My name is Jennifer Turner, I am Abigail's mother. Abby is a gorgeous 5 year old little girl. She was diagnosed with alopecia at the age of 1 and a half. She has pretty much stayed completely bald since that time, but currently has hair on the top of her head long enough for cute little pig tails or a pony tail. We are starting to notice the remaining hair is falling out and she is starting kindergarten this fall and like any parent, we are worried about the response of other children to her in regards to her hair. She is the most strong brave child I know and nothing not even having no hair can keep her down!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older
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Hi Jennifer. My daughter, Nova, is 4 and a half. She has just started to regrow some hair too, but not enough for pony tails :) I decided to wait to start Kindergarten for Nova until next year. It would be nice to stay in touch with another parent in a similar situation. I didnt realize how many people in TN have or are parents of children with Alopecia. I think Nova would be really delighted to meet another girl her age with the AA. I try to encourage Nova to love herself just as she is, but she is quite self-conscious about her AA, and refuses to leave the house without her wig. Thats ok, though- I just want to support her in any way I can. Good luck with Kindergarten. I will look forward to seeing what you post about your experiences. Shannon
Hi Jennifer,
I too have a daughter with alopecia. i know how hard it can be. Amanda was diagnosed about a year before she started kindergarten and I too worried how other kids would react. It turned out no one really noticed. I hope to be chatting with you soon.
Tracy
Hi Jennifer. My name is Cindy and I have a 7 yr old daughter. She lost her hair when she started K . I can relate to your worries. How is your daughter doing? My daughter now has a short cut since regrowth began last summer. She still wears a wig, but not sure she will wear it when she returns to school in the fall. As far as school goes the kids really are not intuned to the lack of hair. They are more interested in playing. Sam has always worn a wig since her hair loss, but she has told kids she wears a wig. She has never been faced with any unkind words or actions. The kids she has told have been very supportive to her. There are some parents who have gone into the classroom to do a class talk about Alopeica. You can get some material from NAFF if you think it is something you need to do. Also, some parents I know of have sent letters home to the families so they can talk to their children about Alopecia. I can share some tips for head coverings that we use if you'd like. I also suggest contacting the childrens alopeica project if you have not yet. They can be a great resource to you. They are having their first kids conference, alopeicapalooza this Aug...take care,Cindy
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I too have a daughter with alopecia. i know how hard it can be. Amanda was diagnosed about a year before she started kindergarten and I too worried how other kids would react. It turned out no one really noticed. I hope to be chatting with you soon.
Tracy
How are you doing today?
LeslieAnn
Welcome to Alopecia World.
Jeffrey
Roger.