Emily

Female

Lancaster, CA

United States

Profile Information:

Relationship Status
Married
About Me
My name is Emily. I have had alopecia since I was 6. Today at age 41, I have alopecia universallis. I have spent my whole life trying to overcome the psychological affects of this disease, and I am weary. I am hoping that talking to someone who understands, will help me to find new ways of coping.
Do you have alopecia? (Choose appropriately)
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • LeslieAnn Butler

    Hey Emily!
    Let me know how you like "If Your Hair Falls Out, Keep Dancing!"
    That's great that you also are thinking about writing a book. It's wonderful to share experience and knowledge!
    Hugs, Leslie Ann

    Oct 2, 2012

  • Maryanne

    Hi, Emily

    Thanks for your message! No problem. I'm in grad school taking 3 courses and working full time so I know busy. :) I tell myself that I can control my part of how I look if I can control my weight so I'm concentrating on that now but I seem to be at a plateau. I need to lose about 60 lbs. to get to my pre-pregnancy weight. Some goal! It'll be interesting to see how I feel about myself than. Im sure, better anyway. How did you lose 80?

    We all have strength within us and it comes out when we most need it. I'm definitely a lot stronger than I was in those early years. I'm grateful for that and sometimes I even feel grateful for the Alopecia. Imagine that.

    Oct 6, 2012

  • S.Rebecca

    Hi Emily, Please know you are not alone by any means on this issue. As of about 4 months ago I am completely bald (happened gradually over 8 months or so.) I have also lost most of my body hair. I haven't been on any of these alopecia msg/chat sites, until now...I thought it was time to connect with those who know first hand. All the best to you!
    Ttyl,
    Susi

    Oct 18, 2012