Anastasia

Female

Omaha, NE

United States

Profile Information:

Relationship Status:
Single
About Me:
My name is Anastasia. I have had alopecia almost all of my life. I lost all of my hair for the first time when I was eight. I have totally allowed alopecia to control my life. The fear of rejection and shame have always been determining factors in decisions I've made. I have never met anyone else with alopecia. I have always felt so alone. Finally I decided to reach out to other people that can relate to me and understand my feelings.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • lynne

    hello im lynne, i read ur story and it really touched my heart, i do really feel for u, and i hope that u can get the help u nd on this site,
    im new here to, ive only just lost my hair so still tryin to deal with it myself, i joined here about 2days ago and people have bn amazin, u can speak to peole who understand and talk about how u feel, and these people knew wat u mean, i hope we can become friends and get to know each other, and also help each other throw difficult times, take care, catch up sn, xx
  • LeslieAnn Butler

    Hello and welcome, Anastasia!
    Don't feel bad about not wanting people to see you without a wig. I still feel more comfortable with hair than not. There's nothing wrong with that.
    I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
    LeslieAnn
  • JeffreySF

    Hi Anastasia,

    Happy Birthday and Welcome to Alopecia World.
    Let the healing begin!!!

    Jeffrey
  • JeffreySF

    Hi Anastasia,

    I really feel for you. I cant believe the amount of people who have let alopecia control their lives for so long.
    This is a great place for support and personal growth as well as whatever else you want to make it.
    Keep reaching out and many will take your hand down this new path.

    Hugz,

    Jeffrey
  • lynne

    thank u, that was nice,
    yeah we'll keep in touch, hope ur well, speak sn x
  • Linda

    Hi Anastasia, welcome to alopeciaworld, come join us on Sisterhood of Women Who Shaved Their Heads, it's a group in the group section. We have a National Bald Out Day scheduled for July 19, 2009, one of the members, Mary, put it together and Thea of Bald Women Do Lunch, has tshirts on her site with the insigna and date on them. Come join us, we'd be glad to have you! Support is here...
  • Linda

    LOL@naming wigs, I used to do the same, I had Tina, Sasha, Lola, etc, lol, we do what we need to do to maintain sanity. Family can be rude when it comes to baldness, once a family member called me a bald eagle at a family function, my brothers quickly handled him, but the damage was done. For the rest of the function, everyone tiptoed around me, finally I left. Hurt feelings and all. Now that I've accepted who I am and love me for me, life is very very good. Stay blessed and beautiful!
  • Jackie

    Scrambling for the wig whenever the doorbell rings. Hahah! I have to laugh at that...How silly my kids must think I am when I do that..I've been married for 6 years and I still run fot the wig when I hear my husband's keys at the door...what a foolish thing to do...
  • Jackie

    Oh yeah...I got in trouble for that once...that girl new for sure that I was home!!
  • lynne

    hey was gd to hear from u, ive had quite an emotional week, i returned bak to my work few days ago, but its bn harder than i thot, couple of them havin a joke which went to far and a customer bein quite insensitive, so hopefully that will make me stronger but my confidence is pritty low the now, my boss has bn great tho, and ive just become a great auntie so that cheered me up, bn to see him 2nite, he's gorgeous,
    anyway hope ur well, speak sn x
  • Kristen Viveros

    hey anastasia, why are you having such a hard time dealing? if you dont mind me asking.
  • Kristen Viveros

    You had a best friend of 10 years and he didnt know you had alopecia? I didnt have to deal with this as a child but I did have a best friend in junior high, whom I am still friends with, who has alopecia universalis. I was the one who watched her back in school. I was the one who beat up kids who snatched her wig off and then paid for it by staying in in-school suspension all the time. I always got sent home from school for fighting, but they never cared that I was only sticking up for my friend who was to shy to stick up for herself. I was made fun of too... but then it was for my last name, which is Sizemore. Im sure you can imagine. So I got to a point in my life where I learned that what people think or say about me has no physical effect on my life. I still continue to be the same person no matter what people say or how they laugh at me. I was sexually abused as a child and physically abused by my first husband. So now I dont let anyone walk on me. I hold my head high and I know that by the grace of God, NO ONE is better than me! As I am no better than anyone else. People laugh at or are scared of what they cant understand. So I dont wear wigs because I figure, this is me, I am bald. And if someone wants to ask why I am bald I will tell them. If they make fun of me, I will make them feel bad by telling them exactly what Alopecia Areata is.
    Hold your head high. This is your life now. It doesnt matter what people think of you. Your hair didnt make you and loosing your hair didnt break you. If someone cant take you for who you really are, under the wig, then they dont deserve you. You are a beautiful person inside and out. Spend less time on what people might think and more time on feeling free. Life is to short to hide. Let you light shine girl!
    Besos.
  • Ethan Thomas

    Wow! Reduced them to tears? What did you say... I got to start doin that instead of trying to ignore them.