alyssa

33, Female

Levittown, NY

United States

Profile Information:

Relationship Status:
In a Relationship
About Me:
heyyy, my name is alyssa.
i am nineteen years old.
i live in new york.
i attend Penn State University.
I love to dance, dancing almost all my life
i would also like to become a photographer after college

i have had alopecia almost my whole life, when i was in pre-school my mom would send me to school in little hats so no one would ever see my bald spots. soon enough it went away and everyone loved my hair, i had long brown curly hair. when i was in the 6st grade i lost my eyebrows, everyone use to make fun of me, i got very upset because my parents never got int details about me having this, i thought that there was something wrong with me. as the years went on i tried looking up things online to learn on what Alopecia is. around march of '09, i got a big bald spot right on my hair line. the hair never grew back, but the spots got bigger. i now have no hair. i go threw moments in which i hate it, madd that i have this but soon enough, i think of many others who i have met and they are happy with themselves.
This isn't the worst thing that can happen.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Tracy and Amanda

    Hi Alyssa,
    How are you?
    Tracy

    Aug 16, 2009

  • LeslieAnn Butler

    Hello and welcome, Alyssa!
    How are you today? I have universalis, too.
    LeslieAnn

    Aug 16, 2009

  • Cindy

    Hi Alysaa, Welcome to AW.. This board rocks! How are you? I am a mom to a 7 yr old with this condition. I grew in Floral Park..We are almost neighboors..Cindy

    Aug 17, 2009

  • Essence

    hello =)

    i'm sixteen.

    will you be attending that event too??

    Aug 20, 2009

  • Cheryl, Co-founder

    Hi Alyssa, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

    Cheryl
    co-founder

    Aug 21, 2009

  • Cindy

    Hi Alyssa, no I do not ..We live in Ma..I am from NY though...I hope you get to a meeting b/c you will find it helpful..Cindy

    Aug 21, 2009

  • Liz

    hi nice to meet you! how is everything going

    Aug 21, 2009

  • Cheryl, Co-founder

    Cool! I see that you were at CAPS, rj and I meet Carol from Ontario last year when we were driving through.

    Aug 21, 2009

  • Kay

    heyy i'm kaytee. :)
    thanks for the request, how are you?

    Aug 21, 2009

  • Essence

    no problem ;)

    Aug 21, 2009

  • Tracy and Amanda

    Hi Alyssa,
    How are you?
    Tracy and Amanda

    Aug 22, 2009

  • Cindy

    Hi Alyssa,
    I was at the CAP event as well. I don't recall seeing you there. My husband did the secure ID booth. Sam and my husband were were shirts that said I am too sexy for my hair that is why it isn't there. Do you remember seeing them? I also started CAP meeting in Massachusetts. There comes a time when you want to do something you have to just do it yourself and take a stand. Good for you for going out there and meeting others with Alopecia. I hope your mom is supportive to you. Samantha knows she is no different from anyone else just because of her lack of hair. She actually just got her first haircut in two years and will be going to school with out her wig. She is very excited. We live in a great little town. Growing up in NY myself I know how cruel kids can be. It is not easy being a Ny'er sometimes..Have a great year at school! I hope you are finding the support you need. Enjoy your senior year! Sometimes I visit my friend in Bayshore. Maybe we can meet up sometime when I am in town../Sam is a spunky gal with lots of positive energy. She has her own page, Samantha. She'd love to have some wall posts..Cindy

    Aug 22, 2009

  • cody doner

    hey alyssa nice to me you..hows your summer going over there in NY?

    so i was reading your profile and i am wondering what u do for eyebrows...im still getting used to having AU and having no eyebrows bugs me more than anything :(.

    Aug 23, 2009

  • Cindy

    I think it is fantastic that you got so much out of attending the conference. It sounds like you empowered yourself to take a stand and it is great. Maybe you'll come back in the future and tell the kids how Alopeciapalooza changed your life. It sounds like you will do fine in school this year and in life with the head you seems to have on your shoulders! Keep in touch! Cindy

    Aug 24, 2009

  • Kay

    awe, i've been diagnosed with alopecia for almost 9 months. not long, but yea.
    and i've found alot of people on this website who are great to talk to about alopecia stuff.

    Aug 27, 2009

  • Lee

    Hello...yes...thats him! are you using the foam and the gel I mentioned? I think thats what did the trick for me...everyone is different though.

    Aug 27, 2009

  • Lee

    oh...and if your wig supplier wont add hair to your wig, and you are looking for someone else, I know a guy in Mahattan that can give you a nice lace one and he will add hair to it for free ; ) Let me know if you want his name/ number

    Aug 27, 2009

  • Kay

    okay :) yea i'm open about it too.

    Aug 28, 2009

  • Ellie

    Hello, Thanks for stopping by my blog. If you would like a bracelet I think that the best way to do it is if you send me a check and I will then send you the bracelet. How does that sound to you? I will hold the check until you respond to me that you recieved the bracelet.
    Ellie

    Aug 29, 2009

  • Natasha

    Hi, Thanks for the add. Your right it's great to know that your not alone and there are others who live nearby. I see that your going to the support group meeting in the city. I'll see you there! It will be great to meet in person.

    Aug 29, 2009

  • Ann Laurie

    I am feeling ok! just a lil worried about all these changes in my life!

    how are you?

    Aug 30, 2009

  • Children's Alopecia Project

    Go to www.photobucket.com and the password is CAP2009

    Enjoy!

    Aug 30, 2009

  • kenny

    these are links to pages in med. books about aa/at/au you can google them also [alopecia and known causes ie autoimune disorder}

    Aug 31, 2009

  • Kimberley

    Thanx for the add
    and no ive never thought about shaving the rest of, im happy with how i am xx

    Sep 1, 2009

  • Kimberley

    thankyou (: i personally think its the best way to be. are you okay with the condition? x

    Sep 1, 2009

  • Essence

    thank you :)

    yes, they are all wigs :) i don't have a single picture on here where i'm not wearing a wig. lol. most of the wigs i'm wearing in my pictures are from his&hers in California... they have a really nice selection esp. for minorities and hispanics... the website is: http://www.hisandher.com/

    in a few of them i'm also wearing a synthetic wig from the forever young line, they're really soft and light and i love them but if you don't take good care of them, they don't last very long (which i don't so, yeah :P lol) so if you get one just try to make sure you take care of it and not throw it around like i do =X lol.

    the wig in my sweet 16 pics is from wigs for kids but that's an old one, lol.

    Sep 3, 2009

  • Essence

    btw: you can get the forever young wigs for like 40$ at voguewigs.com!!! and the shipping from there is just perfect.. i got mine right away!!

    Sep 3, 2009

  • JUDITH

    Hey Alyssa hope your doing good, I have AA soon will be bald.

    Sep 3, 2009

  • Essence

    that's great, i'm glad you found some that you like :)
    if you get them let me know how they turn out !! =D

    Sep 4, 2009

  • spaganya

    allergy block - its this ointment that you put inside your nose, acts as a barrier for irritants like pollen and dust - kinda acts liek nose hair would.... its pretty effective and i use it if i am going to a place where i know theres lots of dust.

    Sep 4, 2009

  • spaganya

    i have gotten it at walmart/target/Kmart stores - sometimes its hard to find though .... its in the aisle usually with the benadryl and stuff like that.

    Sep 5, 2009

  • Essence

    yay! can't wait to hear about them, i really hope you LOVE them like i do!!!!

    Sep 5, 2009

  • Lee

    His name is Isaac and he works at "Cyberparlor" http://www.cyberparlor.com/
    Hes sweet and great!

    Sep 11, 2009

  • JUDITH

    Alyssa check this website http://www.hisandher.com

    Sep 12, 2009

  • Lizzie

    Hey alyssa :) Im doing well today thanks :) How are you? Hope your having a sunny-er summer than we are, it's just rained everyday!! Darn England, typical really.
    Take Care,
    Liz x

    Sep 13, 2009

  • MiNAH

    check out my photos, videos, & my daughter singing.
    My daughter also does freelance photography..teaching herself.
    Check out her web site.
    www.mylcphotography.com
    SAYITLIKEMILK.
    under (GALLERY) look at on location, outdoors, & indoors
    There is a young girl with Alopecia & her sister with long locks.
    My grandkids with the curly hair & the baby..also my grandson.
    She loves photography.
    Also check out my sons new group.
    www.myspace.com/holliwoodzmusic

    Oct 3, 2009

  • Amy

    Alyssa, what is the product you mentioned that keeps your eyebrows from rubbing off? Thanks!

    Oct 6, 2009

  • JET

    I just wanted to stop by and say Hello. Just giving some love from a Native New Yorker. Have a great week. God bless you.

    -Jet

    Dec 2, 2009

  • Essence

    hello (: how are you !?

    xxoxoo -Essence .

    Mar 26, 2010