"Other than the hair loss? Achy and tired for about four hours the following day. "
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Anna's Discussions
For those of us on ruxolitinib (for whom Xeljanz did not work)
Started this discussion. Last reply by Anna Dec 9, 2019. 7 Replies 0 Likes
Hello,I became AU at age 48 in June of 2017. I have been very active in seeking treatment, and have tried just about everything out there. Xeljanz did NOT work for me at all - and I was on for 11…Continue
CALLING ALL XELJANZ NON-RESPONDERS
Started May 28, 2018 0 Replies 0 Likes
I wanted to start a discussion for those of us who have tried Xeljanz but had no results. Many people on this forum seem to do very well, and it is extremely frustrating to be in what seems to be the…Continue
Response time for those who have tried Xeljanz
Started this discussion. Last reply by Anna May 8, 2018. 16 Replies 0 Likes
Hi everyone,I am AU since June 2017 and 13 weeks into Xeljanz. Started at 5mgs twice a day, am now up to 20 mgs twice a day. I have had no response whatsoever, and am getting increasingly discouraged…Continue
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Latest Activity
"Hi all - female, 52, AU, have 100% regrowth on JAKJ 1/2. Got AstraZeneca April 20th - and now have lost a third of each eyebrow. I can honestly say I wish I had not got the vaccine, but felt it was my moral duty to do so. My disease has definitely…"
"Hey mtran2000 - I took Xeljanz for a year and did not respond at all - and had no side effects. I have now been on Jakafi for a year and have full regrowth! But I do have side effects - weight gain, high cholesterol, and fatigue. I now take a statin…"
"Not sure - the person I was asking for is going to make his own inquiries so I will let you know what he finds out! It does seem incredible."
"Hey Carlie - Xeljanz was available from Costco in BC????? For real?"
"Thank you yp that's super helpful - I appreciate it!"
"Any Canadians who order from Beacon or elsewhere>?
1. Do you need a prescription?
2. How does it work at customs?
Appreciate any help!"
"Canadians who buy from Beacon: (asking for a friend)
1. Do you need a prescription to order tofacinix?
2. What is the protocol for getting the shipment through Canadian customs?
Appreciate any help you can give - thank you so much!"
"So glad to hear this!"
"Hi ariel015,
I wouldn't think taking methotrexate at the same time would prevent you from upping your dose, but obviously your doc will make that call. I did not have any side effects with Xeljanz at all, though I DO have them with ruxolitinib…"
"Hi ariel015,
A few things to think about:
1. Many people take months and months before responding - Dr. King believes that a good 20% pf patients don't respond in any meaningful way until at least 6 months in - you are still well within that…"
"Hello - Has your daughter ever tried increasing the Xeljanz dose? Sometimes patients need a higher dose to really get the growth going, and then can eventually taper off a bit. Many people on this forum have gone up to 25 mg without any harmful…"
Profile Information
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (1 comment)
- At 2:56pm on May 15, 2020,
Mike said…
Anna i am in Ont, please call me 519 829 0754 tx
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