Maryanne

Female

South Hadley, MA

United States

Profile Information:

Relationship Status:
Single
About Me:
I've had Alopecia for about 20 years. For a long time I just went through the motions of life, knowing I had it but minimally dealing with it. Now, I'm working on personal acceptance, gaining confidence, and finally getting over it. I'm ready.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • kaye kirby

    welcome Maryanne

  • mmmm

    Hi Maryanne. I got very emotional as reading your comment. It's been one month since I left my husband who was and is drug addict / abusive. I have now waiting for the divorce procedure to be done. It's been such a tough month, but very happy to be away from him and be on my own. I'm having a problem with my daughter acting up and stuff, but I can deal with anything easily after being with him. Life is already so much better now than it was. I can really relate to you, and good to know that you do get happiness after all this even with alopecia. It has been up and down ever since I got alopecia. I do feel thankful that i got alopecia as much as I hate this decease, I would not be here if I did not get alopecia. Anyway, Thanks for the message. Merry christmas!

  • LeslieAnn Butler

    Hello and welcome, Maryanne!
    How are you doing today? I have AU, too.
    Leslie Ann

  • LeslieAnn Butler

    Hey! Let me know how you like the book, okay?
    Hugs in the meantime!
    Leslie Ann

  • mmmm

    happy new year to you too maryanne!

  • LeslieAnn Butler

    Hi Maryanne,
    I'm so happy you enjoy my book and have gotten a lot out of it! That's why I wrote it -- to help other women -- so hooray, and many blessings to you and the lady who gave you "If Your Hair Falls Out, Keep Dancing!"
    Hugs! Leslie Ann

  • mmmm

    Hi Maryann. Thanks for checking up on me! I've been doing much better than I thought I would. The battle with my ex is still ongoing, but kids are settled with our new life. Things are looking up for me and kids. I still have lots of down moment, but nothing compare to the time I spent with my ex! I am now used to looking at myself in the mirror, alopecia doesn't bother me too much.
    I hope your life is going good and you are enjoing the beautiful weather down there!

  • Emily

    Hi Maryanne,
    Thank you so much for responding. I am still learning how to navigate the site so bear with me. I have so much to say, I have never spoken to anyone with AU before. Gaining confidence is my most difficult struggle. My family is very supportive and I have a wonderful husband who thinks I am beautiful. You think that would be enough to make it ok...but it's not. I have overcome so many things in my lifetime, and I like to think that I am a strong person. I know I have to accept what I cannot change...somedays I just can't!
    Thanks again for offering yout time to talk to me, it is greatly appreciated. I hope you will tell me a little about yourself. Even though I am struggling too, maybe I can help you in some way.

  • Hanna

    Thanks for the message :)
    I think that the problem in Polans is that Alopecia is still not widely spoken of. I mean most people think I have cancer or leukaemia and when I explain what kind of disease it is they make big eyes because they've never heard of Alopecia.
    I still need to look around the site more before I join any groups but thanks for the info :)

  • Emily

    Hi Maryanne,
    So yesterday I had a complete melt down...I am sure you have had your share. The intimacy issues that my husband and I are having is breaking my heart. I want to be stronger for him and I try so hard to feel desirable and sexy. My poor husband is trying so hard, but I think I might be pushing him farther away. You said that getting older is becoming your ally. I wish that were true for me. I am really struggling with my self image. Does it seem like ordinary every day problems are intensified? Like our emotions are heightened and in overdrive? I over react ALOT and I want to stop, I just don't know how. Logic tells me I will be ok...why won't my mind believe it? Maybe I have been stuffing my feelings so long, and the mourning process is playing catch up. Any feedback would be great! Thank you again for your time and your friendship :)

  • Jessica

    Its been hard coming to terms with any of it. I have had to make myself. Between noticing the hair loss in the beginning the doctors appts and all the different treatments and medicines and knowing that there is no cure.....i have made my self accept that this is who i am now. its hard some days. glad i found this forum and i know that i am not alone

  • Emily