John Soroka
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  • Mokena, IL
  • United States
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My son and I both started Xeljanz Trial at Northwestern

Started this discussion. Last reply by Brian Lama Mar 18, 2020. 3 Replies

So I’ve had alopecia Universalis since 2007.  I’ve basically just resigned to the fact that it will be this way forever.  Then My 17 year old son got Universalis and I began a mission to try and find…Continue

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Brian Lama replied to John Soroka's discussion My son and I both started Xeljanz Trial at Northwestern
"I'm in the northern suburbs of Chicago. If I decided to participate, who would I contact? "
Mar 18, 2020
Jen Lowe replied to John Soroka's discussion My son and I both started Xeljanz Trial at Northwestern
"I would love more info about this trial! I'm in central Indiana is it's close enough."
Mar 13, 2020
chris_s replied to John Soroka's discussion My son and I both started Xeljanz Trial at Northwestern
"thanks for participating! I find it interesting that they are continuing to run trials on Xeljanz when there are several other alopecia-specific JAK inhibitors in the final stages of trials"
Mar 9, 2020
Cocopuffz17 liked John Soroka's discussion My son and I both started Xeljanz Trial at Northwestern
Mar 7, 2020
John Soroka posted a discussion

My son and I both started Xeljanz Trial at Northwestern

So I’ve had alopecia Universalis since 2007.  I’ve basically just resigned to the fact that it will be this way forever.  Then My 17 year old son got Universalis and I began a mission to try and find a local clinical trial. It’s very psychologically devastating for him.  In 2019 I did find a xeljanz trial at Northwestern and he qualified. They wanted me to join it as well but my mind kept thinking, what if my hair grew back and his didn’t.  I’d feel awful.  The Dr running the test told us flat…See More
Mar 7, 2020

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Relationship Status:
Single
About Me:
Hi for now. I'll add more later
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 3:57pm on August 11, 2010, Jessica said…
Welcome John...

Hope you enjoy the site.. and if you'd like to ever meet others in the Illinois area please take a look at the Chicago land group on here and send us a message. we get together once a month or more and have a big event coming up in Sept. you can also check out our site www.morethanmyhair.org


take care
jessica
 
 
 

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