J
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  • Union, NJ
  • United States
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Parent with a child with alopecia
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 7:59am on November 23, 2009, Cindy said…
Your welcome and good luck!!
At 8:00am on November 11, 2009, Cindy said…
Hi J, I am sorry to read that your son is having an issue at school. Have you considered doing a presentation to the class on Alopecia. Like the pp you can get info from NAAF. Also, the childrens alopecia project maybe able to help. I am active with that organization. This summer they held a conference for the kids and they are planning one for 2010. www.childrensalopeciaproject.org. They may even have a family in your area to connect you with. My daughter Samantha has also be very accepting of her hair loss and never had any social issues. She did wear a wig for a year and half. After trying several treatments there was one that worked for hr and she now has her hair back. I think it is great that you continue to build his self esteem. That is so important and tell people that all the time. When Sam was losing her hair we also kept her involved in activities she enjoyed and surrounded by positive people. Keep doing this. Cindy
At 9:16pm on November 10, 2009, LeslieAnn Butler said…
Hey J,
For your son and school, go to www.naaf.org. There is a "Parent Pack" that includes a video that your school can play for the kids to educated them on alopecia. This is free.
When kids understand, they aren't likely to tease or bully.
Let me know how it goes, and I'm glad you liked the book!
LeslieAnn
At 11:09pm on November 8, 2009, LeslieAnn Butler said…
Hello and welcome, J!
How are you and your child doing today?
LeslieAnn
At 7:43am on November 3, 2009, Cindy said…
Hi J!!! Welcome to AW..I am Cindy and have a 7 yr old daughter with this condition. How are you all doing?
 
 
 

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