Nancy79

Female

Shawnee, KS

United States

Profile Information:

About Me:
I have frontal fibrosing
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • LeslieAnn Butler

    Hello and welcome, Nancy!

    How are you today?

    Leslie Ann

  • Cheryl, Co-founder

    Hi Nancy,

    I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out the “10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

    Cheryl, co-founder

  • Let's Solve This

    Nancy, I'm still figuring out how to work with this website, so hopefully I'm replying to you in the right place!  Yes, I will have to travel to Duke in order to participate in the study.  Fortunately I live about an hour away from them so it's not a big issue for me.  I'm guessing that you saw all the other sites where they are gathering data around the country?  If any of them are within a reasonable travel distance you may be able to participate in the study by contacted someone at that site.  I remember reading somewhere that someone was having trouble connecting with the right person at one of those sites - I think it was in Pennsylvania, so I thought I would try to find out for that person whom they should call.  It took me several attempts to get a response back from Duke - I think people are just so busy with other things that they don't get around to responding in a timely way.  Probably because they are not losing their hair :-).