Jean

Female

Kent

United Kingdom

Profile Information:

Relationship Status:
Married
About Me:
Diagnosed with FFA about 18 months ago. Still just about able to cover hair loss but will soon have to resort to wigs. Married with two grown-up children and two lovely grand children - everyone very supportive.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • Lo

    Jean, I saw your comment today about the positives of having FFA. That was a good reminder. I have to ask a question. Is your hair loss to a point that you are in a wig daily? Have you lost a lot? And may I ask what medicines/treatments you've been on since diagnosis. Any info would be appreciated. Blessings, Lori. If you prefer to email me outside of this site, feel free. My email is lobertella@yahoo.com. Thank you so much.

    Jun 4, 2015

  • Plf

    HHi jeanH

    Apr 30, 2018

  • Plf

    Hi Jean, I hope that you FFA is still in remission, the problem I have with this support group is that long term members stop contributing, which leaves me to believe the worse that there is no cure and a hair piece is required.  The literature says the disease burns itself out..if this was the case with you, would you be happy to answer a few questions..I am currently resisting medications due to toxicity and lack of results..bit would love to here your story..I know it's traumatic bit bome guidence would be great..hope you r one of the lucky one, 

    Apr 30, 2018