lisa

Female

Johnson City, TN

United States

Profile Information:

Relationship Status:
Married
About Me:
I have and 11 year old daughter with alopecia areata
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • lisa

    thank you. I wasn't sure how often comments were made. I'm just feeling things out here.

    My now 11year old daughter was diagnosed with alopecai areata 3 years ago with a small amount of hair loss at that time. Her hair came back and that was that, until now. Recently, I discovered that all the hair on her body is gone. Then my sister discovered that she had a growing bald spot on her head again one night while she was baby sitting. I love that her skin is soooo incredibly smooth.

    I guess I'm searching for an answer that I will not get. I want to know how this disease progress. Once you lose your body hair does that ever come back or is that the tale tale sign that complete and total hair loss is on its way? She has already had such a hard time in middle school with being bullied. How in the world do we deal that AND this at the same time, although the two are unrelated.

    I love her smooth skin and the hair loss this time is starting an a very discrete place. I only wish we could forecast her future even though we know full-well that is completely impossible. I have been reading blogs today and have read how unpredictable this disease is.

    Specifically, I would like to hear someone's experience and thoughts about what typically happens once someone loses their hair from their body. Please, someone hear me. It's so hard being the one person she looks up to for answers when you don't have them yet.

    Sincerely,
    Lisa
  • LeslieAnn Butler

    Hello and welcome, Lisa!
    How are you and your daughter doing today?
    LeslieAnn
  • LeslieAnn Butler

    Lisa, by the way, I wrote a book called "If Your Hair Falls Out, Keep Dancing!" and it has a lot of information in it that might be helpful to you and your daughter. You can find out more about it on my page (just click my photo or my name to get there).
    In answer to one of your questions, alopecia is completely unpredictable. Your hair can all grow back and never fall out again, or it can progress to universalis. It can also just stay with spots (areata), or progress to totalis. You just have to take it one day at a time...