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Ella

Female

Boston, MA

United States

Profile Information:

Relationship Status:: Married
About Me:: Hi everyone, my name is Ella, I am very happily married with 3 amazing children. I have AA and am learning how to incorporate it into my life.
I love drawing and painting though I am not very good and find music and reading to be as important as food. I love classical, old school punk, some southern rock, the Blues, and a mixture of some newer stuff. I pretty much will read anything and everything.
I would love to learn piano and guitar. I also love photography and hope to get back into it soon.
I love my Doc's and kitten heals, I love jeans and dressing up, though lately I have stopped playing. My overall style is pretty eclectic, I love to mix vintage with something new. When I had hair I used to have alot of fun with it, changing the color and style all the time. I hope to learn to play around with some different wigs and have fun...
I love animals, I have 2 cats, Sid and Beziman, and an English Mastiff named Grimm.
I would love to travel, actually I have been pretty much a recluse recently so I guess going for a walk would be a good place to start.
I used to go out all the time...just soak in life. I will again...this is just a little bump in the road.

ETA that on July 22/09, Krueger came home to his family:) Now we have 2 Mastiffs who are simply amazing!
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes

Comment Wall:

Linda

Hi Ella, welcome to AlopeciaWorld!

Oct 31, 2008
rj, Co-founder

Hi, Ella. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

Oct 31, 2008
Cherylnz

Hi Ella
Welcome to Alopecia World

Nov 1, 2008
Cheryl, Co-founder

Hi Ella, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Nov 1, 2008
Dotty

Hello Ella,
I wanted to welcome you from a fellow Alopecian from the northeast. I live in New Hampshire but am originally from Melrose, MA. My daughter currently lives in Somerville. We had a small Alopecia get together in September in Boston and we are hoping to have another sometime soon. I hope you might think about joining us. If you need anything, just let me know.
Love and Hugs,
Dotty

Nov 3, 2008
LeslieAnn Butler

Hi Ella,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn

Nov 3, 2008
Cheryl, Co-founder

Hi Ella, each of us have something to offer, it does not necessarily depend on how long you have had alopecia or your comfort level. You may have information or do something particular that the next person has never thougth about. That is why this site is so amazing. So please share your experiences and thoughts, somebody will benefi from it. take care, Cheryl

Nov 3, 2008
LeslieAnn Butler

Ella, that is fabulous! You can get the book on Amazon or any other online bookstores. I am so hoping it will help you break out of that "prison!" Please let me know how you like it.
HUGS!

Nov 5, 2008
Camilla

How nice of you... just now i am learning me little of whis site... hihi

Nov 9, 2008
Danielle Gilmore

haha. yeah i love that line too. its from a song and it fit me! . so i pout it on there!

Nov 9, 2008
LeslieAnn Butler

HAPPY SUNDAY TO YOU, TOO!
xox

Nov 9, 2008
Bren Harris

Hi Ella
I wished I'd found this site before! Its nice to find people like me! bren

Nov 10, 2008
JeffreySF

Hi Ella,

Welcome to Alopecia World.

Jeff

Nov 10, 2008
JeffreySF

Hi Ella,

I am glad you are having a great time in this wonderful supportive place.
Also glad you have a supportive husband too. Close set aside. Lol
You will get stronger everyday!!!

Jeff

Nov 10, 2008
Camilla

Hello
how are you today?
hugs
from me

Nov 11, 2008
Camilla

BTW? I dont anderstand that! :(

but yes she is so beatyfull, and kind :) Now is the time 16:53 her in Sweden.. so now i am going to doing my homework, phu,, but i have to do what.

Nov 11, 2008
Camilla

Haha! Ok now i now.
hugs..

Nov 11, 2008
Trina

Hello Ella,

Thank you for the introduction. She is a wonderful child. Alopecia can be tough but it all gets better. I have had AU for 15 years and it can be hard but I thank god for my life and continue to press on.

Nov 11, 2008
Flakey

Thanks for the welcome Ella. Just feeling my way around the site :)

Nov 13, 2008
Jennifer Krahn

Hi Ella,
Glad to hear from you. Codi is in Ginger brown I believe. I really like her. She is a Rene of Paris and very comfortable and light to wear. I even wore her to play some intense volleyball last week and she is secure as can be. Hope this info. helps. Keep smiling
Jenn

Nov 6, 2009
Jennifer Krahn

Hey Ella,
I stand corrected, you are right it is toasted brown. The haircolor is very saturated and not flat and has golden brown highlights thoughout like you would get at a hairdresser. It is very natural looking and even after I explain to people that I\ve lost my hair they still point to Codi and go "Idon't get it". They have no idea...and these are aquaintances. Hope this helps.
Jenn

Nov 8, 2009
Jennifer Krahn

Hey Ella,
After I purchased my first wig, I felt the exact same thing. I didn't eat for the next couple of days...felt kind of like I let alopecia win and now I'm stuck in a wig...this sucks. But...I have to say it has been alright. The wigs are more comfortable than I thought and they look pretty good. It took some guts getting out of the house the first time, but after realizing that no one can tell it's a wig...it was all good. In fact, I get alot of compliments on my new haircut...how ironic. You are going to be great. I think it's fabulous that you are breaking out of the cycle. Wear your new hair out with confidence. When you act like your confident eventually you come to believe that your confident and everyone around you will recognize that quality in you. You are going to rock this!!!
Have a good one and I would LOVE to see a picture of you in your new do!! You have to take a picture!!! Little steps...
Keep smiling...life's too good...as is Codi:)

Nov 9, 2009
Dotty

Hi Ella,
My name is Dotty and I am originally from Melrose, MA, where most of my family still lives. I moved to NH in 1993 for a job and have been here ever since. My daughter moved back last year and lives in Bridgewater with her fiance' She works at the Phoenix newspaper near Fenway Park. A couple of alopecian friends of mine started a local non-profit for Alopecia called New England Alopecians Unite, Inc. The Hard Rock Cafe' in Boston is going to be doing a fundraiser for us through the holidays. If you happen to be in the area, check it out. I'm not sure when it will be starting, but we'll keep you updated if you'd like. We will also be hosting a "Bald Ball" in the springtime which is going to be awesome. I hope you will keep in touch and if you need anything, let me know because I am here for you.
Love and Hugs,
Dotty

Nov 12, 2009
Jennifer Krahn

Hi Ella,
I'm so sorry that it didn't look right on you. you are sounding like you are in some bad pain right now and I wish I was close enough to give you a big hug. Do me a favor...take a self portrait, as painful as this may be, try it. Then look at it. Do it when you are all dolled up. Find something in that portrait that you like...even if it is the lipstick you wear. Your hair is only one part of your whole beauty. Try a picture with Codi and one without....if you want, post me the pic. Let me try to help you get out of this prison you're in. Believe me, I'm a safe person to send a picture to. I won't judge a thing...just thought maybe this would help. Have you tried going to a local hairpiece shop to try things on. That was my safest bet. The lady I went to here actually had AU herself and gave a private appointment to try on various styles. This really helped me get out and about with this condition. I don't know...let me know how I can help. HUGS and more HUGS!!!! Ps...you are beautiful without hair...take a look at everyone on the site...I find they are all beautiful...you included

Nov 12, 2009
kimberly dean

Hi Ella,
The wig is in Toasted Brown, and just take a pic of me in and ask them to copy the fringe would be your safest bet I reckon.
Good luck,
Kimberly

Nov 17, 2009
Lee

Hi Ella,
A girl from NY styles my wig for pretty cheap. Shes a friend on mine from hair school. Let me know if you want her info. Shes in Highland, NY

Nov 17, 2009
Jennifer Krahn

That's fantastic. I hope it goes great for you. I read your blog and am super-pumped that took a giant leap forward!!! AWESOME...keep at it...small steps...when added up can really get you going on a good journey forward. Keep smiling.
Jenn

Nov 23, 2009
Jennifer Krahn

Hey Ella,
Life is good. Had a wonderful holiday with the family and went up to the cabin for some skating, sledding and R&R...it was beautiful. Now it's back to the fast-tracked routine. How are you doing? Hope you had a wonderful holiday. Thank you for the compliment...I actually had to look up the names as I had no idea who they were...but I'LL TAKE IT:) Made my day actually...and my hubbies fantasies. Hope you are well. Talk soon
Jenn

Jan 9, 2010
suzie

Thanks for the comment on the blog, but you know what I am saying right? Like it overwhelms you because you and all your friends are out and about and you can't wait to join them and tonight will be a night to remember. You just want to live, and when you do you don't ever want to stop, even when everyone is too drunk, too danced out, too tired, too everything, but at the end of the night you still loved every minute of it as your rocking out to bohemian rhapsody by queen at the end of the night trying to wake up the girl who is passed out on the passengers seat! Anyways, I hope your well!

Feb 19, 2010
Pat Latina

Hi Ella - Style - I just went with what I've known (had). light density, it look fuller because of the slight wave. bangs not too big, long layers. It's alot like I had before I gradually lost most of it. I started with AA now I have AT. I'm very excited. I'm still getting use to putting it on - yesterday I tried 6x, not that it should take that long I've been told but I guess I'm still feeling it out on my head and not quite sure how it's suppose to feel at first. But let me tell you once it is on - IT IS ON. Can't wait till you get yours - you'll see. Who did you (Agent) go with? I got mine from Debbi in NH. Oh by the way - ask away - I recently spoke to Deb she's getting hers soon, too.

Feb 25, 2010
Pat Latina

Hi Ella, Yes I love it - you totally forget you have it on. I'm done to 2x putting it on - one day I did it on the first try. One of my friends here told me to squirt alittle water in the silicone prior to putting it on - it works like a charm. I love the length, color and feel. The only think is the bangs - I wish we can go without them. i might get a little more layers, not sure yet. But all in all - LOVE IT!! You still have a few weeks before you get yours, right? You'll see. Thanks for asking. take care.
Pat

Mar 3, 2010
Michelle

:) Thanks!

Apr 9, 2010