I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.
Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon
"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..
"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."
Hello Leslie, Thanks a lot for your concern. I am struggling with thinning hair and doing a treatment actually (just wrote it down on my blog). Would love to have your advice. Thanks
Luv
Hello Leslie, thank you for the welcome in. My daughter lives in another state then myself but on her behalf would like to offer the same sentiment. She doesn't know I am on this site. I think it would help for her to know she's not alone. Although my hair is fine and thin, her's seems to be extremely thinning on top with a great amount of scalp showing. Hopefully I can ease her into reading some of the stories on here. I'm sure they would be of great comfort to her. BTW, loved your pictures and I'm definitely going to pick up your book.
Hi Leslie, thank you for your welcome. I've had AU for almost 3 years now and I'm still struggling with it all. Eyebrow and eyelashes are the worst..I just saw you had a book out? I'll definitely look into that...
Hi Leslie, I am going to keep dancing. Thanks for the welcome. I will get the book. Looks like a great resource. Attending my first support group meeting this weekend. So glad to find others and connect. Lynn
Hi LeslieAnn, thank you for asking and for your welcoming. My AA started in July and has been accelerating during the last three or four weeks. I didn't expect it to be so hard! Sometimes I'm overwhelmed with shock and panic, and a feeling of being completely alone - this is all new to me and no-one I know has gone through the same thing. I'm really glad that I have an inspiring work, lovely colleagues, and a loving family. Without all that I'm afraid I'd lost my mind... Ironically, my self esteem has always been strongly connected with my looks. Along with all these negative feelings, the rapid hair loss sometimes gives me a feeling of relief, as if life wanted to teach me something new:) Anyway, I look forward to reading others' stories here. Together we're not alone! And I'm getting a copy of your book. Yours sincerely, Sandra
Hey, thanks for the welcome I appreciate it! I'm doing good, I Have Lupus. I am very new to sight. Have not explore it as yet. I notice you've written a book, that's great! Keep it up :)I plan to purchase the book. thanks again for your warm welcome.
Thanks for reaching out. I was happy to see that you've written a book about your experience with alopecia. I'm doing the same. I actually just kicked of a Kickstarter campaign in order raise funds to complete and publish the book. Please check it out to learn more about it. http://livluhvrahyt.com/2013/01/17/memoirs-of-a-bald-bride-the-bald...
thanks for the welcome!! M good !! Looking forward to buy something which will work out for me..I guess am ready now...looking forward to read your book. Nice to know I am not alone.
Thanks for the welcome! I was happy to see that you've written a book about your experience with alopecia. I am good, and you ?:)
I have a beautiful winter morning ;))
Julita
My son and I are doing well. hope you are too. Congratulations on your new book. Its great to raise awareness out there. alot of people don't know much about Alopacia. My son is too young to understand. he is getting treatment for it and being seen every couple of months. they have put him on a waiting for DCP treatment but i am hesitant from what i read the symptoms can be. i don't want him to go through any pain and it sounds like this kind of treatment can be painful. I guess we will wait and see when the time comes.
Hi LeslieAnn, Thank you for reaching out to me. I was diagnosed with lichen planopilaris - frontal fibrosing alopecia back in July - I think I have had it for a while though. I will check out your book. Lorna
Hi LeslieAnn! I am doing very good. Thank you for asking. How about yourself? I was just reading your info I think I will have to get your book for my 16 year old to read. :)I think it would benefit her. We started CAP Kids WI here is Wisconsin so that we can help others feel comfortable in there own skin and raise awareness. The support we are finding at the school is amazing!
Hi LeslieAnn... Thank you so much for reaching out to me ! I love your photos. Your hair is absolutely beautiful. If that is a wig, I would never know it. I've never been on a blog before. I am trying to stay positive and be proactive with my hair loss but I have my rough moments. I will be 50 in June. I've had diffuse thinning with dryness for at least 5yrs. It is more so on the top and sides. Hard because I've always worn pretty full bangs. In a nutshell, I used to get hairs tied in. This got quite expensive and wasn't doing the trick anymore. A few years ago, I discovered human hair clip on bangs with fringe on the side. I preferred the ones that i ordered through my hair stylist. I try to style my hair so that it is not noticeable. This is becoming harder as my hair continues to thin. I am starting to consider alternatives and eventually can see myself getting a full wig. I think I've gone as far as i can with my current hair stylist. I'm confused and a little scared as i know nothing about wigs and want it to look natural. Honestly, my hair situation is quite upsetting to me but i try not to dwell on it. And it takes a while to style in the morning and still not to satisfied with it. Sorry this is kind of long. I don't want to just order a wig. I would like more guidance from someone on how to go about it. I live in NJ. I am so glad I found this site. Gives me hope and seeing your photos gives me even more hope. Thanks again. I think I can learn a lot from this site if I go the the right places. Maryellen
As soon as I get the book and read through it, I'll let you know my thoughts on it. I'm sure I'll find your book very helpful and inspirational. I do not have any HH wigs as of yet. So far, I really like the feel and look of the Rene of Paris, Noriko and Amore wigs and they seem to fit my lifestyle just fine. Like you said, the HH wigs do require more upkeep and work than the synthetics. Plus they don't come in as wide of a variety of colors as the synthetics do so you have to take them to a hairstylist for coloring, which means more money. Probably beyond what my budget will allow.
Hi Leslie. Doing better. Got a topper I like so far. I loved your book. I pick it up sometimes when I'm having a bad day. Thanks for writing such an informative and inspirational book.
HI Leslie Ann- Thank you for welcoming me in. I have been a part of NAAF for quite a few years and recently discovered this website. Yes, I have had alopecia now for 11 years or so. Comes and goes. Has definitely gotten worse as I've gotten older. I will take a look at you rbook when I get a chance. Amy
Hi LeslieAnn Thank you for asking about me today! Things still seem pretty bleak. Really struggling. So hard to face myself in the mirror each morning when you know whats coming. Another sink full of hair to be discarded. Another day of looking at the stranger I'm becoming. Tried a wig shop about a month ago hoping to regain some thin shred of self esteem. It was pretty awful. Can't seem to find a salon in my area that really cares about helping me look my best and feel better about my situation. So, I still stay home most of the time.
Enough about me. How are you? Loved viewing your pictures. They are just beautiful! You are obviously a strong and happy woman. What I wouldn't give for a dose of that :)
Thank you Leslie for the info. Looks awesome. Can you please share specifics of what Brenda made for you over the years? Hand tied? is it a french top etc? Thanks so much!
Hi LeslieAnn! Thanks for welcoming me. I'm fine thanks. On my last week of work before 4 weeks vacation! I will enjoy. Nice summer weather here in Sweden right now which I hope stays for some weeks.
I'm quite new to this forum, but I think I will try around and see how it works. It is nice to "meet" other alopecia person around the world. Makes you realise you are not alone..
Saw you wrote a book, how interesting! I'm going to check it out.
Cheers,
Lotta
My hair is getting thinner, especially in the past 3 months. I have very low iron and wonder if that's what's causing it? I feel scared and frustrated.
I have a Dr. appointment next week. Thank you. I feel much better today :) I'm so glad to be able to check in with you and others on this site. Thanks for being my little angels.
Hi Leslie! I am doing well. Thank you for asking. I read your profile and almost feel over laughing at your friend that was in the car accident. I am glad that nothing serious happen to her but the reason it made me laugh the same thing happen to me years ago when I was in a car accident. I went one direction and the wig another direction! LOL! I can laugh about it today, but at the time because I was so concerned about people coming up to the car to help and see my bald head that I hadn't noticed my knee cap was busted up.(that's the sad part I was in so much pain but all I wanted was to find my wig. My eyes are tearing now. My life had been spared and all I was concerned about was how I looked. My heart was still in pain back then because of my alopecia. I feel so much better now and have adapted to living with it. Here it is years later and I find this site with people like me. I am glad you introduced yourself to me and let me know about your book.
Hi LeslieAnn, thanks for your welcome. I'm excited to read that you are an author and have written a book on alopecia. I am also a writer and am writing fiction books about kids dealing with alopecia. I have had alopecia all of my life and i'd love to be able to encourage other who have it as well as help people who don't to understand it. Hope you are having a good weekend. We're celebrating Father's Day here in Australia. My two small boys and I had fun making the day special for my husband.
Thank you for your welcome.I hardly visit the site & by looking at your blog it is lovely to see supportive people like you in this world.Kind regards Maria Sydney Australia.
I am new to alopecia and felt very alone. I am reading your book now and love it. This website and your book has helped so much. It has been about a year now and now I realize not only am I not alone but that I can accept everything and it will be alright.
Hi- Thanks for the welcome. I am doing well but starting to get antsy about using steroid injections. Have had them every 6 weeks or so for the last 5 years. But just got a diagnosis of osteopenia and I wonder if they could be related. I am sure it can't help. I am 51, but my 75 year old mom has good bone scans.
Hello Leslie Ann! Thank you for your kind welcome it is greatly appreciated! My daughter had a dermatologist appt today and received steroid injections in her scalp ( this is always hard for me to watch). We are hopeful today as we have some new things to try! How are you doing?
Megan Bry
Thank you for the welcome! I am doing wonderful today, thank you for asking (: I think that your book is SPECTACULAR and absolutely inspirational. <3
Oct 18, 2012
LUV
Hello Leslie,
Thanks a lot for your concern. I am struggling with thinning hair and doing a treatment actually (just wrote it down on my blog). Would love to have your advice.
Thanks
Luv
Nov 7, 2012
aloner
Hello Leslie, thank you for the welcome in. My daughter lives in another state then myself but on her behalf would like to offer the same sentiment. She doesn't know I am on this site. I think it would help for her to know she's not alone. Although my hair is fine and thin, her's seems to be extremely thinning on top with a great amount of scalp showing. Hopefully I can ease her into reading some of the stories on here. I'm sure they would be of great comfort to her. BTW, loved your pictures and I'm definitely going to pick up your book.
Nov 28, 2012
Angie
Nov 28, 2012
Lynn
Hi Leslie,
I am going to keep dancing. Thanks for the welcome. I will get the book. Looks like a great resource. Attending my first support group meeting this weekend. So glad to find others and connect. Lynn
Nov 29, 2012
Dena
Thank you for the warm welcome. My 6 year old daughter who has AA is a dancer. She loves the name of your book. Happy holidays. Dena
Dec 13, 2012
Sandra
Hi LeslieAnn, thank you for asking and for your welcoming. My AA started in July and has been accelerating during the last three or four weeks. I didn't expect it to be so hard! Sometimes I'm overwhelmed with shock and panic, and a feeling of being completely alone - this is all new to me and no-one I know has gone through the same thing. I'm really glad that I have an inspiring work, lovely colleagues, and a loving family. Without all that I'm afraid I'd lost my mind... Ironically, my self esteem has always been strongly connected with my looks. Along with all these negative feelings, the rapid hair loss sometimes gives me a feeling of relief, as if life wanted to teach me something new:) Anyway, I look forward to reading others' stories here. Together we're not alone! And I'm getting a copy of your book. Yours sincerely, Sandra
Dec 14, 2012
SaraVictoria
Thanks for the welcome :) I have your book, it's been so helpful, you're a big inspiration to me!
Dec 15, 2012
sam
Dec 17, 2012
Isabella
I am good :) I've read your book, it was very inspirational to me, thank you
Jan 4, 2013
marcia
Hey, thanks for the welcome I appreciate it! I'm doing good, I Have Lupus. I am very new to sight. Have not explore it as yet. I notice you've written a book, that's great! Keep it up :)I plan to purchase the book. thanks again for your warm welcome.
Jan 5, 2013
Rosanna
Hi LeslieAnn,
Thanks for reaching out. I was happy to see that you've written a book about your experience with alopecia. I'm doing the same. I actually just kicked of a Kickstarter campaign in order raise funds to complete and publish the book. Please check it out to learn more about it. http://livluhvrahyt.com/2013/01/17/memoirs-of-a-bald-bride-the-bald...
Hope to hear from you!
Best,
Rosanna
Jan 20, 2013
Gerina
Hi LeslieAnn! How are you? I've read your book, thanks for writing it :)
Jan 27, 2013
Suzie
I'm fine thanks, having a great day....just seen that you have wrote a book, fantastic I will check it out xx
Jan 31, 2013
ruth
thanks for the welcome has been easier to deal with the alopecia since i found this site n become a member ur book sounds great would love to read
Feb 2, 2013
lenna
thanks for the welcome!! M good !! Looking forward to buy something which will work out for me..I guess am ready now...looking forward to read your book. Nice to know I am not alone.
Feb 5, 2013
Nani
Thanks for the Welcome! I just bought your book and can't wait to get and read it. The reviews sound wonderful.
I'm coping since I've only been diagnosed a month and only noticed it 2 weeks before that. Life is differnt thats for sure!
Feb 5, 2013
cv28
Thanks for the welcome!! Congrats on your book..would love to read it..Good to see such a nice support here.Wish you a wonderful time!!
Feb 8, 2013
Julita
Thanks for the welcome!
I was happy to see that you've written a book about your experience with alopecia.
I am good, and you ?:)
I have a beautiful winter morning ;))
Julita
Feb 11, 2013
Beatriz Santos
Hey Leslie! I'm great, thanks for asking.
How are you?
I was looking for books about alopecia last week and found yours. Can't wait to read it!
Feb 11, 2013
Josie
hi LeslieAnn,
My son and I are doing well. hope you are too. Congratulations on your new book. Its great to raise awareness out there. alot of people don't know much about Alopacia. My son is too young to understand. he is getting treatment for it and being seen every couple of months. they have put him on a waiting for DCP treatment but i am hesitant from what i read the symptoms can be. i don't want him to go through any pain and it sounds like this kind of treatment can be painful. I guess we will wait and see when the time comes.
Feb 11, 2013
Lorn. New York, USA
Hi LeslieAnn,
Thank you for reaching out to me. I was diagnosed with lichen planopilaris - frontal fibrosing alopecia back in July - I think I have had it for a while though. I will check out your book. Lorna
Feb 11, 2013
Melissa Hill
Hi LeslieAnn! I am doing very good. Thank you for asking. How about yourself? I was just reading your info I think I will have to get your book for my 16 year old to read. :)I think it would benefit her. We started CAP Kids WI here is Wisconsin so that we can help others feel comfortable in there own skin and raise awareness. The support we are finding at the school is amazing!
Feb 12, 2013
maryellen
Hi LeslieAnn... Thank you so much for reaching out to me ! I love your photos. Your hair is absolutely beautiful. If that is a wig, I would never know it. I've never been on a blog before. I am trying to stay positive and be proactive with my hair loss but I have my rough moments. I will be 50 in June. I've had diffuse thinning with dryness for at least 5yrs. It is more so on the top and sides. Hard because I've always worn pretty full bangs. In a nutshell, I used to get hairs tied in. This got quite expensive and wasn't doing the trick anymore. A few years ago, I discovered human hair clip on bangs with fringe on the side. I preferred the ones that i ordered through my hair stylist. I try to style my hair so that it is not noticeable. This is becoming harder as my hair continues to thin. I am starting to consider alternatives and eventually can see myself getting a full wig. I think I've gone as far as i can with my current hair stylist. I'm confused and a little scared as i know nothing about wigs and want it to look natural. Honestly, my hair situation is quite upsetting to me but i try not to dwell on it. And it takes a while to style in the morning and still not to satisfied with it. Sorry this is kind of long. I don't want to just order a wig. I would like more guidance from someone on how to go about it. I live in NJ. I am so glad I found this site. Gives me hope and seeing your photos gives me even more hope. Thanks again. I think I can learn a lot from this site if I go the the right places. Maryellen
Feb 14, 2013
Laurie Rubin
As soon as I get the book and read through it, I'll let you know my thoughts on it. I'm sure I'll find your book very helpful and inspirational. I do not have any HH wigs as of yet. So far, I really like the feel and look of the Rene of Paris, Noriko and Amore wigs and they seem to fit my lifestyle just fine. Like you said, the HH wigs do require more upkeep and work than the synthetics. Plus they don't come in as wide of a variety of colors as the synthetics do so you have to take them to a hairstylist for coloring, which means more money. Probably beyond what my budget will allow.
Feb 15, 2013
Rose
i missed the part about your book. sounds wonderful. going to order a copy right now. all your photos... BEEEYOUTEEFULL !!
Mar 18, 2013
Rose
thank you for the tip on a local wig person here in Portlan. Branda Kay. does she sell wigs? cut wigs? both?
Mar 18, 2013
Miss Texas
Mar 22, 2013
Sara
Hi! My daughter is hanging in there. It's not easy that's for sure. Looking forward to reading your book. Have a good day!
Mar 26, 2013
amym
HI Leslie Ann- Thank you for welcoming me in. I have been a part of NAAF for quite a few years and recently discovered this website. Yes, I have had alopecia now for 11 years or so. Comes and goes. Has definitely gotten worse as I've gotten older. I will take a look at you rbook when I get a chance.
Amy
Mar 27, 2013
just my style
Hi LeslieAnn
Thank you for asking about me today! Things still seem pretty bleak. Really struggling. So hard to face myself in the mirror each morning when you know whats coming. Another sink full of hair to be discarded. Another day of looking at the stranger I'm becoming. Tried a wig shop about a month ago hoping to regain some thin shred of self esteem. It was pretty awful. Can't seem to find a salon in my area that really cares about helping me look my best and feel better about my situation. So, I still stay home most of the time.
Enough about me. How are you? Loved viewing your pictures. They are just beautiful! You are obviously a strong and happy woman. What I wouldn't give for a dose of that :)
Thanks again and take care!
Just My Style
Apr 30, 2013
Sweetlady
Hi - thank you for the welcome. I have read your book - it was very helpful - so glad you wrote it and are helping the aa awareness!
May 1, 2013
Bananarama
Hello! Thanks for your note. Your book sounds really interesting and helpful. :)
May 2, 2013
Mia
Hi LeslieAnn! I have just joined alopeciaworld and I will definitely read you book!
May 12, 2013
countryqt
May 22, 2013
glowgirl
Thank you Leslie for the info. Looks awesome. Can you please share specifics of what Brenda made for you over the years? Hand tied? is it a french top etc? Thanks so much!
Jul 21, 2013
Lotta
Hi LeslieAnn!
Thanks for welcoming me.
I'm fine thanks. On my last week of work before 4 weeks vacation! I will enjoy. Nice summer weather here in Sweden right now which I hope stays for some weeks.
I'm quite new to this forum, but I think I will try around and see how it works. It is nice to "meet" other alopecia person around the world. Makes you realise you are not alone..
Saw you wrote a book, how interesting! I'm going to check it out.
Cheers,
Lotta
Jul 22, 2013
glowgirl
Thanks so much for Brenda's info. Much Apprecisted!
Jul 23, 2013
glowgirl
Hi Leslie Ann- Spoke with Brenda and she was so helpful. Sending pix to her now. How does the cap stay on? Looks so comfy!
Aug 11, 2013
youarebeautiful
Thank you. Thank you. Thank you.!!!!!
My hair is getting thinner, especially in the past 3 months. I have very low iron and wonder if that's what's causing it? I feel scared and frustrated.
http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin...
Aug 21, 2013
youarebeautiful
I admire your confidence. Thank you for your audio interview which was very encouraging.
http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin...
Aug 21, 2013
youarebeautiful
I have a Dr. appointment next week. Thank you. I feel much better today :) I'm so glad to be able to check in with you and others on this site. Thanks for being my little angels.
Aug 21, 2013
Lady Tee
Hi Leslie! I am doing well. Thank you for asking. I read your profile and almost feel over laughing at your friend that was in the car accident. I am glad that nothing serious happen to her but the reason it made me laugh the same thing happen to me years ago when I was in a car accident. I went one direction and the wig another direction! LOL! I can laugh about it today, but at the time because I was so concerned about people coming up to the car to help and see my bald head that I hadn't noticed my knee cap was busted up.(that's the sad part I was in so much pain but all I wanted was to find my wig. My eyes are tearing now. My life had been spared and all I was concerned about was how I looked. My heart was still in pain back then because of my alopecia. I feel so much better now and have adapted to living with it. Here it is years later and I find this site with people like me. I am glad you introduced yourself to me and let me know about your book.
Aug 29, 2013
Linsey
Hi LeslieAnn, thanks for your welcome. I'm excited to read that you are an author and have written a book on alopecia. I am also a writer and am writing fiction books about kids dealing with alopecia. I have had alopecia all of my life and i'd love to be able to encourage other who have it as well as help people who don't to understand it.
Hope you are having a good weekend. We're celebrating Father's Day here in Australia. My two small boys and I had fun making the day special for my husband.
Sep 1, 2013
maria marks
Thank you for your welcome.I hardly visit the site & by looking at your blog it is lovely to see supportive people like you in this world.Kind regards Maria Sydney Australia.
Sep 20, 2013
Cheryl, Co-founder
Oh, We don't know. But hopefully one day we can meet!
Oct 25, 2013
carol
I am new to alopecia and felt very alone. I am reading your book now and love it. This website and your book has helped so much. It has been about a year now and now I realize not only am I not alone but that I can accept everything and it will be alright.
Oct 29, 2013
readwrite62
Hi- Thanks for the welcome. I am doing well but starting to get antsy about using steroid injections. Have had them every 6 weeks or so for the last 5 years. But just got a diagnosis of osteopenia and I wonder if they could be related. I am sure it can't help. I am 51, but my 75 year old mom has good bone scans.
Oct 30, 2013
readwrite62
Thanks for the response. The shots work for me in some areas and not others- but they sure don't stop the formation of new bare spots.
Oct 30, 2013
Michelle
Oct 30, 2013