Hi. I live with alopecia universalis since I was 11. Everything started very fast and when I realized had no hair. I think that was the worst time to happen because I was starting to be a teenager! Here in Portugal there is not much support and nobody knows this problem! There is much bias! For three years I refused to wear a wig because I always thought that would be ridiculous. But inevitably began to use, coinciding with the change to another school and from there almost only kept this secret with me. It may have been a mistake but when you are 15 years old is a very difficult time to deal with all this. I lived my life as someone else but now, when I'm 25, I understand have to start to change and begin to share this with others, even while continuing to wear a wig. People who will reject me is because will not lack in my life! I wish find here, in this great community, support for a new life!
I visited the website to share information and experiences!
Hi Rose, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
Hi Rose,
Yes, I was in Lisbon! I stayed there a couple of nights, then went to that fab resort Reid's Palace on Madeira for a week.
I am fine -- wrote a book called "If Your Hair Falls Out, Keep Dancing!" and it is doing its job, helping women who have hair loss feel good about themselves.
You're welcome Rose, yes my big family supports me, but shaving my head is what has given me the freedom to be me. Thanks to AlopeciaWorld my family continues to grow and the support seems to be never ending.
Olá Rosa!!! Espero que tenhas tido umas excelentes entradas e que 2009 seja o ano da partilha de experiencias! Temos de nos conhecer para unirmos forças e quem sabe até constituirmos uma comunidade de apoio!! Eu vivo no Porto, mas estou de mudanças para Lisboa, por isso teremos oportunidade de contacto! O meo msn : capulletto.juliette@hotmail.com, adiciona-me para conversarmos! Um beijo forte para ti!
Hi Rose! Thanks for the comment. I am in UK at the moment, we should meet up if you come here for a visit! It would be real lovely to meet someone who has been through what I have. Take care and Happy New Year!! xx
Olá!Também sou portuguesa. Tenho alopécia desde os 18 anos. Agora tenho 26 anos e também uso peruca. Deixo-te aqui o meu e-mail: paulinha_03@hotmail.com.
Bjs
Aww...thanks for the comment. You look great with or without hair! I'm a singer and painter. I've not picked up the brush in a while but I'm focusing more on my voice as the money maker. Hope all is well. God bless.
Hi Rose..I´m Karina from Argentina..I´m very depressed cause I don´t want to lose my hair..You are very pretty!! Can you tell me your experiences with wigs..how many hours do you wear...Is it comfortable..etc
Olá ! Sou do mesmo cantinho á beira-mar plantado e a minha carissima alopecia acompanha-me pra onde vou! Deixo o meu mail brunomrocha@hotmail.com. Abraço
Roger
I have a friend in here that also got alopecia. Shes from Porto.
Roger.
Dec 25, 2008
rj, Co-founder
Dec 25, 2008
Roger
Hope she will get in touch with you =) Its her sisters daughter that has alopecia.
Roger =)
Dec 26, 2008
Roger
Dec 26, 2008
Cheryl, Co-founder
Dec 27, 2008
LeslieAnn Butler
I love your music! I was in Portugal in 2001 and went to an outdoor jazz concert. I'll always remember it!
How are you today?
LeslieAnn
Dec 27, 2008
LeslieAnn Butler
Yes, I was in Lisbon! I stayed there a couple of nights, then went to that fab resort Reid's Palace on Madeira for a week.
I am fine -- wrote a book called "If Your Hair Falls Out, Keep Dancing!" and it is doing its job, helping women who have hair loss feel good about themselves.
Dec 28, 2008
Linda
Dec 28, 2008
Linda
Dec 29, 2008
claire
Dec 30, 2008
Roger
Happy New Year Comment Graphics
Comments & Glitter Graphics for Myspace, Hi5, Orkut, FriendsterDec 31, 2008
Helga tavares
Jan 1, 2009
nenad
Jan 4, 2009
Salmezan
Jan 7, 2009
Salmezan
Jan 7, 2009
Roger
Have you been able to get in touch with Helga from Porto yet?
Hugs, Roger.
Jan 11, 2009
Roger
Kisses.
Jan 15, 2009
Paula
Bjs
Jan 26, 2009
Leon Johnson
Jan 27, 2009
Ele
Siii! Estube in Lisbon but was too peqeña and not the truth and I agree! Jaja
We are very near!
Kisses and happy to meet you!
Jan 29, 2009
Henrik
I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D
Hugs / Henrik
Feb 9, 2009
JeffreySF
Jeffrey
Oct 12, 2009
Pedro Costa
Oct 13, 2009
Karina
Oct 26, 2009
Tony
Nov 8, 2009
Bruno Manuel Rocha
Sep 13, 2010