Lori D.

Female

Plymouth, MA.

United States

Profile Information:

Relationship Status:
Married
About Me:
When I was 6, I got a mild case of AA; just a tiny bald spot. Two years later, after another traumatic event took place in my life, it developed into AU. About nine years later, it changed to AT, where it has been for 26 years. I tried the steroid shots and had a biopsy. I have cicatricial alopecia..poor prognosis. Strangely enough, I've had some scalp growth. First it was peach fuzz, then I had long white wirey hairs on both sides of my head, then dark hair grew..I have to trim it to wear a wig. I have body hair, (minus the legs-but who cares about that anyway); I have most facial hair, (including some very charming hairs that insist on growing out of what I'll call a beauty mark, ok, ok, so it's a mole), and I don't have nose hair. I've always worn a synthetic wig. My parents were totally ashamed of me so I dealt with a lot of negativity at home and at school. I was never taken to a specialist or even a dermatologist. My first visit to a derm was sometime in my thirties. I've had a lot of unhealthy relationships but 8 years of therapy have helped me in many ways; including my self esteem-thereby my choices in the relationship dept. were improved. I married a wonderful man in 2006. We do a lot of exciting activities together. I'm really having the time of my life. He is absolutely my soul mate. And I met him online!!! Looking forward to many supportive exchanges on this great site.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes

Comment Wall:

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  • richard

    thanks,
    are there any group meetings in boston? i am thinkin of starting one like they have in wellesley, does boston needs a group? what do u think? would people want to come once a week?

    May 11, 2009

  • Maryanne

    Hi, Lori

    I'm new to this site and just joined the MA group. Your story and photos are inspiring. I've been working on alopecia in therapy and I'm ready to start having the time of my life as well. When I lost my hair 20 years ago I also lost my sense of humor (and I had a great one!) and recently I've been able to laugh about my alopecia with close friends so I feel I'm making progress. It's also a big step for me to break through isolation and join a group like this. You seem to be enjoying your life and it's good for me to see that. Just wanted to say "thank you."

    peace,
    Maryanne

    Dec 17, 2011

  • Megan Hopkins

    hi lori,

    i see you live in plymouth, i live in Sandwich. My story is a bit traumatic as one day my daughter had a friend over and i told her that i put tea tree oil in my hair and that i thought i was loosing my hair (but i wasn't at all). About 3 weeks later that same girl came over our house to spend the night. Both my daughter and I went to bed with clean, dry heads. We awoke to wet greasy heads. I was trying to figure out why our heads were so wet and greasy, i didn't even think about the girl. But after that my daughter and i began to loose our hair all on the crown of our heads. That girl had put some kind of chemical in our heads and combined it with oil. i have lost more then half the hair on the top of my head and my daughter's hair is thinning quickly. i am devistated especially for my daughter. i wish this happened naturally instead of us being assaulted while we were sleeping. that was a horrible, evil thing for that girl to do. i would like to prosecute that girl but i have no proof because we were sleeping. i wish i had called the police the morning we woke up with wet greasy heads so they could have documented it. i am so depressed lori, that is all i think of morning noon and night. And i'll never forgive myself for telling that girl my business. i think she is a sociopath from what i read. i need as much support as i can get because i am so traumatized by the event. it is not something that happens every day to people, it is a very weird thing that the girl did to us. i would love to hear from you. i know that i just need to practice acceptance but the way it happened is so hard to accept. i hope to hear from you lori, i could use a few friends here. thank you for listening. sincerely, megan

    Sep 22, 2012