i noticed my hair thinning about 4 months ago. then came the bald spots and huge chunks of hair and i went to the doctor got blood tests and found nothing wrong so she said i had alopecia areata.i went through the biggest emotional rollercoaster of my life lost all my hair now its growing back and im ok with alopecia and ok with me being the way i am but now i am loosing my hair again
Hi Nikki! I'm just joining this site myself and saw your profile! Wow, I can't imagine dealing with this at the age you are! If it helps, it does get easier as a little more time goes on! Stick tight to the true friends you have, find wigs or whatever makes you the most comfortable and, in the end, I'm sure you'll be stronger and more confident than your peers in many ways!
Hello and welcome, Nikki!
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Having personally experienced Alopecia... you would be an ideal person to educate and help others with hair loss. Had I not had my own experience with Alopecia I would never have the insight that I have today to truly be able to help others.
Hi Nikki,
How are you. I have a daughter with AA. I am teaching her to be strong no matter what. You seem to be dealing with AA very well for your age. Were you recently diagnosed?
Tracy
Hi Nikki - that's cool that you're a drummer, too! Do you play a drum set (drum kit), or hand drums? I think bass looks like a lot of fun - good luck with that. Did you see the videos on YouTube of me drumming? If not, search on YT for "dromia stoynoff", and you'll find 7 videos. What I play is very different music.
Hi Nikki, I am part of the support group in Minnesota and wondered if you and your family are interested in being on our email list for meetings, events. etc. We are having our annual picnic this coming Saturday (7/11) at a goat farm and you and your family/friends are welcome to join us. We have a great time! Let me know if you or your parents have any Q's. Heidi ...
Great! Go ahead and email me at hodmark@comcast.net and I'll send you the picnic info. You will also be added to the email list. Your parents can be added too if they would like. Heidi ...
I painted these. Painting is one of my favorite mediums to express myself. I've also done some scultping and printmaking. I'm working on some new paintings, and when they're done, i will post them on the site.
I enjoyed the pics on your page, you have a gorgeous family :-)
Hi Nikki, How's it going. I was wondering how the experiment is going? has the idea worked with your bandana's, I hope so. Were getting ready to go to the beach for a few days next week so we have been doing some beach thinking. Lot's of sunblock & bandana's. Take Care & if you have some ideas for me let me know.
lynne
how r u 2day, well i hope ur doin gd, speak sn x
May 27, 2009
Amanda Reitmeier
May 27, 2009
Cheryl, Co-founder
May 29, 2009
LeslieAnn Butler
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
May 29, 2009
JeffreySF
Welcome to Alopecia World.
jeffrey
Jun 1, 2009
Brittany
thanks for the comment!!=]
xoxo
Brittany
Jun 7, 2009
Joseph Paris
Jun 12, 2009
Joshua
Jun 13, 2009
Tracy and Amanda
How are you. I have a daughter with AA. I am teaching her to be strong no matter what. You seem to be dealing with AA very well for your age. Were you recently diagnosed?
Tracy
Jun 25, 2009
Kimberley
thankyou for the add! be strong and keep smiling! Your beautyfull xx
Jun 28, 2009
Angie W.
Jul 1, 2009
Mary
Jul 1, 2009
Pamela Rosse
Jul 3, 2009
Heidi
Jul 5, 2009
Heidi
Jul 6, 2009
Cheryl
thank you for the complement!
I painted these. Painting is one of my favorite mediums to express myself. I've also done some scultping and printmaking. I'm working on some new paintings, and when they're done, i will post them on the site.
I enjoyed the pics on your page, you have a gorgeous family :-)
Jul 7, 2009
Pamela Rosse
Jul 8, 2009
cody
Jul 11, 2009