6 years ago since I first lost my hair and its now april 2014. I had a full head after 3yrs and then its been in and out like mad, its just now growing and falling out which is so frustrating and confusing. I have lost a lot this time and was also diagnosed with a disease called endometriosis which I believe is what could have made my hair loss happen or worse. I still don't know how to cope with alopecia and just now wearing a hair piece while waiting on a wig for safety in case I lose more hair. Took a step back from this group as I was feeling positive with my hair but feel like im back to square one. Needing some support around me to help me accept whats going on.
hello! Yes i am new to this to! I was looking for somewhere to find support and found this site and I didn't realise how many people actually had alopecia. I had my first wig fitted at the end of april, I felt alot more confident when wearing a wig. But some days i wear hats or head scarf just depends on the way im feeling!
I hope you are well and hope to hear from you
kayleigh
Yes i am the same, everyone keeps telling im dealing with it really well, but i do miss silly things we take for granted, such as just washing your hair! I have just learnt how to draw eyebrows on and they look really natural, i couldnt believe that! I have days which i feel flat but other days when im ok!
The wig im wearing in photo is actually my friends i borrowed for a night out whilst i was waiting for mine to come!
Have you tried any wigs yet?
I currently have to syntheitic wigs one short for work and one long for everyday, as my hair was long before it fell out. I am looking at getting a human hair wig as my long one is started to look messy, and would love to be able to style my hair again! Iv just been looking at those freedom wigs, as i think they would be good to try. I am lookin at hair solutions for holiday as im goin to turkey and dont want to be too hot or to burn!
Really glad you found the site. I am sure it will be more helpful than you could imagine! There are some really amazing women (and men, but because hairlessness is more common for men, I admire the women even more!) on here who did plenty to inspire me to confront this problem recently - and actually other problems too, when they come along - without being defeatist. They prove that something like hair loss does not mean you can't be confident, happy, sexy, loved, and fulfilled. So, with such excellent role models, that gives everyone something worthwhile to aim for and to overcome the problem. I think it's great. I hope it gives you the confidence to talk about it with friends and family and anyone else that knows you and cares about you, and to define a new image which allows you to move on in a positive way. The saving grace which I have to remind myself is that hair is hair is hair and at the end of the day it ain't physically painful and I guess as a girl, scarfs and wigs galore are the way to go forward if you don't want to go boldly and baldly out to the schopping centre for example! Courage itself is an attractice quality isn't it. So perhaps if hair loss leads to courage that cancels out? Plus you can get a really cool tattoo like a butterfly or something!
xxx.
Aaron.
Its a wig made for your own head shape and you can do anything go swimming with it on go to theme parks! And its human hair... not sure how much they cost though!
heres the link for website
http://freedomwigs.co.nz
Hey Lynne
Welcome to AW.
I lost all my hair aged 17 and it all left in about 2 weeks. I felt such a freak and alone. This type of resource hadn't been invented at the time so I am so glad you can reap the benefits of connecting with others at this difficult time for you. I used to wear wigs but after 15 years, pretty fed up with it. I 'came out' about 5 years ago and cannot believe the freedom and peace I now have. I have just got 2 new wigs (my prescription).
You must live near me. In Scotland you are entitled to 4 wigs per year for £5 prescription each one. Fantastic. Make sure you get what you are entitled to.
Keep in touch. I attend meet ups in Glasgow, but would be keen to get something together in Edin & Lothians. Take care
I'm sure you are struggling with this whole alopecia thing. I never heard of the sun exposure thing. I'm gonna have to look in to that.
Are there any support groups in your area that you know of?
Hey Lynne... nice to meet you. It is very refreshing to know that there are other poeple out there like me and that I have people to go do and get advice from. When the first clump fell out I was very emotional and I cried. Mostly because I didnt know what was wrong with me. The first clump fell out on mothers day of this year and yesterday I made the decision to shave my head so that I didnt have to deal with all the strands of hair in the way when tied my bandana. It is very nice to meet you. Thank you for welcoming me.
yes i am feeling very well... although i havent been outside of the house yet since i shaved my head last night. i had a friend over tho and she got to shave me and then see me walk around "naked" lol. I refuse to wear a wig cuz I know how itchy, uncomfortable and heavy they can be. I am much more comfortable with my bandanas. I am getting ready to go to the store so this is my first venture outside the house since the shave. Ill let you know how that goes.
Hi Lynn,
I feel the same way too. its been 8 month sens I have A.A and my hairs regrowing now I'm hoping it stays on.. but then again I'm scared don't know what to expected with A.A..saw your pics and the wig looks great on you I'm still wearing scarfs, hats feel good with them.
Nitza
Thanks for adding me as a friend! It must have been a big shock for you to have your hair fall out that quickly I hope you're coping with it all ok. Mine was much more gradual over 13 years but I've now shaved it all off which felt really good and I now wear a wig. I was dreading wearing a wig because I thought it would look awful but it looks better than my real hair so I'm very pleased with it luckily!
Hope you're having a great weekend.
Laura
Roger
Roger.
May 14, 2009
Kayleigh George
I hope you are well and hope to hear from you
kayleigh
May 14, 2009
Kayleigh George
The wig im wearing in photo is actually my friends i borrowed for a night out whilst i was waiting for mine to come!
Have you tried any wigs yet?
May 14, 2009
Kayleigh George
May 14, 2009
Nitza
Welcome to Alopecia World hope you have a nice day
Nitza
May 14, 2009
Aaron
Really glad you found the site. I am sure it will be more helpful than you could imagine! There are some really amazing women (and men, but because hairlessness is more common for men, I admire the women even more!) on here who did plenty to inspire me to confront this problem recently - and actually other problems too, when they come along - without being defeatist. They prove that something like hair loss does not mean you can't be confident, happy, sexy, loved, and fulfilled. So, with such excellent role models, that gives everyone something worthwhile to aim for and to overcome the problem. I think it's great. I hope it gives you the confidence to talk about it with friends and family and anyone else that knows you and cares about you, and to define a new image which allows you to move on in a positive way. The saving grace which I have to remind myself is that hair is hair is hair and at the end of the day it ain't physically painful and I guess as a girl, scarfs and wigs galore are the way to go forward if you don't want to go boldly and baldly out to the schopping centre for example! Courage itself is an attractice quality isn't it. So perhaps if hair loss leads to courage that cancels out? Plus you can get a really cool tattoo like a butterfly or something!
xxx.
Aaron.
May 14, 2009
Cheryl, Co-founder
May 14, 2009
Kayleigh George
heres the link for website
http://freedomwigs.co.nz
May 15, 2009
Maria Fransson
May 15, 2009
Kayleigh George
May 15, 2009
JeffreySF
Welcome to Alopecia World.
Jeffrey
May 15, 2009
Sharan
Welcome to AW.
I lost all my hair aged 17 and it all left in about 2 weeks. I felt such a freak and alone. This type of resource hadn't been invented at the time so I am so glad you can reap the benefits of connecting with others at this difficult time for you. I used to wear wigs but after 15 years, pretty fed up with it. I 'came out' about 5 years ago and cannot believe the freedom and peace I now have. I have just got 2 new wigs (my prescription).
You must live near me. In Scotland you are entitled to 4 wigs per year for £5 prescription each one. Fantastic. Make sure you get what you are entitled to.
Keep in touch. I attend meet ups in Glasgow, but would be keen to get something together in Edin & Lothians. Take care
May 15, 2009
JeffreySF
You're welcome. This is a great place with amazing people.
How are you coping? I hope okay.
Jeffrey
May 15, 2009
JeffreySF
I'm sure you are struggling with this whole alopecia thing. I never heard of the sun exposure thing. I'm gonna have to look in to that.
Are there any support groups in your area that you know of?
Hang in there.
Jeffrey
May 15, 2009
Kristen Viveros
May 15, 2009
Kristen Viveros
May 15, 2009
JeffreySF
I used to have some friends near Glasgow, a little village called Eaglesham.
Jeffrey
May 15, 2009
Nitza
I feel the same way too. its been 8 month sens I have A.A and my hairs regrowing now I'm hoping it stays on.. but then again I'm scared don't know what to expected with A.A..saw your pics and the wig looks great on you I'm still wearing scarfs, hats feel good with them.
Nitza
May 16, 2009
Laura
Thanks for adding me as a friend! It must have been a big shock for you to have your hair fall out that quickly I hope you're coping with it all ok. Mine was much more gradual over 13 years but I've now shaved it all off which felt really good and I now wear a wig. I was dreading wearing a wig because I thought it would look awful but it looks better than my real hair so I'm very pleased with it luckily!
Hope you're having a great weekend.
Laura
May 16, 2009
Sara
May 16, 2009