Hi, Jessica. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Jessica, welcome to the site.

Hi Jessica,
Welcome to Alopecia World

Hi Jessica, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Hi Jessica,

Welcome to Alopecia World.

Jeff

Hi Jessica,

the little boy that I am referring to is not part of Alopecia world and he is like you born with this condition. His is a genetic one and his parents had tests done on him and them extensively and it was concluded that his genetic makeup does not allow his body to grow hair. They did test in Australia and results are also sent to Israel. He has siblings that all have hair though.

Hi Jessica,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help. By the way, I never go out without my wig; I believe that we all can choose what makes us most comfortable. So don't be hard on yourself -- what you feel is perfectly okay!
LeslieAnn

HI Jessica, I have been AA since I was 12 and AU since I was 28. I understand the urge to hide. I don't go out without my wig either, I dislike the word "wig". Anyways, I have found that if I am comfortable about it, others are too. Not so as a teenager, but God is Good and He is my Hiding Place. Blessings!!

HI Jessica!! Thanx for adding me as a friend!! Blessings to you!! Contact me anytime!! Lori

Hey everybody, I want to thank each and every member of Alopecia World for being so positive and supportive. For almost 35 years of my life I would never have stepped foot out of my front door with out my wig on. However, this year I celebrated Independence Day in my own way. Since Independence Day I have NOT worn a wig. I have changed my look completely. I used to only wear a wig. Now there is no wig. I do wear hats every day, but it is part of my new "LOOK". I actually wear makeup, earrings and hats. I have never felt so free in my life. Don't get me wrong, I am not wearing the hats to replace the wig. I have actually been showing people my head. I take off my hat to try other ones. So, I don't think I am trading one for the other.It's funny because someone commented on not liking the word "wig". I must say I feel the same way.
Alopecia World has been a blessing for me. Thank You. Jessica

Jessica,

Thank you so much for the info. I was not given details about the bisopsy just that it would leave a small scar. I am familiar with the tool that you are refering to. Jack had a skin condition in which they used this tool to remove a few of the areas under his arm that were effected and the scars are extremely small. What were they able to determine from the biopsy? I was informed the longer you have alopecia the harder it would be to determine if you truly have alopecia from a biopsy and that is why genetic testing was also recommended. Since Jack was born with it, I am being told it may produce little to no results. Your comment has caused me to rethink the situation and reconsider. I realize that reagardless of the reason it can not be reversed however it would be great for Jack to understand why he has the condition so that he will know if it is something that he can pass on to his children. I am releaved to find that it is such a common condition after all, to be born with alopecia, apparently much more so then I originally thought. Any additional info you can provide me with is really appreciated it. What I am really curious to know is can it be determined if it is genetic from a biopsy? It has been years since my husband and I considered investigating his condition any further but you have helped me to rethink the situation.

Thanks Jessica, Jack has become very curious about his condition over the last year and that is why I want to pursue it and find out if he has alopecia or a genetic disorder such a form of Ectodermal Dysplasia, which is what his Dr believes to be the case. I have made an appointment with his dermatologist to decide on which direction to take, a byopsy or genetic testing. I can't tell you how much your info has helped me to take that step and make it my goal this year to determine the reason for Jacks condition. Thanks I will keep you posted.

Any time I can help. Good Luck!

Hi Jessica,

Happy Independence Day!!!

Jeffrey