Hi Richard, my name is Cindy and I am the parent to a 7 yr old girl with Alopeica. Through the Childrens Alopeica Project I have started CAP meeting in Hopkinton. Our 2nd meeting will be this Saturday from 1-3 at the Hopkinton YMCA. While we don't have any children your sons age attending we would love to have you and your family come.It will give you a great opportunity to meet other parents of children with AA. You can find my contact information on their website. www.childrensalopeicaproject.org or you can email me at cindy@childrensalopeicaproject.org for directions. Please don't feel like you have to shave your son's head. Alopeica is unpredictable and everyone's body is different. I suggest taking your son to see a dermatologist and see what he/she suggests. I take my daughter to Childrens Hospital and would be happy to give you her doctors name...I look forward to hearing back from you..Cindy

Hi Richard,

Welcome to Alopecia World.

Jeffrey

Hi, this group is designed for children. I suggest contacted NAAF..www.naaf.com. I believe there is a group that meets in Needham. They can give you the contact info. Hope this helps..Cindy

Welcome Richard, So glad you've found this group. It's been a great experience for me.

Hi Richard,

Welcome! I hope you find this site to be as helpful as I have found it. I just went to Boston for the first time last spring. Great city. Was also surprised how close it was- only a 6 hour drive from MD. While I was there I checked out several places and absolutely loved Rockport!! I was actually in Mass. participating in an AA study! small world....

Have a great day,
Heather

Hey-

so Rockport is too tame for you! Funny. I was only there one night- so I didn't notice that. I just enjoyed all the shops (spent way to much money), and all the homes/views and restaurants.

The study I did was to test a LED device to see if it can control/cure AA. It was through a Peabody holistic center. (should I say Peabdy- so where do you all put the "o"- ha ha!) Long story how I ended up involved but it all began with some research I found with laser acupuncture-- which they do not do in many states including MD. Bottom line from the study- it appeared to help regrow hair BUT didn't prevent or stop new spots from coming.

For years I've tried to stick to a more holistic approach- feel like I've done it all! And have seen many specialist. And the consensus seems to be the same' "we do not know what causes it, we cannot predict the course and we do not have a cure" ...fun! So far steroid foam works the best for me. How about you- what type of treatment are you using?

Heather

Hi Richard,

No shaving your head is not giving in....more like taking back control!! I say do what makes you comfortable.

Hope you are having a great weekend!!

Be safe and Have fun!!!!!

Hi Richard,

How is everything going with you?

Jeff

Hi Richard,

A MoHawk??? Or a Bald Eagle?
All is good here.
Mothers can be hard to please....

Jeffrey

Sure as shit!!!

Looks Great!!!

Jeffrey

Wow!!!

Looks like you updated your pic.

Jeffrey

You are such a USA Bitch!!!

Go4it!!!

Hi Richard.

Hows life with you?

Roger.

Wow! But you live in Boston now? Do you speak swedish?

It's always good when things are a little easier.
What do you have going on today?

Hey Richard,

Whens the get together?
Have a good time painting.

Jeffrey

So hopefully you will make some nice home improvements.
Is it a big job?

jeffrey

Busy Busy Busy.

I bet the place looks great.
You're the best Stay at home Dad ever!!!

Jeffrey

Marie is your wife???

Jeffrey

Hey- How are you? It's been a while- hope all is well! Getting used to the new shaved "do" ? :)

Yep- we have the same heat here!! ugh. I imagine you too have all the humidity like us? Do you have lots of late afternoon thunderstorms?

Cute! THe little blondie in the picture is my nephew Justin. He was throwing a fit to get out of that chair! Notice the peas and carrot pieces in his hair! ha ha! He is also two. My sister's other son is 5- and will start kindergarten this year! yikes! going fast....

stay cool!
Heather

Hey- lucky you...glad your humidity is gone! I'm sure it is not missed!!

Never watched the West Wing- so I do not know who you mean.... so should I say "thank you" or "take a long walk off a short bridge" ha ha! At least you said I look younger- given the character was playing the presidents wife I assume she was playing a 50 or 60 something..... hummmm- I can honestly say I've never been compared to someone that old. Guess there is always a first!

I just turned 39 this month. (Aug. 9) What about you- when's your b-day?

Hi Richard, how are things going? Are with Boston PD yet?

Hi Richard

Just found your profile on here. I liked your comment about having a full head of hair until the wind blows. I'm in a similar situation but haven't been brave enough to shave it all off yet.

Hope you're doing well and are dealing with the alopecia and are hopefully seeing signs of regrowth.

All the best
Robert

Fantastic news on the regrowth!

No Richard, I have heard from Lila. Is she from Mass? I saw your email to her.What kind of regrowth are you having? Congrats!

That is great about your scalp. Sam's eyebrows are slowly coming in, no lashes yet. She has a few small hidden spots on her scalp. What are you doing?

I know of people that use V-D.I never gave it to Sam b/c I was afraid she'd be on overload. How much do you take? do you have your blood checked regularly?

Hi Richard

So pleased to hear about your regrowth. That is fantastic news!!!

Hey Richard,

How are you? I wanted to let you know a group of us are in Boston in a few weeks. I thing you are in Mass.
Did you regrow all your hair?

Jeffrey

Hey Richard,

All is good here.
Congrats on the regrowth. I bet the rest is soon to follow suit.
If you want to hang out with alopecians check out the Events tab here on AW.
We are staying at The Hyatt Place in Medford. Oct 22-27

Jeffrey

Excellent. Hope you can make it

Oh hey Richard,

Do you know anyone else that might want to attend?

Jeffrey

Hi Richard,
I guess it is an organized casual event

It's all about having a good time with friends.

Jeff