Hi Erin,
How are you?
Tracy

Hi Erin, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

Hi Erin,
I too am going back to school and am excited about it as well. I hope you are doing okay. This is a great site for support and friendships.
Tracy

Hello Erin,....
nice of you to say hi. Hhat type of alopecia have you got?. To be honest, I'm abit confused with all the different ones....are there types that are treatable..I suppose by that i mean curable.....
I was only told the results of my biopsy by telephone last monday, that i have scarring hairloss- Fibrosing alopecia. The sister who phoned me from the hospital said she's not allowed to say anymore until i see my dermatologist in a couple of weeks.........I've been just left hanging. I'm devastated!......

Hello and welcome, Erin!
I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com, and on this site under "Bookshelf."
Let me know if there's anything else I can do! I am here to help.
LeslieAnn

Hi Erin,
Thank you for your kind comments. Alopecia World has been great to us. I know you will like it as much as we do. How long have you had alopecia?
Tracy

I started lossing hair in May but I didnt see my 1st bald patch untill July its falling out slowly I think I went to the doctors right away and stopped taking the pill at that time on my dr has my on progesterone replacement and Im going for blood work this week and will be starting to go to the Dermatalogist asap what are you doing ? and do you have any advice?

Hey, yes thats a wig its from senseationnel.
Not so good news any more as my hair has all fallen out again.
How are you

Thankyou very much! I feel it makes you stronger as a person. But you have to get on with it even when its hard. But its good having this site to talk to someone who knows how you are feeling!
x

Hey Erin. Welcome. My profile picture is of me before I developed Alopecia. But my wedding pictures have my current wig. I am still new to the whole wigs process and have not been happy with either of my wigs. But if you need anything I am here!

Hey Erin, things at the Dr's went ok,but not how I had hoped but he is going to send me to the Drematalogist and for more blood work ,so thats a start It only toke 3 visits. He seem to be on some kind of hormone band wagon so Im thinking I need a new Dr Just to be sure that this did start will my bcp Im sure it did but you never know right I feel that if I dont hear it from the tests that I wont be able to stop my mind from thinking about it(hair loss) all the time I know that seen silly but I just dont know what else to do.But today is a good hair day LOL Hope thing with you are good right now?
Ashlie

Hi Erin..I'm so sorry im only just getting back to you... ive only just read your message...I'm not entirely sure how to use this site yet. I kept seeing your name in my email box and went straight to my message on here but there wasnt anything there?...... And by mistake ive just found lots of comments to me on here, Is it a 'wall' os something....oooh, i dont know what i'm doing.... i'm so not techno minded. It doesnt help that i'm also dyslexic too ;-).....
Anyway thank you Erin for your kind words. I'm sorry also that youre going through it. Also everyone else x x x
There are questions i want to ask...but i dont know how to work this comment thing to talk to all?... accept when i'm on someones page and it says "Add comment" . I feel rather foolish and inadequate.......
I hope you wont mind if i include my questions in this comment to you?....
I have Cicatricial-scarring alopecia....

oooops... Sorry i pressed something i shouldnt. Does this comment go on the wall for others to see or is this private between you and i?....Gosh i wish i knew what i was doing...please bear with me Erin or anyone who may be reading this....

Hi Erin,
Im pretty new to the whole wig thing so when i purchased my first wig 3 weeks ago I kind of did it at a spur of the moment thing. It is the wig you see in the pictures on my profile of me with long dark hair. However, I wouldnt recommend the person I went to go see for it. Just yesterday I decided to shave my head when I found a salon near by that specialized in wigs and hair extensions. I LOVE it. The wig is alot lighter in color but feels so much more natural and less heavy. My scalp looks so real it is scary. It was alittle pricy (1500) and it only lasts up to 5 months but it is well worth it. The guys name is Vincent Fabi and he owns a salon in Wethersfield, CT called Fabi of Rome. He is a miracle worker. I highly recommend him. He also has salons in other locations, google him! I hope this helps and i look forward to getting to know you better! Have a great day!

Erin, Dont worry about all the questions! Im glad i could be of some help! You are so lucky to still have hair lol I had about 40% of my hair left when I shaved it. Most of my hair loss was underneath but eventually started falling out on top too. I will have to shave my head every couple of weeks to make sure the incoming hair doesnt push my wig up. The wig is pretty easy to apply ( although Vincent wants me to come to him to have it washed and applied for the first couple times) . I can wear the wig without taking it off (so to bed and in the shower and everything in between!) for up to 3 weeks before having to reapply it. Soft glue works the best and doesnt build up and look gluey. The wig will last me up to 4 months, it really depends on how careful you are with the wig and how many times you need to wash it. I hope this helps! and feel free to ask me as many questions as you want :)

I get mine at Serge's Showgirl Wigs in Las Vegas, NV. They are AWESOME! :)

sorry ive been off of this for the longest time.. but i get my wigs from acewigs.com... and the company that makes them is Amore wigs...style Brandi.... i use a low heat straightner when it starts getting tangled .. and then i place hot rollers and let it set for 15 min... works great :) if you have any other questions just let me know and ill answer them.. also when i first get all my wigs regardless where i get them from i always use a straightner so it looks less bulky.. right now the straightner im useing is vidal sasoon mini on the loswest setting possible :_

Hey there! I get my wigs at a place called salon mez-a-me in upland california! No one can tell i wear one, they look great! I do wear the glue on lashes, you have to buy the glue also, and add more to the strip, or it will fall off, just a think layer..wait for it to dry for a few seconds then start puuting it on. It will take awhile to get used to it, then start to only take a few seconds once you get used to it! i love them too!

Hi! I got it in NYC at Joseph Paris. It was $3,500 which was alot of money for me to spend, but I feel it is worth it. It is alot more comfortable than my previous wig and he custom made it to fit and put some highlights in as well. I prefer longer hair so mine was $1000 more than if it was a shorter length. I am looking into another place right now locally to see if I can find a synthetic wig too as I sleep in mine every night and straighten/ blow dry everyday so It has taken a lot of wear on my hair. Hope this helps and let me know if you have any advice! Have a great day

Thank you so much, thats very nice of you! I still struggle with everything every day but having a comfortable wig definitely helps. Let me know how your search goes!

you have put in your page that you have areata, but to anne you said that it is maybe CTE why you dont know? i have CTE but sometimes i think it could be areata...so which is your situation?

i would like to know how many hair are u lossing per day? at first i was lossing without shower about 200 hair just picking hair up not pulling, and at shower 700-900, now is it always 200 per day when i don not wash my hair i pull my hair to take the hair which was going to fall anyway, what about u?

I too have severe burning and scalp pain. I was given the Ketoconazole shampoo but am terrified to use it because I don't want to damage the hair I have left. Have you used it? Did it make your hair break or fall out?

My sheds have become a lot lighter the past week or so. I lose maybe 100 a day but it varies so much. Some days are a lot worse but I try not to count or look. On the days when my scalp itches the most I also lose the most hair. I am ALWAYS stressed due to eating disorder and panic attacks. I am just waiting for the next shed... Hang in there darling!

i have losing my hair for more than a year, but if your analysis are ok, it looks like areta diffusa to me if you are losing the rest of your body hair as well, i only lose the hair on my scapl, and maybe a littler more eyebrows but nothing anormal....although i got very tiny spots in my scalp which there are not regeneration so maybe i got areata, you dont have any spot?.
maybe you can chage your diet to try, i am ditching coca cola light because product light have some poison (espartamo in spanish) and gluten....and it seems to get better, but i am not sure yet

Thank you so much for sharing your thoughts about the Keto shampoo. You have helped me out more than you know! It feels like something is eating at my scalp causing severe itching and pain. I read on the internet that Keto is being considered as a treatment to reverse hairloss. Your advice really calmed me down. I think I will be trying it in the next few days. I will keep you posted! Thanks sweetie...

i have been seen your pics!! have you been 3 years with shed??? but your hair looks great , i had much hair before of that and my hair looks not so good like you at all, and in my case is just one year, i thought this pics were before of shed!!

Hi Erin. I still haven't accepted it. And I've had it since I was 18. I went bald right away and wore a wig for 5 yrs. Then it all came back for a bit and then for the last 15 yrs I've just dealt with bald spots. Sometimes big enough to wear hair pieces, but never all like I'm at right now. It all fell out in April of this year. I'm definitely struggling. Sometimes I do think.."what the hell's the BIG freakin deal??!!" And other times it is "Oh my gaaaad how do I go on like this and try to love myself".

Thank you soooo much Erin!!