hope to hear from u soon
  • Heather L

    Hi Natalie!

    Nice to "meet" you. I enjoyed reading your profile.

    great attitude you have- it is so refreshing! I have also tried Reiki and acupuncture. I always feel better for it and enjoy going! I am not sure it has done much with my AA- put who knows where I'd be if I didn't try it? So hard to tell in that department! I also have in my area a manual physical therapist (hands on healing) and that it great too-

    Have a great day,
    Heather
  • LeslieAnn Butler

    Hello and welcome, Natalie!
    How are you doing today?
    LeslieAnn
  • LeslieAnn Butler

    Natalie, let me know how you like the book!
    Big hugs!
  • Fitzy

    thank you!
  • uncomfortably numb

    Thanks for the add.
    Whoa, your Hindi is quite impressive, and I can so very see the zeal to learn the language :o) .
    Let me first reply in Hindi to your question 'hal bilkul acha hai, shukriya' means, am doing pretty well, thanks !!
    Ah, nice to know that you would be applying to TCS for internship, my area of work revolves around Information Technology too, I work with SAP in Bangalore. Haha, palak paneer...am sure you do love it, and I bet our good old Popeye would love it too !!
    Am infact glad to hear from someone out of the blue, am getting along well with AT, though I have some remains of hair on my scalp...they seem to have parted off from the rest of my body.
    My wishes for your new wig and am sure that would mean a more confident and vibrant Natalie. Worry not, after all hair isn't everything, but am glad that because of this condition, we get to meet people across nationalities :) !
    You have fun and keep in touch.

    Cheers,
    Shekhar
  • Jessica

    hey natalie,

    how are you sounds like your going through a rough time. feel free to drop me a email any time
  • Jessica

    Hey Natalie,

    Well thanks but it took me a while to get to this point. Actually attending the Bald Girls Lunch really helped me. Meeting other women in the area made me feel like i had other to help me through it.

    I actually have the same hair loss as you it's called Ophaisis pattern i can grow a awesome mohawk but that's not me.

    I actually am getting a vacuum wig in the next few weeks it's due in next week if it's on time. I am getting it from Karne P. I can't wait/

    Well I have gone through this 2 times.The first time I let my hair control me and was so sad and depressed all the time. I shaved it off and started the injections and my hair grew back. I started falling out again but i wasn't going to sit and watch it everyday come out so off it went and it was a release for me.
    My mom was upset i shaved it, but when you have hardly any hair and you have to worry about it showing and how your going to cover it. I'd just rather wear a wig.
    I got my wig from Rene of Paris it was under a 100 dollars and now i get my vacuum Yeah!!!
  • Jessica

    Hi again,
    No mine isn't a lace wig just a reg synthetic one. I love it!

    It's very easy just plop it on and go. My daughters think it's so funny.
    I think we will really like the vacuum wig though casue it looks so real. Have you looked at her site and the other women on this site with them.
    Are you coming out here to meet her?
    I will post pic's when i get mine in and cut and ready to wear.
    I know mom's are really hard to deal with. My mom still thinks my hair is coming back and it will be normal again. It may but for right now it's not. The shedding has slowed down but no regrowth. And i told her just becasue i shave it if it's going to grow back it will shaving wont stop it. All i have to do is not wear my vacuum for a few day and see what grows in.
    you should take a look at Mandy from Chicago her hair grew back after a year.

    I say never give up hope but don't let if control what you do. I'd rather have beautiful hair then try to cover up the blad areas with what i do have.

    jess
  • Heather L

    Natalie,

    Sounds like we have tried similar things! I've been to several holistic docs and tried many supplements and homeopathic remedies. And it does get expensive!! I ended up feeling like I got more from acupuncture- so I probably did the most of that.

    I have not tried a no gluten diet- It's been recommended. That is just so hard! Who knew that gluten is in everything I love! go figure! But I think I might have to buckle up and try that!

    Thanks for the compliment on Bentley! your dog sounds cute too- they are really are the best aren't they? Love you no matter what! It's kind of both funny and sad but often I find long blonde hairs stick to the bottom on Bentley's paws! oh well- he does not complain!

    how's the training for the marathon going? I find that so impressive!! Here in my neighborhood there is a kayak group- will start in May. But it is leisure!...more paddling around laughing and sharing a drink. ( I little more my speed) :)

    Have a good evening,
    Heather
  • Jenn

    Natalie, Your comments are so kind. Thanks for finding me. I love surrounding myself (even virtually) with people who choose to have and share positive energy. My family including parents and 2 siblings were there when I shaved my head and they were wonderful. Let us know how it goes.
  • hammad

    hiiieee...
    thanx fr addin me !!!
    m from Chandigarh ( capital of Punjab ) .. gud to knw dat ur boyfrn is so suppotive....this is so cool.... yupp.... India is beautiful.... hey ...Tata consultancy is gud for job.....my bro also works there in banglore.... i got to seee small bald spots 5 yrs back.... i took homeopathic treatment... got my hairs back...2 yrs back again 2 small patches appeared...again treatment...again got my hair back....now agin 2 spots hav appeared.....treatment is goin on...hopefull fr results... hey u write gud hindi.... u and ur boyfrn look so cute in ur album... bye tc cr