Hi everyone! Is anyone on here from Winnipeg CANADA? I have an 8 year old daughter who is losing her hair due to Alopecia and I am hoping to find others in this area so she can make some friends! If anyone is around, or anyone ele's child from out of town wants a pen pal please let meknow!!!

Hi Tracy,
Welcome to Alopecia World

Hello and welcome, Tracy!
How are you and your babes doing?
LeslieAnn

Hi Tracy, Glad to see you here! I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder

Thanks for the newsy note!
To prevent her from losing eyelashes, ask your derm about Lumigan.
Big hugs!

Hi Tracy, I also have a daughter 8 with AA, we have known for 2 months now. We live in Edmonton, almost neighbors! She has about 5 spots right now, still able to cover it up but I have noticed lots of clumps falling out lately. This site is wonderful for support. Take care,
Karen

Hi Tracy. I have an 11 yr old daughter who has been dealing with alopecia for the last 2 years. after losing about 70% of her hair it starting to come back in nice for about the last 8 months, but is now falling out again in patches..doesn't it just break your heart as a mom that they have to endure the constant teasing etc. We are thankful she has kept all of her lashes and brows...it is hard though.
Before her experience with A i had never really heard of it...best wishes in finding a friend...YYC is a bit far for a play date :)

Hi Tracy,Welcome to A World. My name is Cindy and I have a 7 yr old daughter with AA. My daughter has handled this all very well and lost her hair a year ago and is having regrowth now on her scalp only. Kids are more resilient then we give them credit for. How is your daughter doing?

It is so hard and with girls their hair is so special but in my daughters case she was late getting it to begin with so never had much to loose. When she did have hair it was a beautiful golden strawberry blonde and curly, but she has such a beautiful shaped head why worry about covering it with hair.
I think they deal sometimes better than us so innocent I guess and we know what society can be like so that doesnt help us as parents. Olivia lost it at 3 and a half and it started coming back 6 months later she lost it again in dec of last year and its coming back now, her eyelashes are all in but still short and light and her eyebrows u can see in the right light are on their way back as well, the hair on her head is returning too.
Olivia knows the drill that it will come and go and somedays are hard but she has more good days then bad she does get annoyed at how people can be so rude and stare she says they have no manners which I have to agree.
In some ways its a blessing if they were going to get it to get it now not when they are teenagers to deal with losing your hair for the first time along with everything else they have to contend with.
Olivia would love to talk to another girl her age that has alopecia too for so long she thought she was the only one until I started showing her websites with other kids especially girls it is sad but wow are they amazing!!

Tracy, your daughter is gorgeous. What is her name? I know it is very hard to watch their hair fall out. I think it was harder to see the eyebrows and eyelashes fall off this time last year. Today, Sam has more hair then she did this time last year, but still no facial hairs and it upsets me some days. We just have to be strong for our kids and teach them they can take on the world an be who ever they want to be. That a lack of hair can't stop them from doing the things they love. I surround my daughter by people that have positive influences over her and let her do the things she loves. We live in Massachusetts and I am sure Samantha would love to write to your daughter.

Hi Tracy and welcome to AW. My folks were from Winnipeg, before moving to California. Now they are gone but I did get to visit many times. It is still as cold as use to get. I remember seeing pictures with smow up to the roof tops and summer being so hot and muggy. My folks use to own a cabin at the lake where we would go for the summer.

Well anyway I'm glad your here and I hope that AW can help you also.

Eileen

Hi Tracy, Kyra would love to have a penpal if your daughter would like .You can e-mail me @ mmhart@shaw.ca and we can exchange addresses so the girls can write. Michelle

Hi I know it's got to be hard when it's your child, but the stronger you are the stronger she will be. She is the same person she always was and with that she can be stronger as an adult. This site it a godsend for many of us myself included. There is a childrens network here so there is help for you and advice if you seek it.

Hugs and take care

Eileen

Hi Tracy, we are going for a new wig tomorrow, Em seems pretty excited. I am a bit sceptical as she never wears the first one we got 2 yrs ago...lol. She has been wearing her bandana to school but is starting to lose again quickly after a nice 10 mths of growing back..
There is a great salon here in Calgary who also specialize in "natural hair" wigs. Best part is its covered financially from the Angel Foundation, have you ever heard of it? The kids can get a new wig every year if they like...wish us luck ;)

I would love to help with a support group here in Winnipeg! There doesn't seem to be anything here to help those who have alopecia. I looked into starting one a while back but I didn't really know how to get started.
I just have one child. She is one and her name is Anissa. I just pray she never has to go through this.

hi my name is destiny i would love to meet your daughter over the internet! i know how it feels im nine and i just got it please have your daughter leave me a message

My email address is missboobaby9@yahoo.com I would love to have a pen pal

Tracy, if you are thinking of getting Brittany an wig check into the hair club for men. I think they are in Canada as well. Sam wears a wig from them. They have a kids club which gives kids age 6-17 3 free hair replacements a year and 8 services. Sam loves the wig and it is easy to care for and you can swim in it. i brought pics of her with me befor the hair loss and they did a great job matching a hair color. Now, that her hair is growing we even tweaked the color a bit for her next one..Good luck..

Hi there. So here is a story for you. My husband is a high school teacher in Wpg. He has been super supportive of me since my AA hit. Here's the thing, he's been teaching a girl with Alopecia totalis everyday this semester and during extra help sessions and he had no idea that she had a wig on...I mean none. This girl lost all her hair in grade 8 and is thriving at both school and life. So I thought I would pass it on. Your daughter is not alone inthe Peg...Hang in there.

We're out by Headingly, about 15 minutes from the perimeter. You are welcome to come for lunch or coffee anytime. I'll email you my number.

Hey! I just saw you wrote on Dale's (my boyfriends) page about a support group here. I live more near Brandon but would love to be involved with one for our areas.
How is your daughter doing? i hope well. i lost my hair as a teenager and maybe able to relate a bit if you ever need something! let me know what I can do for a support group/network :)

I am feeling the same way, there is no support group on winnipeg manitoba. My son( who is two) and I just did a TV interveiw with big breakfast that aired today. I want to get awareness here and I want to get some kind of a kids with AA camp or something for them. I think it is so important.Hopefully with this interveiw I can get some help getting it starting here..I'll keep you updated....Take care you guys.. Christine & Kyler

I wonder if they didn't get it or it got pass on to the wrong person??? I just e-mailed the health news guy brian and he phoned me a few days later.But as long as it gets out there. I would love to get together. I am trying to plan a AA BBQ for kids and us as parents to meet and talk. Hopefully in july..we will see. Who can say no to cake?????

Well you are right to say that it is so hard to find people in winnipeg to make this BBQ happen,,,there has to be children here, but I don't know!!I'll keep trying but we can still plan somthing if you would like??? We can still have a BBQ and CAKE!! LOL

Yep count me in,,I have a printer that works, My e mail address is gecko2222@hotmail.com. My phone # is 237-8676.

I would love too but I have to go out to St Leon to visit my in laws but we are going to the teddy bear picnic on sunday, were planning to go in the late morning .. We could meet there if you wanted too..

Yea sounds good I live in St Norbert, witch is south just pass the perimeter.

If the street is grandmont I live just off that street,,,can't wait to get together..I am on mat leave so anytime is a good time, my husband is excited too.

Hi Tracy, how are you and your daughter doing. I read your blog and you seemed a bit down and wanted to pop by and say hi. Unfortunately, there is more unknown then known when it comes to treating Alopecia. We need to stay strong for our children so they can grow up with confidence and feel comfortable in their skin. I hope you can find a support group in Canada that will give you the support you and your daughter need right now. If you daughter would like a pen pal going through this as well let me know. Sam is 7.5 and she loves to write and have pen pals...((HUGS)) Cindy

Hi Tracy,

Just logged on for the first time in, my goodness, months...and months...and noticed the message you left on my wall. Good to meet you! I live on Vancouver Island with my hubby and wee ones. Your daughter is just a bit older than my oldest.

Please tell her that she's beautiful, btw. I enjoyed looking at your family photos. You have a gorgeous clan there, Tracy!

Janna

Hi Tracy,
I read through your posts and I'm sorry to hear about your daughter's struggle with AA. I was 12 when diagnosed and went through the same thing as a teenager. It's not easy to deal with alone - and that's what you feel like as a child with AA. I hope you were able to find others who have come out of hiding. I wish I knew of others my age when dealing with AA as a teen. Hopefully, because your daughter is 8 her classmates, friends and others can help normalize her experience for her so she can learn to build her confidence. I think you're doing all of the right things as a mom trying to support her.

...My parents certainly didn't make it easy on me. They are very much into how things look and it was apparent to me, even as a child that this upset them very much. Sometimes even more than it upset me. It was very difficult to know that the people you are closest to were even repulsed by your lack of hair and the effects were long lasting. I didn't date until after university until my aa went into remission. I'm now completely bald and am not ashamed to hide from my parents. Being an adult, I think too bad for them if they don't want to look at me without hair...

...in one of your posts you said that your daughter doesn't want to wear her wig. I can also emphasize with this...they are hot and sweaty! :) A medical hairpiece isn't like an IPOD, so when kids beg for this and don't wear it...dont' sweat it. They're just sorting things out on their own. Good for you for supporting her either way. You're really giving her many advantages in coping with AA.