Jo kelly

Female

United Kingdom

Profile Information:

Relationship Status:
Single
About Me:
Hi...I'm Jo
I'm a very young minded etc 54 year young woman.
I've Just been informed this very day...after having a biopsy 2 weeks ago, that i have ' Scarring hairloss' also known as 'Fibrosing alopecia'. It's mainly at the frontal lobe....and around tha whole hairline but not as much as front.
My emotions are scaling from between being totally devastated to numbness. I see my consultant in two weeks. Is there anyone out there with the same stuff going on....if so please HELP!.......
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Tracy and Amanda

    Hi Jo,
    How are you?
    Tracy

    Sep 15, 2009

  • lynne

    hello, thanks for the pic comment, very kind of u, how r u doin, i hope ur well, catch up sn x

    Sep 17, 2009

  • Cheryl, Co-founder

    Hi Jo, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

    Cheryl
    co-founder

    Sep 18, 2009

  • Erin Barber

    Hi!! I was just diagnosed with alopecia too. How are you?

    Sep 20, 2009

  • Erin Barber

    Hi Jo, I am so confused with it all also. I have been losing hair on my head for a year. Everytime it grows back it falls out. Recently I have been losing my eyebrows, eyelashes, arm hair, well hair all over my body. I am going back to my doctor soon also. I am going to have a list of questions ready so I can have everything answered. they did give me a cortizone ? shot I saw some new growth but it fell out. I am sorry that you are having to go through this but try to remember we are not alone. I got really depressed for a while but I'm tired of it having this control over me. I have so many things to be grateful for,with or without hair. I am praying for you. Erin!!

    Sep 21, 2009

  • LeslieAnn Butler

    Hello and welcome, Jo --
    I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com. Let me know if there's anything else I can do! I am here to help.
    LeslieAnn

    Sep 24, 2009

  • LeslieAnn Butler

    Thank you for the compliment! That particular wig is a synthetic by Rene of Paris called Brandi; the color is Butterscotch. I cut it about 2 inches. You can get it at a discount on www.wigsalon.com.

    Oct 9, 2009