Emily

Female

Lancaster, CA

United States

Profile Information:

Relationship Status:
Married
About Me:
My name is Emily. I have had alopecia since I was 6. Today at age 41, I have alopecia universallis. I have spent my whole life trying to overcome the psychological affects of this disease, and I am weary. I am hoping that talking to someone who understands, will help me to find new ways of coping.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • LeslieAnn Butler

    Hey Emily!
    Let me know how you like "If Your Hair Falls Out, Keep Dancing!"
    That's great that you also are thinking about writing a book. It's wonderful to share experience and knowledge!
    Hugs, Leslie Ann

    Oct 2, 2012

  • Maryanne

    Hi, Emily

    Thanks for your message! No problem. I'm in grad school taking 3 courses and working full time so I know busy. :) I tell myself that I can control my part of how I look if I can control my weight so I'm concentrating on that now but I seem to be at a plateau. I need to lose about 60 lbs. to get to my pre-pregnancy weight. Some goal! It'll be interesting to see how I feel about myself than. Im sure, better anyway. How did you lose 80?

    We all have strength within us and it comes out when we most need it. I'm definitely a lot stronger than I was in those early years. I'm grateful for that and sometimes I even feel grateful for the Alopecia. Imagine that.

    Oct 6, 2012

  • S.Rebecca

    Hi Emily, Please know you are not alone by any means on this issue. As of about 4 months ago I am completely bald (happened gradually over 8 months or so.) I have also lost most of my body hair. I haven't been on any of these alopecia msg/chat sites, until now...I thought it was time to connect with those who know first hand. All the best to you!
    Ttyl,
    Susi

    Oct 18, 2012