Although I live in Australia, I am really a Kiwi from New Zealand.
42 years old. Married, with four wonderful kids,(and one really amazing wife who puts up with us all).
About my Alopecia:
I first noticed a small spot on my face that didn't grow hair in November 2007, which then grew larger. The hair on my head started falling out in January 2008, with a small patch about the size of a thumb nail on the side of my head. This patch was soon joined by lots of other patches, and they all grew larger and joined up.
By June 2008 I had only a few small Islands of hair left on my head. I hardly had to shave my face anymore as I only had a small patch with 8 hairs left in it to shave.
In August 2008 I was sunburnt on my head which started small stubble to grow within 2 days. I looked into this further and found that Ultra Violet light helped suppress the Immune system. This new hair that started growing in was white to transparent in appearance, but it was new hair, even though it was thin!
October 2008 saw my Alopecia spread to my Eyebrows and Eyelashes. This gave me an even more funny look as at times it looked like I was pulling funny faces with one high and one low eyebrow.
My hair continued to fall out and regrow throughout 2009. It would appear that I was regaining my hair in one area, only to be loosing it again in an other place.
March 2010 saw a big drop in the rate in which my new hair would fall out. Hardly any hair was falling outMy hair thickend up everywhere except at the back of my head and eyebrows where it remained thin, but not bald.
July 2010 took a new twist on my Alopecia. Previously the hair loss had been from the base of my neck and up. This time bald patches were appearing on the back of my hands, arms chest and legs. A clear signal that I was not finished with this blessed Alopecia.
August 2010 saw the appearance of a brand new bald patch in the thin hair on the back of my head. The remaining thin hair started to get thinner and by the end of the month I had many new bald patches on my head, and my eyebrows started to fall out again.
Update: December, 2013 I have a full head of hair now! I get the occasional small bald patch around the size of a thumb nail, but this disappears normally within a couple of months. I have left my alopecia to run its course which appears to be gone after 5-6 years.
Another update: Time has past. Up until 2019 I was basically over the worst of this alopecia. I had a few bald patches appear, but they regrew rather quickly.
In 2019 my world was tipped upside down. I was involved in a fatal accident. I was in the passenger seat of a car that ran over a motorcyclist. This rider had been knocked off his bike by a vehicle pulling out of an intersection, then as he stood up, was then struck by a car travelling at 140km/h before being run over by the car I was in. I was the only one to go over to help the motorcyclist. His injuries were horrific and unsurvivable. I watched as he died, unable to do anything. The things I witnessed had a massive impact on me. I was diagnosed with CPTSD, mild depression and anxiety. I was also diagnosed with Chronic Fatigue Syndrome. My Alopecia returned. I am assuming that all the stress I was going through has played a part in this returning. The stresses of this accident have subsided and after 3 years, I would have to say I have mostly accepted the events of that day and am no longer affected to the same extent. Alopecia though continues to worsen. Back to almost no eyebrows and multiple bald patches that do not appear to recover well. The strange thing is that this no longer bothers me. I am at complete peace with this. What the future brings and whatever the challenges are that await around the corner, I feel I am ready to face them head on. While the things I have faced are unpleasant, I have emerged on the other side stronger for what I have been through, and life means so much more.
HI mike, there is a foundation called princess charlotte alopecia foundation in oz. thought you may wanna check it out. http://www.princesscharlottealopecia.com
Hi Mike, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
Similar story here, started with teh beard and now its progressing hair bound. Any theories on what the f*** caused this ? There has to be some similar factors somewhere.
Hi Mike. Don't blame you mate. Hang on to them while you can & when you feel comfortable, just shave the buggers off. It's always a personal decision & whatever's best for YOU! - Skin.
Hey Mike just saw your photo - I am in Brisbane too.... the hardest part is loosing it... once it's gone (or hopefully back) you can move on - keeping it short is the best way - there is a good natropath in Capalaba - Daniel Clare - he is very knowledgeable about this condition - I run the support group in qld if you need some help!
The natropath is Daniel Clare in Capalaba - 3823 4006 brisbane number
he is a good guy and knows alot about this condition - will he or I guarantee a fix - NO - but I had no hair at all and he got about 60% of mine back !!! and quickly after 8 years of none.... so you can also email him on alitum@bigpond.com.au if you just want to "feel" your way - it can get expensive trying too many things....
Hope this helps
hi, mi name is Valeska, from Chile, Im in USA for the last 12 years. My son is 6, he started loosing hair in november 2007, just like you. How r you? r you taking any medication??
Hey Mike,
Thank you very much for your concern and your suggestions.
Unfortunately though,we had to give the cats away today,it was just too much for my mum I'm afraid.
Thank you anyway :)
Megan x
Im not doing very good, I refuse completly the idea of AA ... it most be something in this world ........... Im taking matthew to Chile in december, to try a new treatment called biomagnetic........ I'll let you know.
Im just mad and sad...........
Sorry to hear that you're still having issues with AA.
Mine started just over a year ago with a small dot on my beard (still growing to this day) and then I got a patch behind my right ear in Jan 2009 which grew slowly until around May when it got really big and another patch appeared overnight near my crown and grew to quite a big size within a matter of weeks. Coincidentally, I was put on bloop pressure medication around this time which had hair loss as a possible side effect. I asked my doctor to change my medication but things don't seem to be improving.
Since then, I seem to develop a few news spots every other week and now have 20+. I have regrowth in some of the older patches - a mixture of dark and fine white hair but still not enough to fill in those patches.
The AA has had a real negative effect on me. I don't think I've ever been so anxious or depressed about anything else before. I'm keeping everything crossed that it's only a temporary blip and trying to focus on the regrowth and take positives from that. I really admire the people on here who have accepted this condition and can cope with it. I hope I get to that place soon!
I hope you see an improvement with your AA soon.
Keep in touch
Robert
Thanks for your reply. Don't worry, I'm not necessarily thinking that my AA will follow the same route as yours. If there's one thing that I've realised from this condition is that everyone is different.
If it's not too personal a question, do you know what triggered your AA? I keep getting asked if anything stressful happened to me just before the AA started and I'm at a loss to think of anything. I then found out that my mum had a minor issue with AA when she was 16 (almost 60 years ago) but it cleared up within a few months and never re-occurred.
Roger
Sep 26, 2008
JeffreySF
Welcome to Alopecia World.
I'm sure this is a pretty tough time for you. Know we are all here for you.
Jeff
Sep 26, 2008
rj, Co-founder
Sep 26, 2008
Cherylnz
Welcome to Alopecia World
Sep 26, 2008
Sharon
I don't have alopecia but our 12 yr old daughter does, it is certainly a journey isn't it?
Take care
Sharon
Sep 26, 2008
Linda
Sep 27, 2008
Fitzy
Sep 28, 2008
Cheryl, Co-founder
Sep 29, 2008
Mark
Similar story here, started with teh beard and now its progressing hair bound. Any theories on what the f*** caused this ? There has to be some similar factors somewhere.
Im 31 by the way, ali p started 2 years ago.
Cheers dude,
M
Oct 10, 2008
Skin
Oct 10, 2008
Angela Jackman
Cheers for now
ANGELA
Oct 13, 2008
Angela Jackman
The natropath is Daniel Clare in Capalaba - 3823 4006 brisbane number
he is a good guy and knows alot about this condition - will he or I guarantee a fix - NO - but I had no hair at all and he got about 60% of mine back !!! and quickly after 8 years of none.... so you can also email him on alitum@bigpond.com.au if you just want to "feel" your way - it can get expensive trying too many things....
Hope this helps
ANGELA
Oct 16, 2008
Valeska Medel
Nov 10, 2008
Megan
Thank you very much for your concern and your suggestions.
Unfortunately though,we had to give the cats away today,it was just too much for my mum I'm afraid.
Thank you anyway :)
Megan x
Nov 10, 2008
Valeska Medel
Im just mad and sad...........
Nov 13, 2008
JeffreySF
Stopping to say hello and see how things are going with you.
Jeff
Jan 10, 2009
Robert
Sorry to hear that you're still having issues with AA.
Mine started just over a year ago with a small dot on my beard (still growing to this day) and then I got a patch behind my right ear in Jan 2009 which grew slowly until around May when it got really big and another patch appeared overnight near my crown and grew to quite a big size within a matter of weeks. Coincidentally, I was put on bloop pressure medication around this time which had hair loss as a possible side effect. I asked my doctor to change my medication but things don't seem to be improving.
Since then, I seem to develop a few news spots every other week and now have 20+. I have regrowth in some of the older patches - a mixture of dark and fine white hair but still not enough to fill in those patches.
The AA has had a real negative effect on me. I don't think I've ever been so anxious or depressed about anything else before. I'm keeping everything crossed that it's only a temporary blip and trying to focus on the regrowth and take positives from that. I really admire the people on here who have accepted this condition and can cope with it. I hope I get to that place soon!
I hope you see an improvement with your AA soon.
Keep in touch
Robert
Oct 14, 2009
Robert
Thanks for your reply. Don't worry, I'm not necessarily thinking that my AA will follow the same route as yours. If there's one thing that I've realised from this condition is that everyone is different.
If it's not too personal a question, do you know what triggered your AA? I keep getting asked if anything stressful happened to me just before the AA started and I'm at a loss to think of anything. I then found out that my mum had a minor issue with AA when she was 16 (almost 60 years ago) but it cleared up within a few months and never re-occurred.
Robert
Oct 14, 2009
james
Feb 25, 2010