I've had alopecia areata for about 12 years now and I've been wearing a wig for 6 years. My mother started a support group in my area (Rochester, NY) so that I would have the opportunity to finally meet other people with this condition. She is the most amazing woman. I have a wonderful fiance of almost 5 years who loves me exactly the way I am. I am so appreciative of the people who take the time to start websites and on-line groups because it raises much needed awareness and provides support for all "alopecians" no matter what stage of this condition we're in.
Hey Elizabeth! Remember me from D.C.? Are you going to Louisville this year? Hope to see you there, my mom is coming with me. She also started a support group in our hometown when I was younger. Aren't moms awesome?
When I get together with you Elizabeth, my cheeks hurt from so much laughing...you are TOO funny! Looking forward to seeing you at our next NAAF meeting that the wonderful mother you mentioned heads up. Take care...
Thank you...I got it from Madeline's Hair Replacement in Saco Maine where I am from. My hair is a custom piece. They took a plaster mold of my head and then had it custom made to match my scalp....it fits great! They have done hair systems for people from out of state without them having to come in several time before and it works out great. Also we are contracting with most insurance companies so we file all the insurance paper work for our clients. My wig and most of our clients is cover usually from 80 to 100 percent with an alopecia diagnosis. I actually work there now in the office but I am apprenticing under the owner to learn the trade! I graduated this past may with a business degree and the owner offered me a job. I could not have been more happy. I jumped at the chance to be a part of a company that helps so many people who, like me, have lost their hair. It has been the best decision I ever made I wanted to be able to help others with alopecia and this has been the perfect opportunity! If you are at all interested let me know and I’ll send you our information but if not no worries and thank you for the compliment! : )
Hi Elizabeth, I see you re from Rochester. My son goes to college there. I been back and fourth there like 6 times so far this year lol! We live on Long Island.
Hi Elizabeth, My son goes to Eastman school of Music. He love's the school, But the city is a little rough. His car was broken into... As long as he stays around east main and gibbs it's fine. He love's the east view mall and so do I lol! When I come up in the fall we are going to go to the casino , I think it is in syracuse?
Hi yes we got him an apt on east ave. 2 blocks from eastman thank god. I am really nervous cause he has to walk to school. he has his car but it is a pain in the neck to bring it a few block... with the weather there and all.
Thanks for the warm welcome. Born and raised around the Rochester area. Thanks for the tip on the support group in the Rochester area. I might stop in one if I have the opportunity.
I found the link to the Rochester Chapter of the NAAF last night and was just about to e-mail Mrs. Figura (is that your Mom?) to ask about the next meeting...perhaps I'll see you there. Thanks for the invite!
Wow that's close to me! I am from Watertown. I didn't write it because I wasn't sure that you would know where it is! I did some of my practicums in Syracuse at LeMoyne elementary. What do you teach?
Hi, Elizabeth I came to the Rochester meeting a few weeks ago. You were right, I'm glad I joined both groups. Can't wait for the next meeting in Roch. Allie
Nothing ventured, nothing gained. Big round of applause for taking your time and giving it a go. I read somewhere on the NAAF website that there is a Federal bill in the works for Medicare / Medicaide patients. I think the number was $700/yr. Third party payers (i.e. private insurance) usually set up and follow the minimums set by federal insurance.
Hi Elizabeth, Thanks for the add. I talked to your Mom last night. I will be attending the support meeting on Thursday. Look forward to meeting all of you.
Have a great day!
Maureen
Hi Elizabeth, Do you happen to know the locations of any support groups downstate? I live south of you in the Mid Hudson Valley and just can't seem to find anything around here. Thanks, Jamie
Hi Elizabeth, I can't wait to meet you your Mom and all the other Alopeicans. . I'm trying to talk my son into coming, but if there aren't any men going I think he would be very embarrassed. He has said no to me so far lol. See you soon!
Maureen
Hi Elizabeth, It was so great to meet you and your Mom! Thanks for the meeting. I took my wig to Sherry and she put the silk in it. It's better, Except that now I have to wear wig tape and of course it is irritating my skin.Well you can't win them all lol! Take care.
Maureen
Hello Elizabeth,
Finally I am getting a chance to respond to you. I am just simply busy. I am not a techy so online communication is not on top of my list of must dos in the evening. I must admit it is soooo great to be part of a group of Fabulous People.
Wow another week done! My week ends today on Saturday at 5pm. I waiting to go to dinner with my husband - yes! I'm hoping Thai! I will be going to the Bald Girls do Lunch gathering on Sunday.
Did you ask where is Wappingers Falls? It is in Dutchess County - north of Fishkill and south of Poughkeepsie, New York . It is also approximately 1 1/2 hours north of NY City up the Taconic Parkway.
I will be up in Syracuse this coming weekend April 3, 4 and 5 for a Massage Therapy Convention. I'm staying at Sheraton Syracuse University Hotel & Conference Center 801 University Ave · Syracuse, NY 13210 · I'll be sharing a room with a fellow member. Maybe we can meet up for a drink. My cell number is 8452331186. Take care, Karen
sorry i couldn't come to the march meeting. i really wanted to but i had to work. my shedule comes out way before the meetings are scheduled so i dont get a chance to ask off cause i'm not sure when the meetings are. when is the next one? my guess is the end of may, and unfortunetely i will be gone then...... but fortunetly i will be on vacation!
Hi! I'm actually not in Buffalo yet. I am going there in 2 weeks for orientation and then I move up there around the middle of August. I'm pretty excited, but nervous at the same time about being in a new place. Do you like Rochester? I drove around there when I went to look at SUNy Geneseo...looks pretty nice.
No problem! I've been in Buffalo for a little over a week now, and it's definitively not home. I love the school I'm at though. Congrats on getting a job!
Melissa
Mar 9, 2008
Sherry Schaefer
Mar 11, 2008
Nicole
Apr 2, 2008
krupdogg
Apr 2, 2008
Monalixsa
Apr 2, 2008
Alex
Apr 7, 2008
Alex
Apr 8, 2008
Alex
alex_fabozzi@yahoo.com
Apr 12, 2008
Lee
Apr 14, 2008
Lee
Apr 17, 2008
Lee
Apr 17, 2008
Jess
May 2, 2008
Jess
May 2, 2008
Maureen
May 13, 2008
Maureen
Maureen :)
May 14, 2008
Maureen
May 14, 2008
Drew
May 20, 2008
Tony
Thanks for the warm welcome. Born and raised around the Rochester area. Thanks for the tip on the support group in the Rochester area. I might stop in one if I have the opportunity.
May 20, 2008
Tony
I found the link to the Rochester Chapter of the NAAF last night and was just about to e-mail Mrs. Figura (is that your Mom?) to ask about the next meeting...perhaps I'll see you there. Thanks for the invite!
May 21, 2008
Katie
Jun 2, 2008
Katie
Jun 2, 2008
Allie
Jun 2, 2008
Tony
Jun 19, 2008
Tony
Jun 23, 2008
Maureen
Have a great day!
Maureen
Sep 18, 2008
jamie1
Sep 21, 2008
Maureen
Maureen
Sep 21, 2008
Maureen
Maureen :)
Sep 24, 2008
Maureen
Maureen
Oct 5, 2008
Shannon
I read your story and was wondering if you or your mom have any tips and/or advise for me on starting a support group here in Monroe, NY 10950.
I have searched and there are none in my area.
Thank you!
Shannon
Oct 28, 2008
Shannon
I will take any help I can. The sooner I can put something together the better. :-) Thanks again and hope to hear from you again, take care!
Oct 30, 2008
rj, Co-founder
Dec 9, 2008
Mukti
Dec 9, 2008
Karen Froehner
Finally I am getting a chance to respond to you. I am just simply busy. I am not a techy so online communication is not on top of my list of must dos in the evening. I must admit it is soooo great to be part of a group of Fabulous People.
Feb 23, 2009
Karen Froehner
Wow another week done! My week ends today on Saturday at 5pm. I waiting to go to dinner with my husband - yes! I'm hoping Thai! I will be going to the Bald Girls do Lunch gathering on Sunday.
Did you ask where is Wappingers Falls? It is in Dutchess County - north of Fishkill and south of Poughkeepsie, New York . It is also approximately 1 1/2 hours north of NY City up the Taconic Parkway.
Feb 28, 2009
Karen Froehner
I will be up in Syracuse this coming weekend April 3, 4 and 5 for a Massage Therapy Convention. I'm staying at Sheraton Syracuse University Hotel & Conference Center 801 University Ave · Syracuse, NY 13210 · I'll be sharing a room with a fellow member. Maybe we can meet up for a drink. My cell number is 8452331186. Take care, Karen
Mar 29, 2009
Kristen
Apr 18, 2009
MiNAH
Yet my son said it is so expensive up there..what's a girl to do?
Mina
Jun 26, 2009
Alex
Jun 29, 2009
Alex
Aug 22, 2009
Tracy and Amanda
How are you?
Tracy
Aug 31, 2009
Susan - Jon's Mum
Just wanted to wish you a very happy birthday.
What a lovely profile photo you have too!
Susan
Dec 9, 2009