Hello and welcome, Sara! How are you and your son today?

I know. Alopecia is so unpredictable. And frustrating!
You and your boy will find a lot of support here! I wish this resource was availabe when I was trying to figure out everything.

Hi Sara, thanks for the friend request. Welcome to A World. My daughter Samantha just turned 7 and has been living with AA since May 07. She is a strong willed gal and has handled her hair loss exceptionally. She is going through regrowth right now and we are over joyed. I look forward to getting to know you. Where are you from and how is your son coping?

Sara, I think we corresponded on the yahoo group and I sent you here? As you can see you and your son and family are not alone. We never heard the word Alopeica until my daughter was diagnosed with it. I live in Ma and there are no groups here. However, through the support of CAP I am starting a Mass. CAP group in my area next month. Also, through this website I have met adults and other families living with AA and helped to organize a lunch and we have about 15 families whether adults or kids living with AA. There are lot of things you can do and it all takes time. It has taken me 2 yrs. I suggest contacting NAAF and you may find some local adults or familes and contact CAP. Also, these organization can help supply you with tools to educate you son's class if this is something you feel you need to do. I have not done so..Please write anytime..Cindy

hey my name is myranda how are things

Are you feeling better Sara?

Sara, that cat is adorable..I am going to show Samantha the pictures later. What did you name the cat?

william is so cute

YOU SHOULDNT KEEP HIM FROM SCHOOL ITS HARD AT FIRST BUT THEN EVERYONE GETS USED TO HIM BEING BALD MY SON HAD A HARD TIME WHEN HE FIRST WENT TO HIS SCHOOL BECAUSE HE HAD PATCHES AND IT LOOKED BAD BUT HE WORE HIS HAT AND NOW HE HAS NO HAIR EYEBROWS EYELASHES AND THE KIDS ARE USED TO HIM LIKE THAT IF YOU NEED TO INTERVENE AT SCHOOL DO SO AND ECPLAIN TO THE KIDS THAT HE DOESNT GROW HAIR THATS ALL ENSURE CONFIDENCE IN HIM TELL HIM HE IS HANDSOME AND THE OTHER KIDS ARE JEALOUS OF HIS GORGEOUS HEAD IT WORKS I CAN GIVE YOU MY NUMBER AND YOU CAN HAVE YOUR SON CALL MINE AND THEY CAN TALK

wow...you and your Devon Rex are adorable.I had a Smokey dark grey Devon Rex for a day, she was so beautiful.However, I got such a bad Asthma attack.
Cats without hair don't solve that problem.Although they are the most lovely to touch and cuddle up with...so warm!
Anyway....It's a long journey..and sometimes the road can get shaky on self awakeing.Yet there is a great future ahead.Walk proud and know that you never have to live up to the perception of others.Do not cover up because of peoples insecurities, discomfort, and judgement.Walk tall and "smIle".
You "are beautiful"

Hi Sara, How is William doing? Did you ever get the wig from the hair club? I have been thinking about you..Cindy

Hi I am new here. My son is 5 and has Alopecia Universalis. He has had Alopecia since he was 2. He will be starting school in the fall and I am wanting to help him be ready for the issues he may encounter do you have any suggestions?