I'm 41 and live in Washington State. I have had some form of alopecia for the past 34 years or so, but have been AU for the last 7 years. I have been married for 17 years, and have 2 children ages 9 and 13.
I'm currently working on a book about alopecia - including inspirational stories, information about challenges and choices we all make, and where you are in life because of your alopecia. It's multi-faceted.
I'm looking to hear from all of you and your stories, and what you've done to move from diagnosis to acceptance. If you'd like to be part of the process, please friend me here on AW.
There was a meeting just last week, but it was very...small. I think it might be nice to just meet up socially for a meeting with the others who live in the area. Perhaps we could do that. It seems as if there about 4-5 of us on here from the area. I can give you the support group leader's e-mail if you would like.
Hey, girl! It was great meeting up with you here in Seattle. How was the meeting? Did you book the Louisville trip yet? Wondering if maybe we could try to book flights together. Please call whenever you are planning to be in the Seattle area, I'd love to meet up again.
Hey, I havent' booked yet. Planning to this week. Just finally decided to go for sure. I was thinking a red eye on Weds. but I am going t fly into Columbus Ohio and meet up with Cheryl Ann, and drive down (its cheaper, and I also have friends there), then back up on Tues, after staying in Kentucky an extra day to do a bourbon tour! Wanna join us?
hi deeann just thought ide stop in to say hi thanx for adding me as a friend like i said i am very new to this page and it is so great meeting new people who know about alopecia and know what its like. good luck on your book! hope you have an awesome weekend!
Deeann - howdy and thanks for giving a shout. How are things up in KSER country?
I see the show's conversation covering AA/AU itself, what it is/what it's not; what we know/don't know; your story (and any other guests we might have); Alopecia World itself; maybe be joined by a dermatologist and of course NBO and it's purpose/goal. It's strictly conversational; designed to let listeners in and not assume they're already familiar with the topic.
Another bit of disclosure, btw; as you've read, I don't have alopecia - but I have in fact been shaving my head for 16 years now - in case such puts you ill at ease.
Hi Deeann... tripped'n fell crossin' the street today... 3 stitches in my elbow, a splint on my left wrist and a broken left big toe... needless to say, I'm takin' a couple o'days off - including the show.
In a way, that's good; I'd prefer a more planned out show as opposed to working against deadline.
hey thanks for the add. i was just wondering what part of seattle you live in? I have never met another person with alopecia. I live in North Seattlle.
Hi Deeann--thank you for your warm welcome! It would be nice to meet someone else who has dealt with alopecia for years.....I work full time but could meet around that, maybe Everett? I don't know Mount Vernon that well.
Hi Deeann,
How are things in Mt Vernon? Got some new head coverings this
week so am experimenting with not wearing my wigs all the time-- with
mixed success. I have some days off in the next month. Would you like to try and meet?
I'm sorry I didnt recognize you. How are you?
I've got several Blogs on my page. Maybe they will give you some ideas for your writing.
Do you think you will be going to NAAF this year?
Hi Deeann,
I wil send an email to you as well. Next week I have Tuesday off, and then
the weekend. Let me know what might work for you. I am excited to
meet someone else with alopecia. Take care!
Thanks for the comment.... it really means alot. I tried to get in touch with Evie and mom... but I still haven't heard anything from them. I would really like to meet up with them sometime!
Hi Deeann, Nice to hear from you :) I was sorry to miss the get together last weekend but hope you and everyone else had a good time. I have been really busy lately but Im hoping to make the next one. How are things going for you?
I haven't been to a NAAF conference in yrs but I remember it was a lot of fun and great to meet so many new people...especially if you have never met anyone else with alopecia. Im sure you have quite a few friends going so you must be looking forward to it. I have been working a lot of overtime but finally having a relaxing night :)
Yes, I can't wait to talk to you. It feels good to be on the happy side of Alopecia. I wish I could attend the conference, just couldn't fit it in my budget.
No, I have never attended any of the conferences. I am only 25 mins from DC, so I may just pop up and see who I can meet. It would be nice to meet other women to share our experiences.
My nails are actually growing back thanks to the vitamin D my doctor prescribed for me. It's just not producing any hair growth like I had wished.
Deeann
Mar 15, 2008
kastababy
Mar 16, 2008
Suzanne Thompson
Apr 10, 2008
Suzanne Thompson
May 12, 2008
LeslieAnn Butler
Just thought I'd say hello, being a fellow Northwesterner. I live in Portland and I've had AU for 20 years.
LeslieAnn
May 27, 2008
Sara
Jun 9, 2008
Deeann
Jun 9, 2008
LeslieAnn Butler
Jun 9, 2008
Deeann
Jun 9, 2008
Roger
Hope to see you in Louisville.
Roger.
Jun 9, 2008
Roger
Yes, I only heard good things about the conference.
Roger.
Jun 10, 2008
Deeann
Jul 17, 2008
Alex
Nov 26, 2008
janice lightsey
May 22, 2009
John Ford
I see the show's conversation covering AA/AU itself, what it is/what it's not; what we know/don't know; your story (and any other guests we might have); Alopecia World itself; maybe be joined by a dermatologist and of course NBO and it's purpose/goal. It's strictly conversational; designed to let listeners in and not assume they're already familiar with the topic.
Another bit of disclosure, btw; as you've read, I don't have alopecia - but I have in fact been shaving my head for 16 years now - in case such puts you ill at ease.
hope that makes sense,
John
Jul 9, 2009
John Ford
Jul 10, 2009
John Ford
In a way, that's good; I'd prefer a more planned out show as opposed to working against deadline.
As ever drop a line when the mood suits...
be well,
John
Jul 13, 2009
Tracy and Amanda
How are you?
Tracy
Sep 8, 2009
Lauren Simpson
Lauren
Dec 7, 2009
Lauren Simpson
Dec 8, 2009
Lauren Simpson
Dec 10, 2009
Annette Thompson
Jan 19, 2010
Annette Thompson
How are things in Mt Vernon? Got some new head coverings this
week so am experimenting with not wearing my wigs all the time-- with
mixed success. I have some days off in the next month. Would you like to try and meet?
Jan 24, 2010
JeffreySF
Hows the book coming along?
I'd love to tell a story or two!
Jeffrey
Jan 24, 2010
JeffreySF
I'm sorry I didnt recognize you. How are you?
I've got several Blogs on my page. Maybe they will give you some ideas for your writing.
Do you think you will be going to NAAF this year?
Hugz,
Jeffrey
Jan 25, 2010
Annette Thompson
I wil send an email to you as well. Next week I have Tuesday off, and then
the weekend. Let me know what might work for you. I am excited to
meet someone else with alopecia. Take care!
Jan 28, 2010
Scaredandhopeful
May 22, 2010
Jules1984
Jul 4, 2011
Julia
Aug 20, 2011
ANVan
Hi Deeann, Nice to hear from you :) I was sorry to miss the get together last weekend but hope you and everyone else had a good time. I have been really busy lately but Im hoping to make the next one. How are things going for you?
Jul 10, 2012
ANVan
I haven't been to a NAAF conference in yrs but I remember it was a lot of fun and great to meet so many new people...especially if you have never met anyone else with alopecia. Im sure you have quite a few friends going so you must be looking forward to it. I have been working a lot of overtime but finally having a relaxing night :)
Jul 12, 2012
Nicole
Hi Deeann! I just read your message about you writing a book on Alopecia. I would love to share my story.
Jul 13, 2012
Nicole
Yes, I can't wait to talk to you. It feels good to be on the happy side of Alopecia. I wish I could attend the conference, just couldn't fit it in my budget.
Jul 13, 2012
Nicole
I will send you my personal info via email.
No, I have never attended any of the conferences. I am only 25 mins from DC, so I may just pop up and see who I can meet. It would be nice to meet other women to share our experiences.
My nails are actually growing back thanks to the vitamin D my doctor prescribed for me. It's just not producing any hair growth like I had wished.
Jul 13, 2012
Nicole
That sounds great! I just sent you an email.
Jul 13, 2012
velvet
hey thanks for joining my group hope u find it useful xx
Jul 13, 2012
Silk
Hi Deeann, thanks for the friend request. you can contact importance_ofhair@hotmail.com
Jul 17, 2012
Hilary
Jul 19, 2012
jenx
Hi,
I'm new but if I can answer any questions or participate in any ways...I would be glad to.
Jul 22, 2012
Tracey
Mar 14, 2013
JeffreySF
Hi Deanne,
Thanks for the add.
Jeff
Oct 17, 2013