MY NAME IS BRANDY AND I JUST FOUND OUT ABOUT ALOPECIA MY DAUGHTER IS 6 YRS.OLD AND HAS HAD ALSOPECIA SINCE DECEMBER.SHE GOT PICKD ON AT LAST YR. AND PROBABLY THIS YR. ALSO I AM LOOKN TO FIND FRIENDS 4 HER AN I .HERE WHERE I LIVE PPL LOOK AT HER LIKE SHES NT NORMAL.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
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Hi Brandy. Thanks so much for reaching out to me. I pray everyday to accept and embrace this journey that God has me on. I know there are more important things in life than my hair, but I still have my gloomy moments. Right now I am wearing a very short hair, but the thin areas are close to bald. If I lose all the hair, I might try and be bold and wear a bald. It just depends on how my scalp looks. With scarring alopecia, the scalp looks funny. It's look kinda plastic and shiny. I will definitely keep in touch and post some photos.
That is awesome about showing the video to the school. Please let me know how it goes. Continue to build your daughter's self-confidence and she will be just fine. Contact CAP. Cindy
HI Brandy, my name is Cindy and I am mom to a 7 yr old. How is your daughter doing? I hope she has a good school year...Have you checked out the childrens alopeica project www.childrensalopeciaproject.org. They maybe able to help find a family in your area and they do many wonderful things. This summer they had their first Alopeciapalooza. It was so much fun..Cindy
Hi Brandy,
I just wanted to check in and see how Jazmin was doing. Amanda started school today. She wasn't teased but just got asked alot of questions by her classmates. She wore a headband to cover up most of it. I told her teacher about her condition and thankfully she knew what alopecia was. I am just worried that Amanda is keeping all her feelings inside. She wont discuss her alopecia with me or anyone else. I wont push her at this point. I just wish there was a cure for this. I will talk to you soon.
Tracy
I'm sorry that I haven't gotten back with you sooner. I sorry that you are having trouble with the school too. I don't have your phone number either. Call me when you get the chance. My number is 480-332-4860, or 480-366-4861. Hope to hear your voice soon! :)
Hi Brandy,
Amanda loves Hannah Montana too. She loves the whole Disney Channel sitcoms. Well Amanda starts school on the 2nd of September. Wish us luck! Please keep me updated on Jazmin's school progress and how things are going for her. We are going on a mini vacation to Disneyland and the beach for 3 days before school starts. I will have Amanda write to Jazmin when we get back. We are keeping Jazmin in our prayers. We will talk to you soon.
Tracy and Amanda
Hi Pam,
Thank you for your kind words. I worry alot about my daughter as well. School will be starting in another week and a half and I just want her to fit in and not be mocked or stared at. She hates it when I try to cover up her bald spot. She gets mad at me and says she doesnt care if people see. We are currently putting aloe vera on her scalp. I am so sorry Jazmin has to go through this as well. It is really hard on kids. I wish you guys lived near us as well. I am also certain that Jazmin and Amanda would be the best of friends. I think that showing that video at Jazmin's school is an excellent idea. Is there anything you can do about changing the schools mind. I know that myself I am a very timid and shy person who does not want to draw attention to herself but when it comes to my daughter I will not let anything stand in my way. I wish I was there and they went to the same school. We could help fight the school together to get them to show the video. I plan on talking with Amandas new teacher and the principal about her condition. I think the kids should be aware of her condition as well. Please let me know if there is anything I can do to help. Amanda would love to write to Jazmin on here. Lets keep each other posted on their days at school. Tell Jazmin we said "Hi" and that she has made a good friend.
Tracy
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How are you and Jasmin doing?
Tracy
I just wanted to check in and see how Jazmin was doing. Amanda started school today. She wasn't teased but just got asked alot of questions by her classmates. She wore a headband to cover up most of it. I told her teacher about her condition and thankfully she knew what alopecia was. I am just worried that Amanda is keeping all her feelings inside. She wont discuss her alopecia with me or anyone else. I wont push her at this point. I just wish there was a cure for this. I will talk to you soon.
Tracy
Amanda loves Hannah Montana too. She loves the whole Disney Channel sitcoms. Well Amanda starts school on the 2nd of September. Wish us luck! Please keep me updated on Jazmin's school progress and how things are going for her. We are going on a mini vacation to Disneyland and the beach for 3 days before school starts. I will have Amanda write to Jazmin when we get back. We are keeping Jazmin in our prayers. We will talk to you soon.
Tracy and Amanda
Thank you for your kind words. I worry alot about my daughter as well. School will be starting in another week and a half and I just want her to fit in and not be mocked or stared at. She hates it when I try to cover up her bald spot. She gets mad at me and says she doesnt care if people see. We are currently putting aloe vera on her scalp. I am so sorry Jazmin has to go through this as well. It is really hard on kids. I wish you guys lived near us as well. I am also certain that Jazmin and Amanda would be the best of friends. I think that showing that video at Jazmin's school is an excellent idea. Is there anything you can do about changing the schools mind. I know that myself I am a very timid and shy person who does not want to draw attention to herself but when it comes to my daughter I will not let anything stand in my way. I wish I was there and they went to the same school. We could help fight the school together to get them to show the video. I plan on talking with Amandas new teacher and the principal about her condition. I think the kids should be aware of her condition as well. Please let me know if there is anything I can do to help. Amanda would love to write to Jazmin on here. Lets keep each other posted on their days at school. Tell Jazmin we said "Hi" and that she has made a good friend.
Tracy
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