Hi Christel,
I just wanted to say hello!
I have had au for 20 years.
I understand completely about kids and how hard it is. As they get older it can be harder.
How is she today?
LeslieAnn

Hi Christel
That's a cute picture of your daughter (I'm assuming?). Growing up with alopecia can be difficult but that's why were all here on this website together, for support. All that matters is that you are there to love and support her and accept her for who she is. Welcome! :)

Hi Christel,

I am so glad that you are on this site. It has helped me so much in terms of knowing that I am not alone on this quest and I know that it will help you. Have you shown Jennifer her page yet? I am going to introduce Cindy to you because she had asked me quite a few times about how you are going. Post more pics of Jennifer and tell her from me that I think she still looks fantastic in her wig.

Hi Chrisetel, Welcome to the board..Karen asked me to write you. My daughter Samantha is 6 and has total hair loss. She is currently doing SADBE and we have not seen any real results yet, but we feel like we are starting to see white hairs popping up now and hope to see color soon. We have had a set back. Sam's whole body developed a rash and the doctor says it is from the meds and that her whole body is reacting. After 3 weeks we started up again this weekend with a smaller dose. This morning it looks like she could be getting a rash again, but I am holding my breathe it is not happening..We want to see this work so bad, as it is our last resort at this point..

My daughter has a very good outlook on life and has accepted her condition. She has yet to cry over her hair loss and seems fine with it. I on the other hand, still cry a lot..I guess time will tell...
How is your daughter doing? Cindy

Hi Cristel,
That is great about your daughter! You might want to get my book -- it has some good info and advice for girls as well as parents...some fun, uplifting things, too.
See my page; you can read more about it there. If you want to get it, there's a link at the bottom and you can buy it at a 30% discount. Many hugs to you and your daughter!

Hi Christel
I've only gone without my wig for the last 7 years. My hair was terribly important in high school, the maturity level is still not great but my friends knew and supported me. It's more important to have one best friend than 10 okay friends - she needs to remember that. As for the boys, I'm sure she'll be fine. There's a very large percentage of people with alopecia that get married and have kids and lead very normal lives - it's all in the attitude. She'll meet boys that like her that she won't like and boys that she likes that won't like her and well, that's life! Just be a shoulder for her to cry on at those times and you need to remember that sometimes teens just want to vent, they don't always need advise or an answer to their problems. Good luck, I'm here if you need me! :)

Hi there,

has the site help you in anyway?

I am happy that we are finding a means of great support that we can practically go on everyday. I am on this site almost everyday because I feel as if it keeps me thinking straight and grounded. Greg will no doubt love it and maybe he should join as well. I have been trying to get Quan to join but to him...Amber's condition is just really nothing....he keeps telling that it is just hair and move on....

Hi Christel, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

Hi Christel,Ilive in Bendigo Victoria and my daughter Cassie is the one with Alopecia she turned 13 yesterday, and she has been totally bald since finishing her first treatment of cortisone when her hair grew back but only in patches then fell out again! we have been through two wigs so far not real hair, I find they dry so quickly and she hasn't been comfortable participating in sport activities at school, in case it falls off. I desperately need to get her a suction wig it sounds great,are they expensive? how often do you wash it ?
We found her two wigs at a place in Melbourne called Creative Wigs, they were very helpful both wigs cost around $250.00 each. I havent gone with the injections re treatment as the specialist felt they were a little harsh for a young girl. Cassie also had very bad exema all over her head and acne on her face. The exema cleared up with the cortisone and the acne we have been using Pro-ctive costly but effective her skin is really good now, I really don't old much hope of her hair growing back.love to hear back from you regarding the wig, and hope your going well. Regards Di

Hi Christel,

Welcome to Aloepcia World. I have been living with this crazy condition for most of my life. While it can be trying it is possible to make it through. I also have an 8 year old daughter who was diagnosed with Alopecia about 7 months ago. Her spots have grown back in with treatments within about 4 months. i think I tried everything I could think of..

Your daughter will be fine as long as she has a strong support system like you

Hi Christel, Samantha is doing SADBE which is a bit different from the DCP..She has handled her hair loss fabulously. We really have not told many people about her AA. Samantha started the school year with hair and made a smooth transistion to a wig. However, she did let her class know about it since she was so excited. But, truthfully, I have not told the parents in her class and I don't know what they know or what Sam says when not with me. The kids in her class this year have been awesome and have never said a hurtful thing to her. They always tell her they like her even though she has no hair. Samantha always has her head covered, but now that it is warm here she likes to take her wig or headbands off when she is home. She loves her wig. We are waiting any day now for her new hair to arrive from the hair club for men. She will finally have a human hair wig that will be styled like her hair was. This wig supposedly is designed to be like having your own hair and not feel the need to take it off. I hope we get it before our trip next weekend and that she will just want to leave it on. I also have headbands with hair sewn into them that she wears, like the pic of her in the black headband...

Is your daughter having any regrowth now with the DCP treatments since losing again. I imagine it was hard for her to have to go through that again. How does she cope with it?

Nice to finally meet you..karen always speaks of you..

Cindy

thank you! I am glad I can be a role model for young girls. Your daughter is a beauty and I am sure she will go far. x

Hi christel,

Thank you! The kids at her school did not know exactly what was going on but they did notice the spot. The rest I was able to cover. She goes to a small school so they were very good and did not tease her. she basically told them she did not want to talk about it because it was a long story. I think it was harder because i knew what could happen and what was to be expected. Well she has been blessed and her hair came back within a matter of months in her initial spot and has stopped shedding. The treatments worked for her and I am just really thankful.

Hi Christel,

Amber says that to me and her aunties all the time but I just treat it like something that is not really important so that she can sense that it is a irrelevance to me. I am hoping that she can learn from that and not place too much emphasis on hair as she grows up.
Jen's got a great wig and it suits her and as you can see from a lot of people on this site, they look fantastic. Have she seen the people on the site yet? I think she is lot stronger than you think she is and I know that she will get stronger and stronger over time. Strength comes with alopecia and now she just needs to experience all this to become a beautiful adult.

Hello again Christel thanks for the info re the wonderful suction wig you found for your daughter, its amazing you know, I work in a primary school and today whilst flicking through magazines with a grade one student I work with as an aide, I came across an article in the womans day 2003 issue about a woman called Martine Richards who has lost her hair twice and now has set up her own business called FREEDOM WIGS..... there was a phone number 0419534695 and a website www.freedomwigs.com.au it seems like she is based in NSW going by the web site. I'm going to try the number tomorrow, otherwise we'll be taking a trip to Melbourne to the place you recommend these holidays hopefully its an expense that we will just have to budget for, as anything to aid in Cassies self esteem at this stage will be a big plus. the $1000 government rebate sounds good!!! Catch you later Regards Di

You daughter sounds so confident that is so great. My daughter is 6 and wow they sound so much alike Olivia has no hair at all as well she is very confident and wears wigs at school has lots of friends but now summer is here she would rather go without which we say sure if she feels like it why not. There are somedays she says she wishes she was like everyone else and had hair but the next day she says she likes being bald. I know what you mean about being skeptical that her hair will return we feel the same way as well but who knows maybe someday they will find a cure.
take care, stacey

Hi Christel..Popping by to say hi and see how Jennifer is doing with the DCP. If I recall she regrew and lost again. Sam is doing SADBE and after several months we are starting to see some hair coming in. We go to the doctor later this month and hope to see lots more by then. Sam is a trooper, but now that she sees the hair she is getting excited. How has your daughter been able to cope with her AA in relation to peer relationships as she has gotten older? Sam wears a wig to school and headbands with hair sewn in during the summer. This is our first summer with no hair. We are starting to make our way. I do have to say we let her go bald at times during our recent trip and I did not like the thoughts that people had. We keep her head covered in our area. I am private about her condition, but her close friends know. I don't feel that my daughter's medical issue is the towns business. I live in a small town of busy bodies and I don't want the gossip. If we get to a point that we need to share then I will, but for now we are doing our thing, going about a life..Cindy

Hi Christel,

Amber is doing great and has now have almost total regrowth. We are happy but at the same time...I am not exactly celebrating as I really don't know what is going to happen around the corner.

I still tell her straight out about what could happen so that she is prepared no what matter happens.

To be honest, the only thing that is keeping me sane is the prospect of knowing that a wig like Jennifers exist.

Are you coming down in August?

Hello! Thanks for the comment! This year at school I didnt wear a wig. I just used dark eyeshadow to cover the spots and always wore my hair down. I only got teased a few times because I kept it very private. My teachers knew which was a big help because my seat was always at the back of the room where no one could look at my head which was perfect and made me feel better. This year I am going to wear a wig though because my spots are getting bigger and harder to hide. I love Keith Urban and Rascal Flatts too! Im actually going to see Taylor Swift and Rascal Flatts in September! Its my third time seeing Rascal Flatts =D I'm a huge fan of theirs. Country music is amazing<3 It has helped me so much. Thats so cool that you're from Australia! I live in New England. Keep in touch! Send Jennifer my hope and love =]

love and hugs
Caroline

I think I am getting on the rollercoaster again. Amber is showing signs that her hair is going to shed again. Here I go....wish me luck

Hi Christel,

Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back

Adrienne

Hi Christel,
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.

Hi Christel

No I do'nt know of any perth groups I am loosing my hair too I would love to be friends with you love Narelle

Hi Christel,

How are things going on your side of the world. Thank you so so much for the Christmas card. Nice to know that you were thinking about us.

How is Jennifer doing. Any news on the treatment.

Hi Christel! :)
I am 15 years old and Ive had alopecia since I was 12. Now I have Universalis alopecia so I dont have any hair at all. Its pretty difficult on me but I know that hair isnt everything. I dont want it to change anything in my life so I just keep living even tho it is hard sometimes. I know it sounds cheezy, but life is like a rollercoaster, there are ups and there are downs. Even thought the downs can make you fall pretty low, and make you lose hope, dont forget there will always be high. You just have to wait for it and keep living.

I hope Jennifer will keep her confidance because it seems like she doing pretty good :)

Hows Australia?? Thats completely at the other end of the world!