Evie and mom Gail

Female

Ottawa, ON

Canada

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About Me:
My daughter Eva, 5, has has Alopecia Universalis since she was 10 months old. She just got her first wig, but isn't very interested in wearing it since it is hot and itchy. Normally she does very well, but there are days when she feels like she is the only bald kid in the world. We haven't met anyone yet with alopecia. Her school seems fairly supportive, although there can be comments some days that upset her and there are times when she wishes she could have big princess hair. Would love to meet others in Ottawa, Canada dealing with alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • LeslieAnn Butler

    Hello and welcome, Gail!
    How are you and Eva doing today?
    Leslie Ann

    Sep 16, 2010

  • Jade Hawkins

    Hi Gail, I havent had a chance to be on alopeciaworld for some time thus Im catching up now with the time that Ive missed. I just wanted to say that I think its great that you are trying so early in your daughters life to make this go as smoothly as possible for her, because she unfortunate to say is going to have a really rough childhood because believe me theres things that you will try to understand but never really will. If there is some advice I can give you it would be to make sure she has a good support system, social skills will also be something your going to need to help her with, but most importantly you need to teach her to stand up for herself, keep her head high and always be proud of who she is. These are things that noone ever told me, I dont want to see any other children have such a rough time with alopecia. We should keep in touch, If ever one day Eva needs to talk to someone with similar experiences, or to find the best deals on wigs, Id love to help. Ttyl, Jade

    Jan 22, 2011

  • Kendal Rauh

    Your little Evie is absolutely ADORABLE!!!!!!!!!!!!!! I just want to give her a big hug :)

    Apr 30, 2011

  • Jules1984

    Hello... your daughter is gorgeous! I came across your profile while searching for others with AA who live in Ottawa. My 3 year old daughter was diagnosed with AA 2.5 months ago and has lost about 50% of her hair so far. It doesn't seem to be stopping yet... but we have seen some grassy areas of regrowth. Where abouts in Ottawa do you live? How old is your daughter now? I haven't met any children with AA here and would love to meet you and your Evie. We live in Huntclub... what school does she go to? Hope to hear from you!

    Julie

    Jul 3, 2011

  • Evie and mom Gail

    Evie tells a friend in chemo why it's cool to be bald: 5. you don't waste time in the bathtub washing hair 4. you don't hurt when you brush your hair 3. Your sister can't pull your hair 2. You get better head massages and #1 you get the best kisses on a bald head. :)

    Jul 5, 2011

  • Jules1984

    Hello Gail, for some reason I can't send out messages through this website. We would love to get together with you guys as well. I have 2 daughters, Alexa is 3 and Tiana is going to be 2 in August. I am also pregnant with the third, due in September. Email me at jswaita@rogers.com this way we can correspond better so we can meet up sometime soon!

    Julie

    Jul 6, 2011