Lo

Female

Pittsburgh, PA

United States Minor Outlying Islands

Profile Information:

Relationship Status:
Married
About Me:
Lost eyebrows in 2010-2011. Had a spot of hair missing above each year - and was diagnosed in 2011 with alopecia areata. In January, 2015, I questioned why the spots were progressively getting bigger above my ears - and progressing to my temple area - and finally the doctor said we should test to see if it is scarring alopecia. In January, 2015, I was diagnosed correctly with FFA. I'm on Celcept, Actos, and Finasteride.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Classical Anne in NC mountains

    I may have some suggestions, as I seem to be doing well.  But unfortunately, have no time today.  Thanks for the friendship!

    Anne

    Jan 28, 2015

  • Sad in chicago

    Will get you pix.....sorry I forgot and now off to vacation.  Interested to see how the synthetic topper will work as that is what was recommended for beach, etc. where I am headed.  More later.  Thanks.

    Jan 29, 2015

  • Tomy Pereira

    Hi Lo, thanks for accept me :) I also have alopecia universalis, if you want to talk a little with me about it, I am with open arms.

    Feb 2, 2015

  • LeslieAnn Butler

    Hello and welcome, Lo

    How are you today?

    Feb 18, 2015

  • Jinzy

    Hi, Lori! The biopsy will be able to determine if you have FFA, that's how I was diagnosed in December 2014. I first lost my eyebrows then my hairline began to recede. My doctor prescribed me Finasteride and Clobetasol solution to put on my hairline daily. The receding has stopped and I'm thrilled! That's all i wanted, just to stop the progression. Good luck at your appt! :)

    Apr 2, 2015

  • Brenda, IL US

    I must be dumb as a box of rocks. I can't remember how to send you a pic Lo.

    Apr 21, 2015

  • Chris

    Hi Lo,
    I'm not taking anything. I tried topical steroids for a while, but it didn't seem to help. I don't want to deal with the side effects of some of the treatments out there. My loss is still pretty active. I get fewer of the red bump, flair ups since going gluten free. I try to reduce systemic inflammation in my body in general. I look at my situation from a whole body perspective. I don't think it's just about my hair. I think my allergies, skin issues, asthma, and alopecia are all tied together somehow. I'm just trying to make my health as good as I can, and accept the hair situation.

    Jun 1, 2015

  • Chris

    Hi Lo,

    I'm attaching two recent pictures.  I have curly hair, which makes it easier to hide the loss sometimes.  in one picture ( the one with the sunglasses) I have my hair pushed back and tucked behind my ear exposing the loss.  Sometimes I tuck it back behind my left ear and just let it all hang out.  The other picture is from today.  I push my hair forward at work to hide it a bit more.  I wear a pretty deep side part and longish bangs.  It looks pretty messy in the photo.  I work at an Elementary school.  We get messy :). I don't have any eyebrows left, so I paint them on to fairly good effect.  I've tried short, "hipster bangs" before, but it really doesn't work, because my bangs are too thin, so I've been keeping them longer and a little messy.  Now that the school year is coming to a close here in NY, I'm contemplating something radically different, like an under cut, or a pixie cut.  I'm not sure.  Oh, and by the way, you're in Pittsburgh, right?  I'm originally from Erie, PA, I'm very familiar with yinz;) IMG_0936.JPG, IMG_0965.JPG

    Jun 2, 2015