Gill

Female

United Kingdom

Profile Information:

Relationship Status:
Single
About Me:
I have had Alopecia Universalis since 2003. Mostly I am fine about it, but just occasionally, somebody stares or says something and it gets to me, but then I expect we are all like that.

I am single again after a long marriage. Being single has changed my outlook on life, I feel for the first time in years I am myself, but miss being in a relationship.

I know nobody who has alopecia, but suspect there are people in my area who are, but always wear a hair piece. My wig used to go on when the weather got chilly, and went back in the box asap ! but now I very rarely wear a wig. I felt that I was wearing the wig for other people and their feelings, and not for me, so now people see I’m bald and they are the ones who have to deal with it. I also feel at this moment in time, that my alopecia has a lot to answer for, but that changes depending on how my life is lol !

Its just nice to chat to people on the net, who understands and have the same feelings.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Choose one

Comment Wall:

  • LeslieAnn Butler

    Hi Gill,
    I have au, too -- I've had it for about 20 years! I don't go out without a wig, but now that my book is out, everyone will know about my condition...that's fine!
    Just thought I would stop by and say hello!
    LeslieAnn

    Jun 22, 2008

  • Cheryl, Co-founder

    Hi Gill, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

    Jun 23, 2008

  • Bald_Man

    Hi Gill

    I saw your profile. I love your attidude to being bald and I agree with it.

    You say that you would like to communicate with people who understand how you feel on the Internet.

    Being a man and having a different type of baldness, I can't claim to have much understanding of how you or any other woman would feel.

    If you wish, I would ba happy to communicate with you and if we communicate well become friends.

    John

    Oct 2, 2008

  • Bald_Man

    Hi Gill

    Thank you for your reply.

    I'm in basic agreement with your comments.
    Some men do try very hard and sometimes go to great expense to cover up hair loss. So they obviously don't find losing their hair pleasant.

    Personally, I love being bald and found the experience of losing my hair very pleasurable indeed.
    I know that most bald men don't find it so pleasurable.

    What I don't like is that generally speaking women find it much harder than men to go bald in public.
    That's not at all fair.

    I'm delighted to see that you don't appear to have much if any difficulty being bald in public.

    I know that you prefer not to wear a wig, but if you had the choice would you like your hair back or have you like me found that being bald has positive aspects.

    Best wishes

    John

    Oct 3, 2008

  • Kate

    HI Gill, How you doing?
    I get most of my scarves from Accesorize - bit expensive but I think that they are worth it!
    I love my hair too, love getting dressed up with different styles! lots of fun!
    Anyway, hope you are well! x

    Oct 5, 2008

  • Kate

    I had problems tying them too for a while. What I find best is if you wear a head lining, just a cotton cap, first then put a scarf over the top. That way you are all nice and cozy inside and the silk scarf will stay in place so you are looking good on the outside! I get my little head caps from http://www.bohemia-fashions.com/ and they are really cheap (£3 or so).
    If I was you I would give it a go cos they are actually really comfy and keep your head warm without having to wear your hair. I wear my hair quite a lot, always to work, as I love my wigs, but when I am doing the shopping on the weekend or just chilling out then I love my scarves! Works out well as I don't get fed up of wearing either and I always like my head to be nice and cozy!
    x

    Oct 5, 2008

  • Beverley

    Hey Gill, thanks for accepting the add. Hope you had a nice weekend.

    Oct 13, 2008

  • Heidi Worman

    Hi Gill, I hope you have seen my post in the Events "UK Event" One of the reasons for the event, is like you state, you don't know anyone with alopecia, well a lot of our clients have said this, so we now have the get together in Milton Keynes. Who did the Original brows if you don't mind me asking, and who did it the second time. What was the remover they used, was it something you had to do and keep on doing?

    If you don't want to say on here no problem, just mail me info@heidiworman.co.uk have a good look around the site it is very good and friendly xx Heidi xx

    Oct 13, 2008

  • Heidi Worman

    Yes I see this all the time, its such a shame... I really do feel for people. The paste is good, but sometimes can cause a little bit of scarring. I am glad that you are please with the brows now.



    Heidi x

    Oct 13, 2008

  • Heidi Worman

    I am glad you enjoyed the day at Milton Keynes. thank you

    Heidi x

    Nov 8, 2008

  • Kate

    Hey there!
    Hows it going? Just saw your photos and thought, wow, you look great with your hair on!
    Hope you are having a happy 2009 so far! x

    Mar 4, 2009

  • Kate

    Hey Gill,
    I love wearing my wigs - I have 3 and I used different ones for different occasions! I have a short light brown bob for work, very easy to look after and it looks smart. I then have an old long blonde one which I have had for about a year and I wear that on the weekend for doing stuff like heading to the pub for drinks or going out for a walk etc. I then have a brand new long blonde one which I wear to go out for dinner and to 'events'. I love it the most, it is so lush!!
    When I am on holiday though I just wear scarves all day and then if I am going out to a nice restaurant I will wear my old blonde one. I find that square scarves are the best as you can then tight them quite tight and tuck the middle bit in. It is quite tricky to get them to stay on while you tie them though, especially when your head is cover in sun tan cream! Give them a go though as I think they look really nice and are great protection from the sun.
    I'm bridesmaid at my sisters wedding soon, so I am looking forward to doing something fancy with my blonde hair - a few clips with diamantes and pearls!
    Hope you are all good and not finding the hair too uncomfortable - you look great!
    x

    Mar 5, 2009