Alopecia World
Nikki
Female
Vancouver Area
Canada
Profile Information:
- Relationship Status:
- Married
- About Me:
- I have alopecia. I started loosing my hair when I was 13. By the time I was 21 I had to wear a wig. I at least made it through school and a wedding. I have been married for 18 years and my husband loves the fact that there is never hair on the floor and that I don't spend hours doing my hair yet I still look beautiful. I love him for that. If given the choice to have my hair grow back.... I think I feel confident and comfortable and beautiful the way I am. I look great with minimal effort. Yippeee! I have had to look to the positive side of my condition. I am much happier now.
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
Tiffany P
Jul 6, 2010
Petra
Jul 6, 2010
LeslieAnn Butler
"Yippeeee!" is right! You have a great attitude.
Hugs, LeslieAnn
Jul 6, 2010
cati
Nice to meet you.
cat
Jul 6, 2010
cati
Jul 8, 2010
Lori
Jul 26, 2010
Janna
It's nice to know another west coaster on here! It's been a long time since I've logged in, so I apologize if you've been waiting long for a response. We live over on Vancouver Island, with our three beautiful girls. Lynnea, our 'middlest' daughter, as we say, has alopecia areata, although it usually behaves like totalis. She's 5 and is just beginning to understand how unpredictable alopecia is. She is still waiting for her real hair. That's the hard part for me. She is so patient, and has full faith that it will grow someday, but I try to remind her that it might, or it might not, and that's just fine. She's so pretty!
I hope we have a chance to meet outside of the internet, seeing as we're so close. It would be good for Lynnea. Hope to get to know you better. :)
Janna
Nov 10, 2010
Janna
It's been so long since I logged on again! I wish I'd seen your message earlier. Did you ever get around to coming to Victoria? We do occasionally make it over to Vancouver, so hopefully we will be able to actually meet each other. Graeme and I homeschool our two oldest, and I'd love to bring them to the bodyworks exhibit at Science World before it ends, so perhaps this might be in the near future!
You had ased how Nnea copes with her alopecia. She copes with it, probably better than I do. It's not very often that I see her overly self conscious about it, but I do catch her sometimes looking longingly at other little girls her age with long hair. Last year, she had been acting out a bit, trying to be "a boy", and one day I sat down with her and asked her why she was doing it. She said it was because she thought she had to, since she didn't have hair. So, finding her identity has been a bit of a challenge at times. I assured her that she's allowed to like dresses and dollies and princesses, just as much as any other girl, and this year has been the first year she's chosen to wear dresses. She does have a wig, but finds it itchy, so doesn't opt to wear it often. In the morning, I'll ask her "So, Lynnea, do you want to wear your hat, your head or your wig today?" and she'll usually choose the first or second option.
She really is a stunningly beautiful little girl. I adore her, and constantly pray that she is happy, and healthy and that she experiences all of childhood's little joys.
I hope you had a wonderful Christmas, and all the best in 2011!
Dec 28, 2010
Bald and Fabulous AKA Terri
Great to "meet" you.
I have been living with alopecia since I was eight now almost 36. It has been a journey that until recently (September) that I have finally comes to terms with (almost LOL) I find it therapeutic knowing that I can talk with others during their journey and maybe help others.
Jan 17, 2011
Bald and Fabulous AKA Terri
Jan 18, 2011
Joan Glover
Apr 11, 2011