John Colbert
  • Male
  • Sunderland, MA
  • United States
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About Me:
Little... bald... different...

I first began to lose my hair when I was about three years old. It was a slow but steady process, with mainly just hair growth on the sides of my head up until about eighth grade. I also have a condition known as vitaligo, where I have lost all of the pigment in my skin. That, again, was a slow process which completed by the time I was in eighth grade as well.

That said, I spent most of my life growing up with patches of hair on my head, and patches of pigment on my skin. It was a rather difficult childhood to say the least!

Things got better in high school, but it wasn't until the end of that time where being bald became more of an accepted mainstream fashion. I think that being forced to grow up dealing with others reaction to my appearance was a major factor in leading me toward the more alternative scenes, or more particular for me, the Goth/Industrial scene. That only lead to different issues though, as running around in combat boots and a leather jacket made people simply assume that I was a skinhead. Just can't win sometimes I guess!

One benefit of alopecia, for me at least, was that I started working as an actor and stuntman after I graduated from high school. My appearance landed me quite a few gigs, and since I'm short as well, I was able to toss on a wig and stunt-double for child roles. :)

On the note of wigs/hairpieces: I personally have never wanted one. It is probably due to having been bald most of my life. I can sympathize with the trauma people go through who have lost their hair in later years, as the impact to their social lives would be dramatic. Still, I feel that you should embrace what you are, and not be ashamed or afraid of how people will react. True friends will stick by your side and stand up for you, and anyone of any quality will not judge you only based upon appearance. (and girls... there are a lot of guys who think that a bald girl is really sexy! ;) )

I'd also like to note here that I have a brother who is six years older than me and also has AU. He lost his hair around age 4, then it came back a year or two later. He lost it again completely in high school. As far as we know, we are the only ones in our family line who have the condition.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (4 comments)

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At 3:44pm on July 27, 2009, JeffreySF said…
Hi John,

Saw you were online and wanted to stop in and say hello.

Jeffrey
At 9:01pm on May 11, 2009, Lori D. said…
Welcome John! I live in Plymouth. Quite the rollercoaster ride some of us go through.. I've worn a wig since I was eight years old; 37 years worth of wigs. No one else in my family has it, but others do have other autoimmune diseases...specifically type 1 diabetes. I'm glad you've joined. This site has been of great support to me.
At 5:55pm on May 8, 2009, Cindy said…
Hi John, welcome to AW!! My name is Cindy and I live in MA. My 7 yr old daughter has Alopeica. I really found your personal profile message moving and could relate to some of it. Although, I nor anyone in my family has Alopeica, vitilago runs in my family. I developed it as a teenager and it was traumatizing for me. Kids could be so mean in school. One of my worst fears is that Sam will develop this as well. Because of my bad school experience I suppose I don't let Sam go out bald to places where we know people and she is never seen in our community with out her wig or headband. I don't want her to have the issues I did as a child. I have to say that I have met a few people that have multiple children with Alopeica..Sam is being treated at Childrens Hospital and is having regrowth. Of course I don't know the ultimate fate of her hair loss we are staying positive that this will work for her. I look forward to seeing you around the board.Cindy
At 3:50pm on May 8, 2009, JeffreySF said…
Hi John,

Welcome to Alopecia World.

Jeffrey
 
 
 

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