My name is Christel I am 32 years old, married and have two kids. My oldest, Jennifer has had Alopecia since she was two. My husband has Vitiligo also an auto immune disease. We have been trying different things, now we are trying DCP treatment. At christmas Jennifer's hair was growing really well, but now it has all fallen out again. She has no hair at all. She is pretty good about it, but every now and then she says that she wishes that she had hair. That is really hart breaking. We do not have much hope of Jennifer's hair ever returning, unless there is some medical breakthrough.
Are you age 18 or older?
Yes
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Amber is doing great and has started Prep. Lucky for her she started with a full head of hair. Mount Eliza is a very nice place and how is Jennifer finding her new school.
How is Greg and your son? You guys should come down soon so that the children can catch up. I know that Amber would love to see Jennifer again...
Hi :)
aww, im so glad that Jennifer is doing well :)
and I hope she will love her new school and make lots of friends and have fun there! :D
I haven't had any growth at all in the past, year I think. But im doing pretty with dealing with it i think :P
I have a real hair wig, and i absolutelly love it! :) Ive had about 6 wigs since alopecia. ( 2 every year ).
I just got a new wig for the summer! and mine is longer as well :D, i guess long hair is in style these days ;)
And yes I tattooed my eyebrows a year ago, and i LOVE THEM. Its so great because I used to always have to think if they looked okay and everything, now i NEVER have to think about it. I absolutely love the tattoo.
The pain was COMPLETELY worth it, i really recommend it!
hope Jennifer is doing well :)
Hi Christel! :)
I am 15 years old and Ive had alopecia since I was 12. Now I have Universalis alopecia so I dont have any hair at all. Its pretty difficult on me but I know that hair isnt everything. I dont want it to change anything in my life so I just keep living even tho it is hard sometimes. I know it sounds cheezy, but life is like a rollercoaster, there are ups and there are downs. Even thought the downs can make you fall pretty low, and make you lose hope, dont forget there will always be high. You just have to wait for it and keep living.
I hope Jennifer will keep her confidance because it seems like she doing pretty good :)
Hows Australia?? Thats completely at the other end of the world!
Hi Christel,
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.
Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back
Hello! Thanks for the comment! This year at school I didnt wear a wig. I just used dark eyeshadow to cover the spots and always wore my hair down. I only got teased a few times because I kept it very private. My teachers knew which was a big help because my seat was always at the back of the room where no one could look at my head which was perfect and made me feel better. This year I am going to wear a wig though because my spots are getting bigger and harder to hide. I love Keith Urban and Rascal Flatts too! Im actually going to see Taylor Swift and Rascal Flatts in September! Its my third time seeing Rascal Flatts =D I'm a huge fan of theirs. Country music is amazing<3 It has helped me so much. Thats so cool that you're from Australia! I live in New England. Keep in touch! Send Jennifer my hope and love =]
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How is Greg and your son? You guys should come down soon so that the children can catch up. I know that Amber would love to see Jennifer again...
aww, im so glad that Jennifer is doing well :)
and I hope she will love her new school and make lots of friends and have fun there! :D
I haven't had any growth at all in the past, year I think. But im doing pretty with dealing with it i think :P
I have a real hair wig, and i absolutelly love it! :) Ive had about 6 wigs since alopecia. ( 2 every year ).
I just got a new wig for the summer! and mine is longer as well :D, i guess long hair is in style these days ;)
And yes I tattooed my eyebrows a year ago, and i LOVE THEM. Its so great because I used to always have to think if they looked okay and everything, now i NEVER have to think about it. I absolutely love the tattoo.
The pain was COMPLETELY worth it, i really recommend it!
hope Jennifer is doing well :)
Where are you now. Are you far from us so that we can come and visit...
I am 15 years old and Ive had alopecia since I was 12. Now I have Universalis alopecia so I dont have any hair at all. Its pretty difficult on me but I know that hair isnt everything. I dont want it to change anything in my life so I just keep living even tho it is hard sometimes. I know it sounds cheezy, but life is like a rollercoaster, there are ups and there are downs. Even thought the downs can make you fall pretty low, and make you lose hope, dont forget there will always be high. You just have to wait for it and keep living.
I hope Jennifer will keep her confidance because it seems like she doing pretty good :)
Hows Australia?? Thats completely at the other end of the world!
How are things going on your side of the world. Thank you so so much for the Christmas card. Nice to know that you were thinking about us.
How is Jennifer doing. Any news on the treatment.
No I do'nt know of any perth groups I am loosing my hair too I would love to be friends with you love Narelle
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.
Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back
Adrienne
love and hugs
Caroline
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