Hi Cindy, We met Dr. Gellis once and you are not the only person to leave his office feeling the way you do. Others have had similar experiences. a lot of families I have met see him. Did you go the CAP website to see our group info? Please email me at cindy@childrensalopeciaproject.org so I can include you on our e-list and send you the meeting info. I am glad you'd like to come join us. We have 2 girls that are 5. I know one is def coming so far. Cindy
Hi Cindy, my daughter was 5 when she was diagnosed. We actually have 2 5 yr olds who come to meetings. Who do you see? Samantha goes to Children's and has a great doctor. I took her to many doctors so don't be afraid to do so if you feel the need. I would be happy to tell you who we see if you want a recommendation. There is a non-profit organization called Children's Alopecia Project. www.childrensalopeciaproject.org. I suggest signing up with them, it is free. There is a tab that says Mass and that has our meeting history and info. We meet bi monthly at NW Hospital. Our next meeting is Sat March 13 2-4pm. We will be celebrating one year of CAP meetings. CAP had their first alopeciapalooza this summer and will have another one coming in Aug. Betsy would be able to add you to her e-list and you can get the info. Our CAP meetings are geared towards the kids and building their self-esteem and parents have opportunity to talk and share stories. You can email at cindy@childrensalopeciaproject.org. Let me know if you need anything. Cindy
Hi Cindy, Welcome to AW. I am in Upton which makes us neighbors. How are you doing? In case you are interested I started a support group here in Mass. We meet in Wellselly bi-monthly. We have a meeting coming up in March. If you want more info drop me a note. I am mom to an 8 yr old daughter with Alopecia who is currently in the regrowth phase. I hope to hear from you. Cindy
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