When I was 6, I got a mild case of AA; just a tiny bald spot. Two years later, after another traumatic event took place in my life, it developed into AU. About nine years later, it changed to AT, where it has been for 26 years. I tried the steroid shots and had a biopsy. I have cicatricial alopecia..poor prognosis. Strangely enough, I've had some scalp growth. First it was peach fuzz, then I had long white wirey hairs on both sides of my head, then dark hair grew..I have to trim it to wear a wig. I have body hair, (minus the legs-but who cares about that anyway); I have most facial hair, (including some very charming hairs that insist on growing out of what I'll call a beauty mark, ok, ok, so it's a mole), and I don't have nose hair. I've always worn a synthetic wig. My parents were totally ashamed of me so I dealt with a lot of negativity at home and at school. I was never taken to a specialist or even a dermatologist. My first visit to a derm was sometime in my thirties. I've had a lot of unhealthy relationships but 8 years of therapy have helped me in many ways; including my self esteem-thereby my choices in the relationship dept. were improved. I married a wonderful man in 2006. We do a lot of exciting activities together. I'm really having the time of my life. He is absolutely my soul mate. And I met him online!!! Looking forward to many supportive exchanges on this great site.
Hi Lori, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
have fun on your vacation! anything with a lake and moose must be very pretty! hope to hear all about it. also, you should post some photos! it is so fun to put a face with the name.
Hi Lori,
How are you doing? I've had aa for about 30 years. Are you okay with it? I wrote a book, just out, called "If Your Hair Falls Out, Keep Dancing!" That's my philosophy!
LeslieAnn
Hi Lori! I love the photos! Your face is as lovely, thoughtful and kind as I imagined it to be. You are such a beautiful person, inside and out. It looks like you and your husband have some wonderful times together. I was just up riding horses with my sister in Idaho this weekend, so I really enjoyed seeing you on those beautiful beasts! I am so glad to continue getting to know you. I have really appreciated your friendship.
Hi Lori,
I'm just checking in to see if you're still interested in the get-together? I'm pretty sure it is going to be the weekend of September 13th & 14th. There's a tattoo convention that weekend that I would just love to see, so, I'm trying to coordinate the "Bald Ladies Do Boston" (as my friend Joyce has taken to calling it) and the tattoo convention into one weekend. We are even thinking about a Limo for the evening :-) Let me know what you think.
Love and Hugs,
Dotty
Hi Lori,
Looks like September 13th it is. We are throwing out ideas on places. I have had suggestions of The Cheesecake factory, Vinny T's (Italian), and Firefly (BBQ). I was thinking around 11 - 12ish for brunch or lunch. Let me know your thoughts. I'm really getting very excited. I can't wait to meet everyone.
Love and Hugs,
Dotty
Hi Lori,
Boston is the city we are planning to meet in. We are just finalizing the place and time. So far there are 4 definites and of course hubby's and children if you like. There are another 4 possibles and 2 of them are Lori's...lol. Any questions, feel free to email me at hottie_dotty@hotmail.com.
Love and Hugs,
Dotty
HI Lori,
I'm trying to get a head count for Saturday. Can you please let me know for sure if you are planning to attend. It's the Cheesecake factory at 11 a.m. Thanx a bunch. I hope you can make it. I can't wait to meet everyone. I have a little something for everyone :-) Hope to see you there.
Love and Hugs,
Dotty
hi lori did you have a pic of jake up? didn't see it - sheis 13 the scallywag:) she is very sweet her name is ophelia my boyfriend cals her cleo and witchy poo LOL
Hi Lori! Thanks so much for your message. It was great to hear from you. I haven't been on here forever but need to get back involved. I'm loving your photos--you look so pretty at the falls. Take care and we'll keep in touch!
Hi Lori,
How's things my friend? I wanted to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it we missed you at the last one!!! I know it will be great!!! Miss you much. Say hi to the family. Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Dotty
Cheryl, Co-founder
Jun 23, 2008
Shannon
Jun 24, 2008
Dawn
Jun 25, 2008
Shannon
Jun 25, 2008
LeslieAnn Butler
How are you doing? I've had aa for about 30 years. Are you okay with it? I wrote a book, just out, called "If Your Hair Falls Out, Keep Dancing!" That's my philosophy!
LeslieAnn
Jun 30, 2008
LeslieAnn Butler
Let me know how you like it, okay?
Hugs!
Jul 6, 2008
Shannon
Jul 7, 2008
Dotty
I'm just checking in to see if you're still interested in the get-together? I'm pretty sure it is going to be the weekend of September 13th & 14th. There's a tattoo convention that weekend that I would just love to see, so, I'm trying to coordinate the "Bald Ladies Do Boston" (as my friend Joyce has taken to calling it) and the tattoo convention into one weekend. We are even thinking about a Limo for the evening :-) Let me know what you think.
Love and Hugs,
Dotty
Aug 15, 2008
carl
Aug 15, 2008
Dotty
Looks like September 13th it is. We are throwing out ideas on places. I have had suggestions of The Cheesecake factory, Vinny T's (Italian), and Firefly (BBQ). I was thinking around 11 - 12ish for brunch or lunch. Let me know your thoughts. I'm really getting very excited. I can't wait to meet everyone.
Love and Hugs,
Dotty
Aug 27, 2008
Dotty
Boston is the city we are planning to meet in. We are just finalizing the place and time. So far there are 4 definites and of course hubby's and children if you like. There are another 4 possibles and 2 of them are Lori's...lol. Any questions, feel free to email me at hottie_dotty@hotmail.com.
Love and Hugs,
Dotty
Aug 28, 2008
Dotty
I'm trying to get a head count for Saturday. Can you please let me know for sure if you are planning to attend. It's the Cheesecake factory at 11 a.m. Thanx a bunch. I hope you can make it. I can't wait to meet everyone. I have a little something for everyone :-) Hope to see you there.
Love and Hugs,
Dotty
Sep 8, 2008
Amber Lounder
Oct 2, 2008
Jennifer
Dec 22, 2008
dollydreadful
Jan 16, 2009
Maygen
Jan 20, 2009
dollydreadful
Jan 21, 2009
Shannon
Jan 26, 2009
Dotty
How's things my friend? I wanted to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it we missed you at the last one!!! I know it will be great!!! Miss you much. Say hi to the family. Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Dotty
Apr 26, 2009