lisa bea

Penfield, NY

United States

Profile Information:

Relationship Status:
Married
About Me:
child w/alopecia
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • Lisa F

    Thanks, Lisa. This is a very difficult time right now, but I'm sure things will be OK eventually. It is good to hear that your daughter made the adjustment to a wig without too much trouble. Kait spends a long time and a lot of bobby pins and hairspray trying to cover the spots now, so I think this will be a relief to her once she accepts it.
  • Jennifer B

    Hi Lisa,
    I guess I did it wrong. I'm very new at this. Anyhow, how old is your daughter? Do you ever attend the local NAAF group in Penfield?
  • Jennifer B

    Hi Lisa,
    It would be nice to meet up sometime. Perhaps the get together that Susan is trying to set-up. My son, Alec is pretty shy when it comes to his alopecia, so I don't know if he would open up right now to someone older. At some point maybe he would talk with your daughter. I appreciate the offer and I think it's great that she wants to help. I got him to start seeing the school counselor. They are trying some role-playing and some coping techniques for when kids make comments or make fun. The school bus seems to be his biggest hurdle right now. My son started with a round patch at age 2 and then his hair grew back. He has lost 75%+ of his hair within a year and we shave his head once a week to make it look cleaner. He actually looks good! We stopped seeing the derm, as they were suggesting injections. Has your daughter tried any treatments? Any success at any point? Does she continue to see a derm? Thanks for your note and support. --JEN