Hi Dawn, My daughter Sam began losing her hair at age 5.5 yrs. She is now almost 8 and it is almost all back. I was wondering what it was like growing up your whole life with this condition. I started a group for kids here in MA through CAP. Cindy
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I am totally bald too. I'm sorry you're having some bad days!
Let me know if I can help.
LeslieAnn