Welcome.

Wonderful profile pic.
Roger.

Hi, Caroline. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Hi Caroline,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women and parents with kids who have alopecia were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you and your daughter feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn

Hi Caroline
Welcome to Alopecia World

hi thanx for expecting :) x

Hello Caroline, First I would like to welcome you to Alopecia World this is a wonderful site for support. My name is Maria and I too have a 6 yr old daughter with Alopecia, she actually has Alopecia Universails...(total hair loss) . She was 3yrs old when she was diagnoised and lost all her hair within in months. So I totally know how you are feeling. Here name is Savanna. What is your daughters name? She is wearing a wig from the Kids Club, and she loves it,wears it all the time. If u have any questions or just talk I am here!!! Good Luck and hopefully your daughter condtion will get better like in the past....Maria

Hi Caroline, Welcome to this awesome website!! My name is Cindy and my 6.5 yr old daughter Samantha has been living with Alopeica since May 07. She lost all of her hair and is now on a regrowth cycle with treatment. She has been wearing a wig for the past year and has a wig from the Kids Club which is through the Hair Club for Men. Your daughter is absolutely beautiful and I have found the a lot of kids are much stronger then we moms give them credit for. It seems it is harder for us moms to handle then the kids. My daughter is unphased and just enjoys having fun. Feel free to email me..Cindy

she is the most beautiful girl i have seen i would love to meet i am 10 though and live in wake forest.

Caroline, I am feeeling the same as you. My daughter will be six on February and currently has about 20% hair loss. She is finally going to the dermatologist on Friday to get some help (I hope). We are not at the point of wigs yet, I and I hope it never comes to that. Your daughter is so pretty. I am sure you will find lots of guidance here, as I have. You can email me anytime.

Caroline it was good to hear back from you and you are right your daughter is absolutley beautiful, but wheather she loses all her hair or it grows all back, she is still the same lil girl and she will always be beautiful. I know how frustrating it is to see all their hair fall out and there is nothing you can do to stop it, or to watch it start to grow back just to watch it fall out again...I have been there it seems like an up and down battle. I do not treat Savanna AU, because as every one knows there is no cure for it, just treatments and usually it is a 50/50 chance it will grow and stay. Savanna has very senstive skin and I am afraid any treatment might be more harmful then good, So i choose not to do anything, instead we have gone the route of wigs. She wears one from the KIds Club...(www.hairclubformen) look up the website and call the #800 number and tell them you have a 6yr old lil girl and would like to sign up for the kids club and get a consultation, everything is free and they get 3 wigs a year and i think 10 free session, which include geting their wigs cleaned, fixing their wigs for special occassions etc. The wigs are taped on. you need to call and make an appt, it will be worth it.

I wouldnt go with LOCKS OF LOVE...the process takes forever and they said they would be vaccumed sealed and savanna didnt even vaccum on her head, we waited and waited for it and when we got we were disappointed...I love the kids club, i would have to say it is the best place we have found...I wish you and taylor the best of luck in such a stressful situation...Stay Strong...Maria

Your daughter is beautiful with or with out hair!! Its so hard to deal with this but remember we are not alone I am glad to meet you. I hope you best

Hi Caroline,
We are not to far from each other. I too have a daughter who has endured Alopecia and I myself have AU as if anyone could tell. This is a hard thing to endure for a parent but here you have people who understand what you ar going through. With each day that passes you will get stronger. Whether her hair grows or not she is beautiful and make sure and always tell her so. Is she using any treatments?

Caroline,

I find that Rogaine really does nothing for us. I am in Clinton, MD... not that close just the same state well its not that big. My daughter had to rotate and use one steroid during the day and one at night. Neither worked alone but together she regrew her hair within about 2 months. She used protopic and cordran lotion. I am so sorry about your daughter this is such a hard thing to deal with right now more for you than her. I would suggest a second opinion just to be on the safe side. I give my daughter aloe vera juice with orange juice.

Caroline, I was reading that your daughter went to school today with a wig. My daughter is 6 and has been wearing one for just a year. And, I can tell you that she has never been picked on and not many people even know it is not her hair. Your daughter just needs to go about her day as normal. I know my daughter spends zero time thinking about her hair. She just wants to play with her friends. She is experiencing regrowth 3 derms later. The creams did not work my daughter and suddenly I found her with little hair. This time last year we stated Squaric Acid and by the summer her hair started to grow. Now, if those darn brows and lashes would stop hiding on us!!

In case you did not know the Hair Club for men has a kids club and they make great hair replacements for the kids. I am waiting for our 2nd and hopefully last one. It is easy to maintain, put on and comfy. They give 3 free replacements a year and 8 free services.

If you haven't done so already check out Children's Alopecia Project. They maybe able to hook you up with a family in your area.,They are having their first kids conference this summer in Pittsburgh.

Like Trina, I give Sam aloe juice in OJ and I also giver her 5000mg biotin and a teaspoon of cod liver oil daily..

I hope some of this info helps..Cindy

What a darling!! You have a shining smile I have 4 children I think you are very brave Taylor
I hope santa brings you everything you want :)))xox

Wow.....her first pic on the photo share looks like my daughters hair right now. We are possibly going to shave it off next week and get her fitted for a wig. This is a big step for us, for her. Her dad is going to go as well and he is going to shave his off too. He is a great dad. I am letting mine grow out so I can cut it off and possibly use both our hair and my sister in laws to have her a wig made. Your daughter is beautiful. Is the second pic a hairpiece? If so where did you get it?

I love Taylor's new wig. Where did you get it?

What a beautiful daughter you have!!! I know how hard this is for you. Actually for me at least it's harder on me then it is on my daughter Becky. My daughter is 13 and has a great group of friends, does very well in school and surprisingly has adjusted a lot better then I have. I do know that Becky does see and feel my sadness so I do try to keep that from her as much as possible. This Website is awesome and so comforting to know that we are not alone.

She's a sweetie, with or without her wig !

I agree. Shes sweet =)

You have a very pretty daughter...

Your daughter is gorgeous and so strong to be going through this at her age. I am 22 and having a really hard time with it. We can all support each other, that is what this website is for. Good luck to you both.

Yeah. Where in P.A.? We'll go. Thanks for telling me. Where can I get more info. I will go onto the site and see what I can find out. Thanks!!!!

Hi Caroline, I am Samantha. thank you for the friend request. How are you?

Here's one of my girls!!!! I'm so glad you found me on here. Please keep in touch!

We would love too. It was great meeting you too.