Rose

41, Female

Portugal

Profile Information:

Relationship Status:
Single
About Me:
Hi. I live with alopecia universalis since I was 11. Everything started very fast and when I realized had no hair. I think that was the worst time to happen because I was starting to be a teenager! Here in Portugal there is not much support and nobody knows this problem! There is much bias! For three years I refused to wear a wig because I always thought that would be ridiculous. But inevitably began to use, coinciding with the change to another school and from there almost only kept this secret with me. It may have been a mistake but when you are 15 years old is a very difficult time to deal with all this. I lived my life as someone else but now, when I'm 25, I understand have to start to change and begin to share this with others, even while continuing to wear a wig. People who will reject me is because will not lack in my life! I wish find here, in this great community, support for a new life!

I visited the website to share information and experiences!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes

Comment Wall:

  • Roger

    Welcome.

    I have a friend in here that also got alopecia. Shes from Porto.

    Roger.
  • rj, Co-founder

    Hi, Rose. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
  • Roger

    Olá.

    Hope she will get in touch with you =) Its her sisters daughter that has alopecia.

    Roger =)
  • Roger

    Thanks. You too =)
  • Cheryl, Co-founder

    Hi Rose, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
  • LeslieAnn Butler

    Hi Rose,
    I love your music! I was in Portugal in 2001 and went to an outdoor jazz concert. I'll always remember it!
    How are you today?
    LeslieAnn
  • LeslieAnn Butler

    Hi Rose,
    Yes, I was in Lisbon! I stayed there a couple of nights, then went to that fab resort Reid's Palace on Madeira for a week.
    I am fine -- wrote a book called "If Your Hair Falls Out, Keep Dancing!" and it is doing its job, helping women who have hair loss feel good about themselves.
  • Linda

    Hi Rose, welcome to AlopeciaWorld!
  • Linda

    You're welcome Rose, yes my big family supports me, but shaving my head is what has given me the freedom to be me. Thanks to AlopeciaWorld my family continues to grow and the support seems to be never ending.
  • claire

    thankyou for the nice comment your kind.
  • Roger

  • Helga tavares

    Olá Rosa!!! Espero que tenhas tido umas excelentes entradas e que 2009 seja o ano da partilha de experiencias! Temos de nos conhecer para unirmos forças e quem sabe até constituirmos uma comunidade de apoio!! Eu vivo no Porto, mas estou de mudanças para Lisboa, por isso teremos oportunidade de contacto! O meo msn : capulletto.juliette@hotmail.com, adiciona-me para conversarmos! Um beijo forte para ti!
  • nenad

    hiii
  • Salmezan

    Thank you Rose! :)
  • Salmezan

    Hi Rose! Thanks for the comment. I am in UK at the moment, we should meet up if you come here for a visit! It would be real lovely to meet someone who has been through what I have. Take care and Happy New Year!! xx
  • Roger

    Olá Rose.

    Have you been able to get in touch with Helga from Porto yet?

    Hugs, Roger.
  • Roger

    Hope you can get together someday with Helga !

    Kisses.
  • Paula

    Olá!Também sou portuguesa. Tenho alopécia desde os 18 anos. Agora tenho 26 anos e também uso peruca. Deixo-te aqui o meu e-mail: paulinha_03@hotmail.com.
    Bjs
  • Leon Johnson

    Aww...thanks for the comment. You look great with or without hair! I'm a singer and painter. I've not picked up the brush in a while but I'm focusing more on my voice as the money maker. Hope all is well. God bless.
  • Ele

    Ros Hello!

    Siii! Estube in Lisbon but was too peqeña and not the truth and I agree! Jaja

    We are very near!

    Kisses and happy to meet you!
  • Henrik

    Hello. I didnt see your answer until just now.. although thats probably partly due to me being rather inactive though :P

    I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D

    Hugs / Henrik
  • JeffreySF

    Happy Birthday Rose..

    Jeffrey
  • Pedro Costa

    oi, Rose...tudo bem? sou brasileiro e acabo de conhecer o grupo...será um prazer conhecer vc...beijo
  • Karina

    Hi Rose..I´m Karina from Argentina..I´m very depressed cause I don´t want to lose my hair..You are very pretty!! Can you tell me your experiences with wigs..how many hours do you wear...Is it comfortable..etc
  • Tony

    Hi Rose , how are you doing? just wanted to stop by and say hello :) Tony
  • Bruno Manuel Rocha

    Olá ! Sou do mesmo cantinho á beira-mar plantado e a minha carissima alopecia acompanha-me pra onde vou! Deixo o meu mail brunomrocha@hotmail.com. Abraço