i have alopecia universalis. I've had alopecia since i was 3. It started out in patches, came back and then fell out. Now i have no hair at all. Ive never really known anyone else with alopecia and i'm here to get to know people. Ohh and my eyebrows have been tattooed. :)
Hi Amber
Thanks for the friend request
Welcome to Alopecia World. Hope that you enjoy being a member on this site.
My son Jon, 13, has had Alopecia since he was 6. He has just recently developed AU. He has lost his eyebrows and is slowly losing his lashes. He is not interested in tatts or wigs. He wears a bandana in summer and a beanie in winter.
He is finding it hard coping as a teenager.
How are you going? Do you find it hard at school?
Susan
Thanks Amber. I'll tell him. I wish that he would join in discussions and that here on this site. I think it would make a big difference to how he feels about himself.
Do you have good support in the way of family and friends? Do you have a support group to go to?
Sorry it took so long to reply Amber.
Thank you for offering to talk to Jon if he ever needs it. Thats very kind of you.
It is good that your family is supportive. Family is so important isn't it. Some people don't get that till later in life.
How has your week been?
BTW I love your photos. You are beautiful.
Chatting with Tanya she has added Jon on facebook. He will chat with people on facebook.
Here is his link if you are interested. http://www.facebook.com/home.php?#!/profile.php?id=100000353350133&ref=mf
Thanks for the add on Facebook. I see you are a big Kid Rock fan; I really loved him in the movie Joe Dirt he was to funny! I didnt even recognize him at first. Well I hope you are doing OK.
You are so inspirational my daughter is 8 and a half she has alopecia universalis you are amazing. Our daughter most days doesnt mind not having hair but some days are different. I can only hope that she has your attitude at your age. She hates wigs loves hats and bandanas and we never make her feel that she has to look like everyone else. Keep up your fantastic attitude you are amazing and more people need to be as confident as you!!
Susan - Jon's Mum
Thanks for the friend request
Welcome to Alopecia World. Hope that you enjoy being a member on this site.
My son Jon, 13, has had Alopecia since he was 6. He has just recently developed AU. He has lost his eyebrows and is slowly losing his lashes. He is not interested in tatts or wigs. He wears a bandana in summer and a beanie in winter.
He is finding it hard coping as a teenager.
How are you going? Do you find it hard at school?
Susan
Mar 7, 2010
Susan - Jon's Mum
Do you have good support in the way of family and friends? Do you have a support group to go to?
Mar 7, 2010
JeffreySF
Welcome to Alopecia World.
Jeffrey
Mar 7, 2010
Libby
Thanks for the friend request! Welcome to AW!!
Libby
Mar 8, 2010
Cheryl, Co-founder
Mar 9, 2010
Drakes
Mar 9, 2010
Clayton
Mar 9, 2010
Susan - Jon's Mum
Thank you for offering to talk to Jon if he ever needs it. Thats very kind of you.
It is good that your family is supportive. Family is so important isn't it. Some people don't get that till later in life.
How has your week been?
BTW I love your photos. You are beautiful.
Mar 11, 2010
LeslieAnn Butler
How are you today?
LeslieAnn
Mar 12, 2010
Susan - Jon's Mum
Here is his link if you are interested.
http://www.facebook.com/home.php?#!/profile.php?id=100000353350133&ref=mf
Mar 15, 2010
Adam Elliott
thanks for messaging, just getting use to this whole layout :)
how's things going for you then?
Apr 15, 2010
Dotty
Love and Hugs,
Dotty
May 18, 2010
ADEOLA ADEFOLAJU
Nov 8, 2010
Devin
Hey Amber,
Thanks for the add on Facebook. I see you are a big Kid Rock fan; I really loved him in the movie Joe Dirt he was to funny! I didnt even recognize him at first. Well I hope you are doing OK.
Happy Holidays!
Devin
Dec 11, 2010
Stacey, Olivias mom
Dec 29, 2010
Tamer Jane Sell
Jan 11, 2011