I'm a young woman who happens to have alopecia. I don't feel it effects my life much, but has certainly given me a different perspective! There are times when it would be nice to hear from some like minded (or headed) people!
Do you have alopecia? (Choose appropriately)
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older
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Hi Catherine We are having a meeting for people with alopecia in Bristol 16th March 2013. More details on alopeciaonline UK website. I think Dannii is hoping to come. Dunno if you will get this on time, We have them every 6-8 weeks, so look out for further ones. Let's stick together against the baldness! Pammy
Hi again, yes definately meet up after Christmas...I personally couldn't even let my husband see me without a piece on but thats just me. As to a bonded piece depending on what type glue or tape you use is as to how long it stays on for. you can do a daily wear, 3/4 days or few weeks. I am going to use the few weeks at the time attachment. That way I only need to remove it about 1 hour a month just to clean the base and it will feel like its a part of me, rather than taking it off everyday...I know of a wig place in Usk which does wigs and cardiff called periwig. I think they do suction ones. Hope that helps. :-)
I am having my system made by Farrell hair. Although American company there is a salon in Leeds, but I met with him in Birmingham for the fitting. It should be ready end of January/February. I actually live in Newport, just over the bridge, although I did put Bristol. I might aswell live in Bristol as I am always shopping there lol!! If you fancy meeting up for a coffee at the Mall at cribbs or Cabots let me know. Its so good to be able to talk to other people. I have read on the Freedom wigs, but my only concern is do you have to take it off at night or can it stay on like a bonded piece? Chin up as there are some great one out there now that look amazing. :-)
Hi Catherine. Nice to see your positive, ad it doesn't effect your life that much. I have recently ordered a hair system and it will be bonded as I would hate anyone to see me without hair! I know I sound vein :-) Do you wear a system?
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Hi Catherine
We are having a meeting for people with alopecia in Bristol 16th March 2013. More details on alopeciaonline UK website. I think Dannii is hoping to come. Dunno if you will get this on time, We have them every 6-8 weeks, so look out for further ones. Let's stick together against the baldness!
Pammy
How are you today?
Leslie Ann