Hi Leslie Ann, many thanks for the welcome, it's very much appreciated.  I'm knew to this site, and to alopecia (3/4 of a year now, aa slowly turning into totalis...... I noticed that I had lost my nasal hair the other day, which for some reason made me chuckle).... such a silly illness.

Sadly I live in Iraq, so don't have the ability to buy your book just now.  But I will definitely get it when I'm next back in England.

Again thanks for reaching out, very nice of you.

Thanks for contacting me Leslie.

 Are you wearing a wig, if so you look wonderful.

Where did you buy it if it is a wig.

Eileen

     Good Morning to you, I am extremely glad to make your acquaintance. Wow, who knew this site was out there. I'm very happy to have found it, and so far into my journey with Alopecia even. I'm going to Amazon now and buy your book, look forward to the read.It's officially Spring break after today so I'll have time to enjoy the book. I do find myself having Alopecia. I was seventeen when I was first diagnosed its been about twenty years now, and I'd say around ten of those with universals. I am an extremely positive gal who is a university student and a mother of four. My hope is to get to assist others while they walk through the emotional impact of our disorder when I earn my degree. I wear hair pieces and that is an ever evolving aspect of my situation. I love to learn of new companies and products. It's funny I have always been obsessed with hair so I guess in that aspect nothing has really changed. Enjoy the warm sun today!

Hi and Thank you for the welcome, not sure how I am to angry to know. My heart is broken and all I think about is what is in store for my beautiful 7 yr old granddaughter. Kids are so cruel to one another and that is my fear, how she will be treated. She still has hair on her head, yet there are a lot of bold spots and it is getting harder to cover them up. She is beautiful and always will be nothing will change that . Is there research going on for this? Is there anything out there that has made a difference in the hair loss? So many questions and no answers right now, need more information, yet what I know is not looking good. Help is what I need to help my daughter and granddaughter. Thank You Katharine.

Hi Leslie Ann,  Well, I'm up and down.  I think I'm up if I just don't think about it and then down....and overwhelmed when I do.  Also, on my mind is the fact that the dermatologist took a biopsy off the top of my nose and on my chest and did not like the look at all of the possible skin cancer on my nose.  Great.  But, on a brighter note I was having a big pity party yesterday when I went to respond to you and saw a comment from a grandma who was so said her sweet 7 year old grand daughter was losing all her hair....that put me back into reality.  I just don't know anything about FFA at ALL!  My doctor prescribed clobetasol to apply twice daily around hair line.  I don't even know what else to do!!  Ugh.  I am thinking should I go gluten-free because of the auto-immune connection?? But right now I don't want to--I am a serious cook and foodie and that would really piss me off!!  I guess I better start my researching..... Thanks for caring :)

wow! i am impressed by your courage and ability to "keep on dancing". i am definatly downloading your book. i have a hard time dealing with my alopecia and i have so many mixed feelings about accepting that its part of my life. i want to get involved but i dont know how or what i could do to make a difference in the alopecia world...any ideas?

Hi LeslieAnn, I just finished reading your book and wanted to say...THANK YOU SO MUCH for writing this book! There are no words to tell you how much it has helped me!! You are such an inspiration to me and your book has given me so much hope!!! Thank you from the bottom of my heart! <3 Sonya 

Hi - thanks for your comment. My daughter is having her worst ever bout of AA at the moment. :( Your book sounds inspiring - am going to check it out! Thanks! 

Hi Leslie Ann,

Thanks for the welcome!   I was just reading all the wall comments; and realized I'm not the only person in the world experiencing hair loss!!  I will definitely be looking for your book!  Thanks:)

Hello, Leslie - thanks for the welcome! I'm Lori - also known as Mimi, to my granddaughter  :-) She is 5 years old, and was recently diagnosed. Found Alopecia World while searching for a support group...

Hi LeslieAnn,

Thought I would pop in for a second to say hello to you.

How are things with you?

All is good here with me.

Hugz!

Jeff

Hey, bedankt om mij toe te voegen Leslie Ann, ik heb mij altijd alleen gevoeld met mijn probleem te ontdekken dat er nog andere mensen zijn met hetzelfde sterkt mij...

Hi,

Thank you for the warm welcome! I've been dealing with Alopecia for approximately 5 years. I currently wear lace wigs. However, I am a little down at times when I look at myself but I just supress the emotions  and keep movig. I really appreciate this website because it lets me know I'm not alone!

Connie

Hi LeslieAnn,  Thanks for welcoming me.  I am losing my hair around the hairline as well as my eyebrows for the last 5 years.  My daughter has AA since she was very young.   She is a great example for me and I will appreciate all that can be learned on this sight as well as your book.  Hope your day has been lovely!

Hello LeslieAnn. Kind of you to take the time to welcome me to this site.  Yes, a lot has happened to me over the last 2 years.  I am totally in the dark as to how my condition will progress but I keep busy, have a positive mental attitude, hate the thought of losing my hair, as it's part of my identity, ( I have long hair), and am trying to find out as much as I can as to what I can do, if anything to try and stop it!!!!! (or am I just being too optimistic)!!

So far I have asked to speak to a specialist who can hopefully give me some more information as there are so many things I would like to know, but the appointment has not yet come through, so who knows how long it will take.

It's great to have a web site like this where  I can get some answers  and

advice when I need it.  Can you let me know what your book is?  Take care, and many thanks.

Hi Lesley Ann, thanks for welcoming me to the alopaecia site. Loneliness is a side effect of hair-loss especially for someone like me who has few family, so very grateful to network with any others in samesituation.

Today is my appointment at a hair salon who are hopefully going to provide a wig paid for by the NHS. This has taken a few years and is the best (only)  thing available from my doctor. This site has helped me already as has added to my research , I shall go to the

appointment better informed but very nervous. Self-esteem is zero, can only get better !

I am still very tender about the whole business, I don't have high self esteem and this after few months of bad stuff seems so unfair! I have been working on my issues and was feeling good about the future as an artist, blogger and mum without the responsibilities, my nest is empty!  You angels at AW seems so lovely and beautiful I am not sure where to begin ... I am not ready for a wig yet... I love scarves and hats so I will stick with those for the time being. ... not ready to come out as I am not pleased with whats happening so I am afraid that will do more harm than good even my husband and children have not seen the result of the last 2 weeks it is horrible I weep to think of it ... Thanks for your kind words and welcome Helen

Hi LeslieAnn,

I'm sorry that was my mistake. I will be ordering your book!

Susan

Thank you for your warm welcome!  I look forward to reading your book!  My 8 year old daughter just started wearing a hat today to cover her spots, but before was just creatively wearing bows, barettes, and always adjusting/repositioning her remaining hair, etc. She just had scalp injections a few days ago, and don't know how effective it will be. Creams did not help.  Do you have suggestions about the best sites to go to for children wigs, thoughts for swimming, scalp coverings, other useful products etc.  She did lose part of her eyebrow and used my eyeliner pencil to color it in!  I am bracing for her to develop the universalis form as she is already without arm or leg hair.  Any thoughts on products, coping mechanisms for her, how a parent could best help her (things to say, do, etc) having been through it yourself?  Any input is so appreciated.  Thank you!  Patty

Thank you Leslie! I am looking forward to reading your book and will be in touch!

Hi Leslie Ann,

We are both doing very well, thanks so much for asking.  My daughter is sooo excited about graduating from kindergarten and looking forward to summer.

It is so wonderful of you to have written a book about your experiences.  I hope that one day my daughter will be as positive, confident, and helpful with others.  We have worked so hard to keep her from feeling like being bald is a bad thing, but as she gets older it is getting harder.  

I thought it was about time I searched for a little more support and guidance. 

Thanks so much for the welcome!

Hi Thanks, I went to the meeting the Seattle group had at hospital last year. Last month I had to work late and missed the 2nt. I am hoping to see if they do anything this summer. 2 weekends ago, my friend Shari and I went up to Vancouver, BC group.  They were all lot of fun and sweet! I look forward to your book.

Hi LeslieAnn, it has been a while since we communicated. I just wanted to let you know that I love the Liz brow. I just found out that you have designed it. Nice work, very lovely. Hope all is well. I still have not read your book but I plan on it some day. Peace Cinder Be well

Hi LeslieAnn,

Thank you so much about telling me about your book. I can hardly wait to get it.  I have a wig shop in Toronto where 60% of my customers suffer from alopecia.  I just had two young girls yesterday that came in yesterday with tears about their alopecia and I wish I could have told them about your book.  I don't really have a lot of advise - just one.  I had 

thyroid problems and lost my hair in the front.  Someone told me to take vitamin D and I can't tell you how much it helped to thicken my remaining hair and stop the falling but did not help the front a lot.  So if someone is just starting alopecia it might help to stop further falling.  I love love my european hair wigs. 

Very best to you.  Keep up your good work and smile.

Gabi.

Thanks LeslieAnn, I have just looked your book up! WOW love the cover and the contents sound interesting and helpful. I have rally struggled for years but now in a happy place. I am now starting to this about asking someone to endorse my book. What do you think about it LeslieAnn? it would be to go on the back cover and of course would have reference for your own book and this website? To see a little more about it you can read my blurb on www.saledlie.com on the front and on books page. Thanks and please let me know what you think :-)

Thank you for your welcome. I'm doing well. How are you? 

I want to check out your book sometime. It seems like it's a good one :) 

I appreciate your welcoming comment.  Thanks!   You look and sound like a beautiful person and  congrats on the success of your book.

Take care,

Linda

Hi LeslieAnn,

Thank you for your message, I am brand new to the site, I live in the UK. I'm going to download your book in a minute, I am struggling with the recently diagnosed alopecia so any form of help is amazing, I will look forward to reading it. 

Kind wishes,

Kristy 

Hi LeslieAnn,

Thank you for the welcome. I'm having a wonderful day as I hope you are. I look forward to reading your book and communicating with you in the future.

Have a good evening,

Rikki

Thank you for welcoming me to AW.  My girls and I are fine and we hope you are too.  I just finished reading through your informative profile.  I plan to purchase your book for my daughter (and me too!).  She doesn't like to talk about her alopecia so I think your reading your book will serve her well in many ways.  Thanks again!  God bless you...

Chris

Thanks for your reply LeslieAnn, and for all your info :)

I have looked into the drug you mentioned. It seems from the article I read, that 'they' are going to work on a cream form version of the drug, probably to avoid serious internal sideeffects. It looks like there's a possibility that they might find a working cure within a few years. I'm thinking If only they could identify, isolate and/or remove the factors that cause the sideeffects in their new cream form, then it's going to be a huge discovery.

(Link to a published paper from Yale about their drug discovery)
http://news.yale.edu/2014/06/19/hairless-man-arthritis-drug-spurs-h...

(Link to description of the sideeffects of the Xeljanz drug)
http://www.rxlist.com/xeljanz-drug.htm

Take care,

Tommy

Thank you and she is doing great!  A few more spots have appeared (right here at the beginning of school) but depending on the way she wears it, not so noticeable.  I look forward to reading your book.  Hope you are doing well.

Hi Leslie-Ann, and thank you for your welcoming me.

This website have finally made me realize that I'm not alone in this World and that there's people that understands me and know what I'm going through. I got diagnosed in February, and loosing my hair slowly so I'm definitely a beginner in all of this and trying to get through day by day.
I understand that you have a book abt this, i will buy it as soon as I'm back in america. Im visiting my family in sweden right now. Im very excited to read it, I Think it might be just what i need right now.

hope all is well and thank you for your email!

Thank you for your welcoming! I just got diagnosed, so I'm definitely new in the situation. Trying to stay positive and happy even though som Days are easier than others. I guess that's a part of the process. Congratulations onn your book, I will definitely order it!

Thanks for the message. It is nice to know we are all not alone! My seven year old daughter was diagnosed exactly a year ago with Alopecia Totalis. Within 3 months, she had entirely lost her hair, but not her eyebrows and eyelashes. We are working with a Dermatologist, but have also seeked the help of a Naturopath. After extensive food sensitivity testing, and live blood work, we have eliminated gluten completely, as well as dairy, and eggs primarily. She has been on this regimented diet since November 1. March, she started to get blonde peach fuzz. She now has hair, covering about 70 percent of her head. It is coming in in patches, just as it shed, but we are thrilled to have any regrowth. We understand Alopecia is very unpredictable, and we are prepared for what may be a very long journey, but feel very fortunate at this point. I look forward to reading your book. 

Hi LeslieAnn, Thanks for the Welcome. So glad Ive joined. I feel greatful to have found this Website. I feel relieved that I can talk with people who understand how it feels to lose all your hair or some of your hair. This is a very vulnerable and scarey time. I also read on your wall you wrote a book. Ill have to search for it and give it a read. Have a great day !

Thanks

Tiffany W

Thank you Leslie Ann for your welcome message. I have read about your book on here and I am very much looking forward to reading it! Have a great day.