My name is Brandi Gurley and I've had alopecia since I was 10 years old. I am now 25. When it first started falling out it was in spots. But then when I was 14 it all fell out. It was terrible. Going through school with people talking and whispering and pulling off my wig because they thought it would be funny. But it got better. I had some of the best friends that tried to protect me. I was also a cheerleader from 6th grade-12th grade. I wasn't going to let the fact that i had no hair prevent me from doing the things that i made me happy.
But having alopecia universalis does have it's advantages like not ever having to shave. My husband really likes that. I've been married for almost 3 years. I wear a hairpiece from Peggy Knight Solutions. My husband would rather me just go without it but I guess its a girl thing. The only time that I really go without my wig is when I'm at home with my husband or around my family. All my friends know, but it's different with them knowing and actually showing them. I have went without it around my really close friends, but not many off them.
I use to be very self conscience about it, but now I really don't care if people know or not. Except when people think I'm sick, or have cancer, or feel so sorry for me. Yes this happened but I'm healthy, I'm happy, and I have a great husband that loves me just the way I am.
I haven't went to the doctor in like 10 years cause i tried every treatment that was legal in the US. Some worked but most didn't so I just decided if it comes back great and if it doesn't thats fine too.
Hi Brandy, welcome to alopeciaworld. I haven't seen a doctor for over 40 years, imagine getting shots of cortisone in the head for nothing :-(
I shaved my head in July 2008 and have not worn a wig since then, I can't stand them, they're hot and itchy!
Hi Brandy,
Thank you for your kind words. I am very proud of Amanda. She has no qualms about telling people up front that she has alopecia. She has a great knowledge of the subject and people are amazed at how much she knows about it. I am hoping she will continue to be strong through adulthood. I am glad to hear that having alopecia did not deter you from anything in high school and that you still did what you wanted to do. You are lucky to have a great husband who loves and supports you. I hope to be talking more with you soon.
Tracy
Linda
I shaved my head in July 2008 and have not worn a wig since then, I can't stand them, they're hot and itchy!
Jun 24, 2009
Tracy and Amanda
Thank you for your kind words. I am very proud of Amanda. She has no qualms about telling people up front that she has alopecia. She has a great knowledge of the subject and people are amazed at how much she knows about it. I am hoping she will continue to be strong through adulthood. I am glad to hear that having alopecia did not deter you from anything in high school and that you still did what you wanted to do. You are lucky to have a great husband who loves and supports you. I hope to be talking more with you soon.
Tracy
Jun 25, 2009
bugzmom
Jessica (bugzmom)
Sep 20, 2009