Alopecia World
Kirsty L. Fry
Female
Brockway, PA
United States
Profile Information:
- Relationship Status:
- Married
- About Me:
- I am a Freelance Artist and the mother of a 10 year old girl named Kira who was diagnosed with Alopecia Areata in December. She has lost up to 70% of her hair so far. I am So proud of her, not only did she announce her condition to her 4th grade class, but she went on the school tv station on an interview to talk about her condition! Starting a new series to help educated the children of our small rural community.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://www.kirstyscreations.webs.com
Alyssa (barbara-mom)
So glad that the girls are writing to each other. Alyssa is having so much fun doing this!
Take care,
Barbara
Apr 25, 2010
LeslieAnn Butler
Your daughter is amazing and wonderful!
How are you both doing today?
LeslieAnn
Apr 26, 2010
Alyssa (barbara-mom)
I totally understand all your feelings all too well! It is devastating to feel helpless and although she is still acting like her usual upbeat self, I worry for the future as she gets older! We have been doing the injections for 3 months, but I don't see anything yet. Let me know how the shampoo works. My doc also told me to try the rogaine, but when reading that it isn't for kids, as well as you have to continue it or the hair falls out again, I felt it was not worth it. I am glad the girls are having fun writing to each other. Have fun in Tennessee. Will speak to you soon.
Barbara
Apr 27, 2010
Danielle
I saw your post on the Pennsylvania group and wanted to let you know, I will be living in ridgway this summer. I am 21 and have had alopecia areata since I was 2, so if you or you daughter want some one to talk to feel free to get a hold of me.
~Danielle
May 4, 2010
Danielle
I am interning with ashland chemical at the domtar mill, but I grew up Duke Center so I am from the area
May 23, 2010