I'm trying to think of what to say about me. I'm not accustomed to talking about myself, so here goes:
I was diagnosed with cicatricial alopecia/lichen planopilaris in June of this year. I was prescribed Olux-E foam for the itching/pain which I am happy with at the moment. I was also prescribed Rogaine 5% which I am NOT happy with since the strong smell set off my asthma/allergies and it grew hair just about everywhere BUT my scalp. It cost me $75 to get my face waxed!! Bwahahahaaaa! I can laugh about it now, but maaaaannnnnnn three weeks ago I was highly annoyed.
Now, I'm just strategizing when to get out the headblade. My derm doesn't think I should do it since I still have plenty of thick hair on the back and sides, for the moment She actually suggested a perm. Yes, ya'll read it right, a PERM. I couldn't believe it either.
To me putting lye on my head so I can pull off a comb-over is out of the question, and I'm getting annoyed of hair being everywhere in the house.
So, the next logical** step for me is to get rid of it.
**I know, what's logic got to do with it, right? ;)
UPDATE: Got tired of the spots and shaved on 2/25/2011.
You're right, Ange.... now you're Out There, it's too late to go back! But at least you kept your eyes covered with the goggles, to spare us all the Evil Stare. Hey, maybe you've got a new form of alopecia.... it's not "scarring", it's "SCARING"! Eeek! Be afraid.... be very afraid.... ;)
Hi Angie How r u ..No I havnt found a wig we dont really have to much to choose from here in baytown. I ve seen that place Wig World its by the big lots I think Ive been wanting to go..let me know when ur going maybe I can meet you there ..I always go by my self and it would be nice to have someone to go with.. Hope to hear from you soon .
Hi Angie,
I had to take my son to the dr today by (Dome) lol and guess what I just had to stop at wig world! I have to say they are very nice there just like you said.And yes they have very nice wigs! I really liked them but yeah they are a little more pricier but they way I see it you get what you pay for right? I might try and buy a good one after the holidays ..
ok just wanted to stop by n let u know.. talk to u soon!
Hi Angie,
my sons ok so so far he had some kinda episode 3 weeks ago at school he was confused & disoreted n could remember things not even my name for a bit..we dont know why or what coulda happened they think maybe he had some kinda siezure or something so he had to get a eeg done..but wont know anything for a couple weeks..turkey what turky day! i hve to work! haha i hate it my job!!!! lol they want me to work the whole weekend? i was like wf i have the biggest famlit here n no days off!!! idj what ima do i may work thhrus just so i can get time & a half then quit on fri! haHA .say fried turket the remote & netflixsounds verrrrrrrry good to me!!!!!!!!
Thanks for your comment-you completely answered my questions and more. I may also refuse some forms of treatment if it becomes too costly or painful. I will be returning to the Derm on Monday and she noted she will suggest and perform some treatment to stimulate growth, but my main focus is to keep the hair that I have. I'm not really concerned about the hair that won't come out to play. Hopefully soon, I will post some pics. Your hair looks great. TTYL.
Thanks for the welcome to this site. It's actually a welcome back for me. I stepped away from this site and most things Alopecia about a year ago. I had to grieve the loss and regroup. I hope to inspire those who want to be inspired. And maybe in turn gain a little more altitude and a better attitude as I live life against the grain.
Thank you for the feedback Angie. I researched photographers and in my area it was slim pickin's. Kyle Ober was a perfect match for me. He captured me. I told him all about my recently losing my hair. He knew just what to do.
The Ange! 'Tis yourself!
Yeah, I'm fine, thanks - not been on here that much meself. Life is still unintentionally hilarious... a friend gave me some extra RAM for my computer a short while back, and as I was leaving, I said (without thinking) "Thanks for the memory".... *sigh* Sometimes I terrify myself.
How's you, anyway? Still the cynical, bitter, twisted old hag you always were? ... which is why I like you so much? :) xxx
Hey Angie
I hope you had a good flight home.
It was so wonderful seeing & meeting you at the conference you are a very special lady & once again I am so proud & pleased to not only call you friend but Alopecian Sister.
Take Care,
Love
Pam
Sep 7, 2010
Trina Berry
Oct 19, 2010
Julia
Oct 25, 2010
la licha
Oct 25, 2010
Michelle Chapman
Oct 26, 2010
Tallgirl
Nov 9, 2010
Tallgirl
Nov 11, 2010
Norm
Nov 11, 2010
Aliennation
Nov 11, 2010
C. Nicole
Nov 11, 2010
Cheryl, Co-founder
Nov 12, 2010
Cheryl, Co-founder
Nov 12, 2010
Aliennation
let me know if thats ok or we can do earlier ..
Nov 12, 2010
Diana Carter
Nov 13, 2010
MiNAH
Nov 15, 2010
la licha
Nov 16, 2010
Trina Berry
Nov 17, 2010
Aliennation
I had to take my son to the dr today by (Dome) lol and guess what I just had to stop at wig world! I have to say they are very nice there just like you said.And yes they have very nice wigs! I really liked them but yeah they are a little more pricier but they way I see it you get what you pay for right? I might try and buy a good one after the holidays ..
ok just wanted to stop by n let u know.. talk to u soon!
Nov 18, 2010
Aliennation
my sons ok so so far he had some kinda episode 3 weeks ago at school he was confused & disoreted n could remember things not even my name for a bit..we dont know why or what coulda happened they think maybe he had some kinda siezure or something so he had to get a eeg done..but wont know anything for a couple weeks..turkey what turky day! i hve to work! haha i hate it my job!!!! lol they want me to work the whole weekend? i was like wf i have the biggest famlit here n no days off!!! idj what ima do i may work thhrus just so i can get time & a half then quit on fri! haHA .say fried turket the remote & netflixsounds verrrrrrrry good to me!!!!!!!!
Nov 19, 2010
kastababy
Just working and studying...same old same old for me.
Happy New Year!!!
YoKasta
Jan 6, 2011
Linda
Jan 7, 2011
Tallgirl
Jan 20, 2011
Diana Carter
Feb 6, 2011
Tiffani
Tiffani
Feb 19, 2011
kastababy
Feb 21, 2011
Tallgirl
Feb 24, 2011
Reginia S.
Mar 10, 2011
Diana Carter
Mar 24, 2011
Lili Añel (aka Eulalia)
Apr 13, 2011
Sandra Dubose-Gibson
May 9, 2011
Norm
Yeah, I'm fine, thanks - not been on here that much meself. Life is still unintentionally hilarious... a friend gave me some extra RAM for my computer a short while back, and as I was leaving, I said (without thinking) "Thanks for the memory".... *sigh* Sometimes I terrify myself.
How's you, anyway? Still the cynical, bitter, twisted old hag you always were? ... which is why I like you so much? :) xxx
May 16, 2011
Pamela Rosse
I hope you had a good flight home.
It was so wonderful seeing & meeting you at the conference you are a very special lady & once again I am so proud & pleased to not only call you friend but Alopecian Sister.
Take Care,
Love
Pam
Jun 26, 2011