Jean

Female

Kent

United Kingdom

Profile Information:

Relationship Status
Married
About Me
Diagnosed with FFA about 18 months ago. Still just about able to cover hair loss but will soon have to resort to wigs. Married with two grown-up children and two lovely grand children - everyone very supportive.
Do you have alopecia? (Choose appropriately)
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • Lo

    Jean, I saw your comment today about the positives of having FFA. That was a good reminder. I have to ask a question. Is your hair loss to a point that you are in a wig daily? Have you lost a lot? And may I ask what medicines/treatments you've been on since diagnosis. Any info would be appreciated. Blessings, Lori. If you prefer to email me outside of this site, feel free. My email is lobertella@yahoo.com. Thank you so much.

    Jun 4, 2015

  • Plf

    HHi jeanH

    Apr 30, 2018

  • Plf

    Hi Jean, I hope that you FFA is still in remission, the problem I have with this support group is that long term members stop contributing, which leaves me to believe the worse that there is no cure and a hair piece is required.  The literature says the disease burns itself out..if this was the case with you, would you be happy to answer a few questions..I am currently resisting medications due to toxicity and lack of results..bit would love to here your story..I know it's traumatic bit bome guidence would be great..hope you r one of the lucky one, 

    Apr 30, 2018